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Hi,

My name is Susan, i'm 50 yrs old.

6 months ago I had a Neurourectomy following that 6 wks ago I had my first Turb. The result of this was they removed another 17 tiny tumors.

Next wk I am starting a 6 week course of BCG. I have researched as much as the next person on my diagnosis but I have yet to meet anyone who has been diagnosed with something similar, and would appreciate any comments or advice as I am (to be brutally honest) absolutely terrified!

Thanx

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I posted this on my ABLCS blog and had several people tell me I should post it here to.  So for what it's worth here's my thoughts on this subject.

When I was first told that my bladder had to come out I asked about my options. It was then I felt like I had walked onto the set of Let's Make a Deal. Behind these curtains we have an external bag, an internal bag with abdominal stoma, or a new bladder that will work mostly like the old. No brainer I thought take curtain number three. I will add my vanity had a lot to do with it, I am only 38.

Usually when I am faced with something I like to know

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Doctor told me that they found a tiny benign type polyp at the neck of the bladder which they burned off. Said, that it is nothing to worry about and will talk more about it at the 2 week post visit. Will update more

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Dandelions or TCC

 

July 17, 2008

 

First and foremost, thank you all so much for sharing your BC experiences with me.  Finding this site has helped me so much to not feel so alone.  Although we are not suffering in the same ways, we are all feeling the loss of control of our lives.

I am a 62-year-old female and smoked at least one-pack-a-day for nearly 45 years.  I had finally quit for the last time in Feb. 2006, thanks to Chantix.  I had never heard of bladder cancer from smoking, so I was truly shocked.  My story begins several years ago with uncontrolled urgency, embarrassing experiences of

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Well its been around 6 months and I go in for my next exam tomorrow.  I will follow up in a couple of days.  Some very good news, my wife and Ii are expecting again.  Monika is 9 weeks

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I am a 51 year old male, who received a heart Transplant 10 years ago, due to viral Cardiac Myopathy. I could spend two hours telling you about that miracle, but this webpage is about Bladder Cancer and so I will tell you the rest of the miracle!!

May of 2007, I had a lot of blood in my urine. Because of my transplant I  immediatly went to ER Room. I was told that I had a kidney stone, but that I was to follow up with a urologist the next day. The urologist told me after looking at the cat scan that the bleed was not from a kidney stone. When I asked what would cause blood in my urine, she

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Recently I found out that my partner has been re-diagnosed with bladder cancer. She was originally diagnosed about 2  years ago and had been cancer free since then. However we just found out that the cancer is back. We weren't together at the time that she was originally diagnosed and so I'm unsure of what treatment she underwent or what the stages of her cancer are, I do know that it is not something she likes to talk about. She is only 30 years old and is one of the most health concious people I know. She doesn't eat red meat, is active on a soccer team and runs or bikes almost daily. It

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Hello, my name is Charlotte I am 38 and have two children 12 and 8 years old. I used to worry about my husband getting lung cancer since both his father and grandfather died at an early age from it. We both quite smoking cigarets 11 years ago. He still has an occasional cigar.

March 15, 2008 saw blood in my urine and made an appointment with doctor for next day. For the next month they treated me for UTI and Kidney stones.

April 16, 2008 now having dark red urine. Had a complete physical and was told I was healthy and was told to hang in there the stone would soon pass. I demanded to

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Well, yesterday marked the date - my first Cystoscopy since the latest TUR in February. I must say, the night before was sleepless.  Even though I was not having symptoms, this disease took me by surprise to begin with so I take nothing for granted.

 On this occasion the news is all great!  In fact the Doc says my bladder looks "pristine". Doesn't get any better than that folks.

My thoughts, hopes and prayers are with each one of you still fighting.

God

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Hi,

 

Not sure where to start. Looking for some similarities with my brother's bladder cancer and not finding any. He will not get on this site to search. I hope that someone can give me some answers. Brother was diagnosed with bladder cancer December of 2007.Had it removed Jan 2008. Him and his girlfriend came to live with me for a while and he recuped. Moved to Maine that summer and diligently went for his 3 months cystoscopys. Last one was positive. Went from superficial to squamous cell. Need more info. He seems to think it is a death sentence. He has pain in his upper back/neck. We all

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