I've just had my three year follow-up appointment (5/18/2007) with my surgeon, Dr. Rizk El-Galley, and everything is great. No evidence of disease on my ct scan or chest x-ray, and all my labs are normal. I've been taking vitamin B-12 injections since last August as my most recent blood levels had been low (May 2006), this is something all persons with a neobladder have to eventually deal with. However this is nothing to be alarmed about and is quite easy to manage by ones self.
I've been off the board for sometime and am still finding it difficult to get back to what I have so enjoyed in the past, but part of the problem here has been that I have lost three family members (Mother, Father, and Sister) in 387 days (30 October 2005 – 12 January 2006 – 21 November 2006). However there is a new deal in the mix that those of you who have known my postings here will find a surprize. I am in the process of divorcing my husband of 33 years, but this is probably going to be the best thing I've done for myself in a very long time. It may even help me get back to contributing to this wonderful forum. I do miss helping others as I did in the past, and it helped me in the process.
Thank you all so very much for all of your help in the past, I look forward to a more settled life in the near future.
Ileal orthotopic neobladder 2-17-2004