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Dear Forum,

The days building up to my appointment today for the results of the CT scan were very difficult although this weekend I had a feeling of peace. A feeling that everything will be ok and this gave also a feeling of calm.

Today in the waiting room of course my stomach was once again turning with nerves until my oncologist called me in.

The scan was clear which is fantastic news....nothing could be seen except a small bladder stone in my new bladder.

I was taken on a step by step tour of my body looking at each section of the CT scan. Even the cysts that I had in my right kidney and the

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Thankyou all for your positive comments, we have been so happy with the results, & hope that now he can keep the cancer at bay & enjoy the rest of his life,
Thanks once again, you guys on here have been a blessing,
regards,

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On Friday, 4/11 my dad had surgery to remove his blader, prostrate, and lymph nodes around the bladder. The doctor was able to reconstruct a NeoBladder from a piece of his small intestine. The surgery was successful and with time he will be able to control his new bladder and function normally.

It's day 3 after surgery and as I had assumed he is in a lot of pain. He has the pain meds with the button to self medicate but he is just very uncomfortable. The nurses say he is doing very good - no fever, BP is normal, and drainage is good. I just can't find words to comfort him. He doesn't want to

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Dad had r/c on the 2nd of april, Operation went really well, it took a bit longer than they orig said as they decided to also take the urethra or water pipe as Dr put it, he also had to have his left urita cut down further as the cancer had advanced into it.
So he had bladder, prostate, urethra, lymp nodes (not sure how many) & a large section of left urita taken out, which they cut & sent of to path whilst he was under, news came came back still cancer, cut again, sent off, still cancer, cut more sent off, clear.
Dad seemed to recover quite well, apart from some blood pressure issues & being

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I finally made it through my 6 maintenance rounds with 3 postponements, and the last 3 BCG installations were 1/2 dose. I had my cysto on April 1st and was happy to learn that I was BC free!!!!!!!!!!!!!!!!!!, again. ;D

I still have some BCG treatment side effects, and they are slowly getting better. Biggest problem now is still the instant urge to void without any warning and pain if I don't immediately void. My Uro said that while the bladder looked fine, he felt that I was still affected by the BCG. Next cysto in 3 mos. (39 more to go). :o

Sure seemed like this last 8 mos. has been a fast

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Hi everyone, thank you all for caring. Joes lymphoma is stage two , confined to the groin area, He had his first chemo mon and is very tired , tonight he threw up for the first time, so now I guess it will be about getting into a new way of living for awhile.
    We got some very bad news on Mon morning . Our nephew Jimmy who was 36 died. Jimmy was on blood thinners and fell down the steps carring a load of clothes. He hit his head ,they got him to the hospital but couldn't save him , he bled into his brain. Jimmy leaves behind his wife 6 year old daughter and 2 year old son. Joes to sick for

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The fifth and sixth instillments went much like the fourth.  This has become very routine now, though it still puts me out for a day due mostly to the flu-like symptoms and the need for a dedicated bathroom.  Resting on the day of the treatment has helped me to recover fully, more

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Hi everyone, hope you are all well. Tomorrow we go back to the hospital for the first chemo treatment, they are going to keep him because they expect the tumor to die off fast and they have to make sure it doesn't ruin his kidneys. He told me to go skiing today as it was the last day of the season, I went but didn't stay long , it's like my son said whats the point.
  I have been thinking of my bladder cancer more and I guess that is natural, and I wonder does it scare me yet. I know to some I might sound flip about the bc sometimes and if I have ever offended anyone that is going thru the

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I feel now that I am on the up swing.  I do feel I have had one of the top Urologist in the country.  So many surgeries to fix the fistula because he desperately wanted to save my bladder because of my age.  My Uro is Rodney Appell with Baylor in Houston and the surgeries were done at Methodist in Houston.  All except the hysterectomy and the first repair.  I am anxious to get the Urodynamics done next week to see what they find. I know that the bladder neck was spared during surgery and I have do have a sense of urgency but it just all falls out by the time I get there.  I have every

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My story is quite different from most on this site, but it is the ONLY place I have been able to find anyone who has had their bladder removed and replaced with intestine.  In July 2005 I had a radical hysterectomy and had severe complications.  When I woke up in ICU I kept telling everyone my bed was wet, they said the catheter was just leaking.  A couple of days later the catheter was removed and I immediately urinated everywhere and their answer then was that the catheter had just been in longer than usual and it might take a few hours or a couple of days for everything to settle down.  I

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