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Hi everyone, thank you all for caring. Joes lymphoma is stage two , confined to the groin area, He had his first chemo mon and is very tired , tonight he threw up for the first time, so now I guess it will be about getting into a new way of living for awhile.
    We got some very bad news on Mon morning . Our nephew Jimmy who was 36 died. Jimmy was on blood thinners and fell down the steps carring a load of clothes. He hit his head ,they got him to the hospital but couldn't save him , he bled into his brain. Jimmy leaves behind his wife 6 year old daughter and 2 year old son. Joes to sick for

Hi everyone, hope you are all well. Tomorrow we go back to the hospital for the first chemo treatment, they are going to keep him because they expect the tumor to die off fast and they have to make sure it doesn't ruin his kidneys. He told me to go skiing today as it was the last day of the season, I went but didn't stay long , it's like my son said whats the point.
  I have been thinking of my bladder cancer more and I guess that is natural, and I wonder does it scare me yet. I know to some I might sound flip about the bc sometimes and if I have ever offended anyone that is going thru the

Hi everyone, thank you for all your kindness, I took my husband back to the hospital the next day and they put the port in. I was doing pretty good then I caught the creeping crud in the hospital and ended up pretty sick.
    I guess just having my own tur done and then this has left my body worn down. It is hard to keep it together when you feel so tired and sick yourself. I can,t evan walk like I do to get rid of the stress. I keep forgetting to set up my next scope . Thank you all again for  your kindness you are all in my thoughts. Rocky
 

Hi everyone ,thanks for the good thoughts. It is diffuse large cell b type. They are doing a pet scan and bone marrow next week to find out more about the lymphoma.
  The oncologist had a fellowship in bone marrow transplantation at John Hopkins so she has to be on the ball I guess . She wants to start chemo now ! She said this is an agressive type ,but because of that it should respond to the chemo .
  The hospital discharged us at 9:45 tonight and we had an hour ride home, we waited all day for a port to be put in but the surgeon couldn't get to him , so it is now 12:30 and I am very tired

 
  Hi everyone,  Thanks for the quotes the mother t one gave me a chuckle.
  It is lymphoma, now they just have to figure out what kind . The leg is really swollen and the worst part is not having the time to do any research  (because it is acute) to find out where and who is the best to treat this , at least with my b.c. I had time to figure out who was the best in my area (John Hopkins). I got to come home for a couple of hours today while my daughter sits with my husband so I will start trying to figure it all out.
  The staff where he is are wonderful but the place is filthy !! They

Just when you get the rug back under your feet it gets jerked back out!!!
My husband had a mole taken off his upper thigh , it got alittle infected so the Dr gave him antibiotics to help it. He is now in the hospital with a blood clot in his lung. The scat scan showed a tumor in his groin and enlarged lymph nodes in his body. They are saying the're pretty sure it is lymphoma. Tomorrow they will do a biopsie.
    I thought it was hard to tell my kids about me , but their Daddy is their rock, he is never sick. I went to the Lord in prayer and he said , Trust Me.  he didn't say it would be fine


 
Hi everyone,  Well I got my path report back today, it said:
    Papillary urothelial neoplasm of low malignant potential. So in plain english I guess it means even though I have had a recure I won,t have to do the bcg. I have a feeling if I ever have to do the bcg it will slow me down. Now my kids and husband will feel alot better to know it hasn't got worse . I think maybe you worry alot more when it is someone you love that has something.
    Hope everything is fine with all of you. love from

Now for the surgery part. Dr. Schoenberg went in after fluffy,(for those of you that don't know that's what I call the b.c.) and then I woke up in the recovery room knocked for a lope! They said they we're going to make sure I didn't crawl off the table, lol. I think I am still under the influence because I can't think of the rigt way to spell lope! oh well, Dr.S came to talk to me for a minute ,and now I just wait for the path report. But what I really wanted to know is how soon I could go skiing ! For me skiing first thing is like going to the gym, it's how I try to beat the chronic pain I

Hi everyone , Well I went to John Hopkins yesterday for my preop talk, I told them that I have a habit of trying to get off the table and leave if I am not knocked out enough !( I guess thats my hiking part kickking in Rosemary !! lol ) They assured me they would not let that happen !! thanks for the forwarning .
  We stayed close to the harbor since we had the rest of the day and night to kill (we live about three and ahalf hours away). My husband and I did the tourist thing and went exploring , I FOUND A BARNES AND NOBLE !! I could have stayed there alllll night, books everywhere ! My

Hi everyone I am trying to update my story so I am sorry ahead of time if I'm not doing it right.
  Well I have been skiing alot trying to stay in shape and waiting to go to my 6 week  check up .And guess what ? when I got there they told me it was the week before !! It's a three and ahalf hour ride to get there. God love my husband he just put his arm around me and said,"don't worry honey I'll bring you back ."     
  went back yesterday, some resident came into scope me first and she really hurt me! She was really ruff and didn't wait for the numbing to work, anyhow the Dr. came in and

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