Comments for TCC leading to Bladder Cancer... HELP! at http://blcwebcafe.org , comment 1 to 4 out of 4 comments http://blcwebcafe.org Sat, 10 Jan 2009 00:32:00 +0100 FeedCreator 1.7.2 http://blcwebcafe.org/component/option,com_myblog/show,TCC-leading-to-Bladder-Cancer...-HELP-.html/Itemid,212/lang,english/#comment-655 Heya all, i am new to BC i was just diagnosed with it about 4 weeks ago, my Dr is good, and i trust him, he found 3 tumors and a buttload of polyps on the cystoscope. he had to do it in the hospital because of the imense pain i was in from the camera. i have spondylosis of L5 S1 and my spine is loaded with Arthritis as well. because of this i am on a huge regiment of pain control pills like 5 10/325 percocettes a day, 2 doses of 30mg ms contin, as well as the pyridium, and a lot of heavy pain stuff, and this still doesnt kill the pain i get when i urinate. it brinngs tears to my eyes, as well as almost feeling like my legs are going to give out. I have a second opinion set up at Bostons Dana Farber ctr on the 8th and he has scheduled me for my first treatment of BC g on the 11th. i am scared, in pain and worry that it may be more than just the bladder because of the pain i feel. i have so many questions to ask and i always forget them. is it normal to have such pain during urination?? even when on the drugs for it? i will be posting here for a while now and just reading some of the articles answered some questions for me, like should i have someone drive me home from the treatment, i have seen a lot of people say it makes them a little lethatgic afterwards so i am taking it thaat i should, well, for the first one anyways. Thank you all for any help in advance to my fears and questions. Jim M - Jim Mangan Thu, 28 Aug 2008 03:57:04 +0100 http://blcwebcafe.org/component/option,com_myblog/show,TCC-leading-to-Bladder-Cancer...-HELP-.html/Itemid,212/lang,english/#comment-652 I forgot to add yesterday that there is some research that implies that with many multiple tumors the risk of progression as well as recurrence goes up. So I would be very vigilant of my health, get a second opinion whenever I felt concern, research as much as possible. It seems like many cases of progression can end with removal of the bladder-eliminating the threat of losing your life to bladder cancer. Again, I wish you the best and strength and intelligence in dealing with all this. - Jeanette Wed, 20 Aug 2008 14:32:23 +0100 http://blcwebcafe.org/component/option,com_myblog/show,TCC-leading-to-Bladder-Cancer...-HELP-.html/Itemid,212/lang,english/#comment-651 I was first diagnosed with a 2 cm superfical bladder tumor in August 2005 during a CT scan ordered thankfully by my PCP. I have since had an outpatient surgery to remove that tumor, 2 other small recurrences, each single tumors of low grade. The thing that made it especially difficult was my husband had been diagnosed with colon cancer stage 3 that same year. He lost his fight with cancer last year. After the second recurrence I asked my urologist if I could have BCG as I am raising our 2 children alone and really don't want them to have to go through what they did with their dad again. I started last summer, did 1 cycle of 6 treatments (once a week for 6 weeks) then I have since done 2 more cycles of 3 treatments. The BCG did not really bother me other than it seemed to burn at times and I had even greater difficulty holding urine than I already had. The last cycle I started feeling a lot more tired and felt really grateful that I did not have to do it again for 6 months. All my cystos have been good/clear since the BCG began and I am beginning to feel more hopeful about the whole thing. Good luck with your treatment. If you can find inspiration/courage through faith/prayers/spirituality, that may be your best source of strength. - Jeanette Wed, 20 Aug 2008 04:24:00 +0100 http://blcwebcafe.org/component/option,com_myblog/show,TCC-leading-to-Bladder-Cancer...-HELP-.html/Itemid,212/lang,english/#comment-636 I sure understand your fear. I was diagnoised in Feb 2008. I have just recently finished 6 weeks of BCG. I was very sick and listless most of the time. They gave me Phenergan for the nausea. But the BCG did its job and killed the old tumors. I had 5 new tiny tumors on the 30 day check up. My advice is read everything you can find on BC. It helps to understand what others have gone thru. My prayers are with you, Sandy - Sandy Tue, 05 Aug 2008 20:26:03 +0100