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I've just had my three year follow-up appointment (5/18/2007) with my surgeon, Dr. Rizk El-Galley, and everything is great. No evidence of disease on my ct scan or chest x-ray, and all my labs are normal.  I've been taking vitamin B-12 injections since last August as my most recent blood levels had been low (May 2006), this is something all persons with a neobladder have to eventually deal with.  However this is nothing to be alarmed about and is quite easy to manage by ones self.
I've been off the board for sometime and am still finding it difficult to get back to what I have so enjoyed in

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Everything was A #1, completely clear!  Thanks to everyone for all the support since I first reported seeing blood in my urine on August 20th, I appreciate it very much.  I was fairly sure it was going to be from a UTI (the blood), but you all know there's always the possibility it could be a recurrence.
I'm breathing much easier again...

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Thank you both for your replies and prayers, I do very much appreciate them.

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...about having seen a fair amount of blood in my urine this past Sunday and although I know it very well could be a UTI, the word recurrence does pop into mind.  I saw my surgeon yesterday and we're waiting on a urine culture, but he's also had me scheduled for an IVP and then later the same day I'll have a cystoscope.  The only problem with this is I have to wait because he's going to be out of town for about a week, and his first opening isn't until 13 September.  I never thought I'd be upset at having to wait for a cystoscope, especially after the last one (29 Dec 2003).  Reminds me of

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I realize this doesn't relate to bladder cancer, but it is about cancer.  I learned as many of you have by now also, that Dana Reeve wife of the late Christopher Reeve (Superman) has died from Lung Cancer at the age of 44.  She leaves a thirteen year old son, and his pain must be hard for most of us to understand.
On Good Morning America this morning they showed an interview Diane Sawyer had with Dana in November 2005, and during that interview she explained how her son hadn't only just  lost his Father, but also her Mother, and she told how difficult it was to then have to tell him that she

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In my most recent update I mention having found a solution for my incontinence, and I go on from there and tell of an additional find (another form of estrogen) that helped me even more with my problem.  What I didn't mention was what made me ask for more assistance and that came because of a set back I had at the end of May 2004.
I had been going along using my PremPro/Premarin and I was so thankful because of the huge difference it made in my day to day life with my continence.  During the Memorial Day week-end I had one of my horrendous three day migraines (started Friday night and

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[size=16] 30 November 2005[/size]
I've had four follow-up CT scans and so far all is clear. Although my first follow-up in August 2004 had me holding my breath for the next three months, as I had a newly enlarged lymph node on that scan. Dr. El-Galley (my surgeon) told me it very well could be enlarged because of the surgery alone, but if there was an increase in size on the next scan three months from then we'd do a biopsy. Fortunately there was no increase in size on the CT in November 2004, and my next follow-up would be six months down the road. In my initial write up I mentioned my being

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One last little thing something I've noticed on Classmates dot com website is when you go to your own profile or bio or whatever they call it, it counts your visit to your own area as a viewing as if by others.  My question now is does it happen the same way here on this sight?

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As far as I know I never received an email from this site that contained my original story, the link I use is in my Favorites category on my Internet Explorer.  It just started taking me to the new site, I've seen nothing else.  The information that's available on the new site doesn't explain much of anything, at least nothing about the things I mentioned in my previous

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Thank-you, and I hope I find it easy to use.  Having to read lots of detailed instruction is not easy for me because of my ADHD, so I hope if there is still a problem you'll be able to find something that works for those of us who are instructionally

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