Member Blogs

Hi all,

I'm happy to say that my screening nine months after my Turbt surgery has come up looking good.   Thanks to everyone for their support and advice as time as progressed.  I feel blessed to feel as good as I do, and I take nothing for granted.  If anyone needs a kind word or someone to talk to about BC, please feel free to email me.  I'm so fortunate that it's the least that I can

Comment (0) Read More...

Scheduled for Studer Diversion on March 17.  Really having a difficult time wondering how long to daytime continence.    Can anyone share there experience?  Thanks, Rick Hawkes Victoria

Comment (0) Read More...

Decided on RC... will be scheduled in next 10 days... really happy with this decision... 97% chance of full control once learned how... Excellent prognosis for 5 year cancer free...  3 - 4 weeks in hospital... 4 months to full recovery... Rick

Comment (0) Read More...

  Hello.

Let me start saying i had my bladder removed 30 years ago. Im now 32. I have an urostomy. I live a normal life, i dont really think there's nothing i can do in life. I surf, play basketball and have a very active social life. Go out to clubs, dance, drink(moderately) and have lots of friends and 2 ex GF that knew about my condition.

The thing is that there are new types of urinary diversions that dont require the use of an external bag. Even though im happy with my life, im aware that life could be "easier" without a bag hanging from your belly. 

I want to know if there's anyone who

Comment (1) Read More...

I got the results back of my cytology and the urine has some abnormal cells, although the oncologist says that these are single cells, the count is low and thus it doesn't necessarily mean a tumour. I must have another cytology next week to see if the count is increasing, which would tend to indicate a tumour. I am only scheduled for my next cystoscope at the end of March but I think I will wait to see for the results of the cytology and if there is an increase in count, I must surely go for another cystoscope. But, as far as I know, carcinoma in situ is difficult to pick up with cystoscopy

Comment (1) Read More...

The long and the short of it is I have had recurring non invasive for 9 years... suddenly very invasive.  Apparently my last biopsy was clear except an unknown area in my lower ureter.  Offered 6 weeks of BCG with a scoping in 10 weeks with a chance at reducing recurrence to 25% from 50% but no gurantee that it will work or that it will protect anything but the bladder.   Could be that the cancer continues to survive and thrive through this and in the end I am further behind and need more radical surgery....

Option 2 is bladder out within 8 weeks.  With what they know there is a good chance

Comment (1) Read More...

Not sure how this works... Waiting for removal of bladder and prostate... would really like to connect with others in similar circumstance and those that have been down this road before me.  Thanks.  Rick  Victoria BC

Comment (6) Read More...

Had my 6 BCG treatment yesterday. Went well.  Some blood, some pain when urinating. Pain is less this morning but urgency is still there. Drinking lots of water to flush the system.

Pat if you are there: My doctor is leaving area in 3 weeks and new Urologist won't he here until June so he is sending me to OHSU for followup treatments. All my information has been forwarded and they will be calling me to make appointments.

It is 100 miles from where I live, but have family and friends there so I will have a place to stay.

So will be getting to know a new doctor and since this is a cancer

Comment (6) Read More...

Just had a bilateral retrograde pyelogram at one year mark due to location of original cancer site.  Had the usual cysto every 3 months and those were clear. This was 100 % clear according to physician and am so thankful.  This may be a bit more than most would have for a low level stage, but truly it is a great result giving a tremendous amount of relief.  Follow up in office cystos every 3 months is still the plan and since this seems to be working well, will continue to follow the plan.  This web site has been most helpful and I encourage others to utilize it not only for the information,

Comment (0) Read More...

Had 5th BCG.   In my  6 hour, bleech in toilet, time frame.  Again there is blood on tissue each time I urinate.

Has anyone had this problem?? Is this something that happens??  I had this last time and the doctor said probably slight cath trauma.  With BCG being what it is, isn't cath trauma during the treatment dangerous??

 I am becoming very concerned. I will call the doctor in the morning and let him know about the bleeding.

If someone has had this problem I would really appreciate some

Comment (6) Read More...