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Last post I left off with my upcoming maintenance BCG scheduled for Feb. 13th, 2008. Went in for the treatment, advised the treatment nurse of my persistent irritation in the bladder area, with no specific urinary side effects. The treatment nurse spoke with the oncology nurse, who in turn spoke with the (invisible) oncologist, and they decided to delay treatment again (3rd week in a row). They also did another urine test (that came back negative on Friday, Feb 15th). I asked to see the oncologist, to discuss BCG dose options, and turns out the oncology nurse said that was not possible that

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Now for the surgery part. Dr. Schoenberg went in after fluffy,(for those of you that don't know that's what I call the b.c.) and then I woke up in the recovery room knocked for a lope! They said they we're going to make sure I didn't crawl off the table, lol. I think I am still under the influence because I can't think of the rigt way to spell lope! oh well, Dr.S came to talk to me for a minute ,and now I just wait for the path report. But what I really wanted to know is how soon I could go skiing ! For me skiing first thing is like going to the gym, it's how I try to beat the chronic pain I

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Hi everyone , Well I went to John Hopkins yesterday for my preop talk, I told them that I have a habit of trying to get off the table and leave if I am not knocked out enough !( I guess thats my hiking part kickking in Rosemary !! lol ) They assured me they would not let that happen !! thanks for the forwarning .
  We stayed close to the harbor since we had the rest of the day and night to kill (we live about three and ahalf hours away). My husband and I did the tourist thing and went exploring , I FOUND A BARNES AND NOBLE !! I could have stayed there alllll night, books everywhere ! My

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Well, since last I posted to this part of the forum, a lot has happened, actually --less to do with my treatment (though there is news there, too) than with reasons to live "beyond expectations."

I do have an appointment set up with a metastatic bladder cancer specialist at MD Anderson for March. In the mean time, I'm trying to get caught up with non-cancer medical issues, teeth, blood pressure, etc. I continue to feel well, generally,
but it is hard not to panic everytime I have what could be just a little "normal" ailment. For example, I felt "bone tired" yesterday morning and was afraid I'd

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When I went to hear the diagnosis from the doctor, my wife and my mother (20-yr RN in oncology) came along.  I was prepared for anything, but hoping for the best.  It turned out that I had a Ta tumor, low-grade and early-stage.  The tumor was completely removed, and the tissue samples from the bladder lining and wall came back negative.  Because of my age it was decided that I would undergo an initial 6-week BCG treatment, and a quarterly cystoscopy for the forseeable future.  This was VERY good news, and I thank God for the outcome.  This diagnosis caused a lot of introspection during a time

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Heenan,

Hi!!  I hope it's okay, but I moved your thread to the "Newly Diagnosed" section.
This is in the hopes that your story will get the attention and the feedback that will help you during this difficult time.

Thanks for sharing your Dad's story with us.  I like the picture!!

Your new friend,
Rosemary

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This topic has been moved to Newly Diagnosed[url=http://bladdercancersupport.org/smf/index.php?board=2]Newly Diagnosed[/url].

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Good News, Had the 2 week post exam.  All is good. Dr has put my exams at the 6 month schedule. 

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Just a clarification on my original storyboard post. The T1G3 results did not arise from my 1st cysto in August. They were provided to me in late Sep. 2007 after the TURB. Sorry about that...

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I was 52 in Nov 2006 when I first experienced visible blood in my urine. Family Dr. was quick to pass it off as an infection. A few days of antibiotics, and it was gone. No other symptoms. Interestingly, it was the 1st time I had a digital for the prostrate, and apparently it was fine.

Fast fwd. to Aug. 4th 2007. Our 2 week vacation plan was bought and paid for, my two daughters and my wife looking forward to the excursion. Then 8 hours before the 4:30AM flight , I had blood in the urine again. This time it was so red it was nearly black. Okay, should I do the guy thing and ignore it, or....

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