Comments for 26 years old with low grade t.c.c. at http://blcwebcafe.org , comment 1 to 1 out of 1 comments http://blcwebcafe.org Tue, 06 Jan 2009 23:37:28 +0100 FeedCreator 1.7.2 http://blcwebcafe.org/component/option,com_myblog/show,26-years-old-with-low-grade-t.c.c.-.html/Itemid,212/lang,english/#comment-331 Do me a big favor. &nbsp;Make an appointment with your G.P. and when you see her, slap her hard across the face. &nbsp;Short of that, explain to her that she's lucky you aren't suing. &nbsp;Short of that, educate her that persistent blood in the urine should ALWAYS be followed up with a cystoscope to rule out bladder cancer. &nbsp;Regardless, fire her.<br /><br />The uros who are telling you that you'll probably never have another bladder tumor should also be slapped. &nbsp;Hard. &nbsp;Considering the recurrence rate of around 70%, it's ignorant, even negligent, to suggest that your troubles are over, and does a tremendous disservice to patients. &nbsp;Hiding your head in the sand, with your doctors' full support, is not the way to deal with this disease.<br /><br />On the bright side, most people with low-grade, superficial BLCA will not progress to muscle-invasive disease. &nbsp;Recurrences, when they show up, also tend to be low-grade and superficial. &nbsp;However, there is a risk for progression, so be strict about your followup exams.<br /><br />If you do have a recurrence, and either the stage or grade worsen, then consider a more aggressive treatment approach. &nbsp;For now, probably the most important thing you can do is to find a new urologist who has a great deal of experience with bladder cancer. &nbsp;If you continue to be seen by incompetent practitioners, your risk escalates dramatically! - Crilly Fri, 11 Aug 2006 13:25:50 +0100