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Hi Roy
I hadn't checked back here in a while either actually - been in hospital for 2 wks, been out 2 wks now and much better - all those aches and pains I mentioned before got too much and I was in agony. thank God for morphine!!! Anyway, the docs have now said that they think all these pains are due to adhesions. my mum has since told me i had them before when i was 2 1/2 and they were surgically removed... anyway, am on tramadol pretty much constantly now. good thing was i got a full mot. i had a virtual colonoscopy - they're the new ct version of a colonoscopy, far less invasive!
anyway, am

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i don't think they can do anything about the reflux... i'm guessin they're doin all they can at the moment. as i said, their main concern is my overall kidney function, which at present is, although not 100%, quite good. Do u get renal colic at all? i had 2 huuuge stones when i was 12, surgically removed but now I seem to get pain every 3 or 4 mnths (which i'm self-diagnosing as renal colic, admittedly) but don't mention it to the dr's as i'm not sure they'd be able to do anything anyway. Plus, it's just pain, it doesn't usually involve temperature or nausea or anything. Still, it's bl*&^y

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hi again,
my dr's are actually really good. especially my nephrologist. my urologists seem to be of the opinion that until i get cancer or my kidneys pack up, they'll stick with the usm. my kidney doc has recently said i'll prob need a transplant at some point in the next 20 yrs - long time off, but i'd still only be in my 40's by then. if that happened, i don't think they'd give me another usm cos the exact same thing cld happen again to the new kidney.
ur so lucky to have so few complications with ur usm. how long have u had it for? was it offered to u alongside the other more common

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I'm at a hospital in Manchester, England. Where do u

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hi again
i'm on sodium bicarb too - i take 4g a day though, 8 capsules. i'm also on hypertension medication and prophyactic antibiotics. was on trimethoprim for yrs and now switch monthly btwn nitrofurantoin and co-amoxiclav as am resistant to trimethoprim now. i'm have a kidney ultra sound in 3 wks time, last one was 6 wks ago, lots of dilation and scarring.
do u get much reflux? r u often tired? do u get twinges and aches and pains

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Hi thanks for your response... are you on any medication at all? What is your kidney function like?  Sorry, it's just I've never met anyone with a USM before!

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Hello
I was just wondering if there is anyone out there in the same position as me... I had a complete cystectomy aged 6 months and had USM done, then redone when I was 3 yrs old. I had chemotherapy but not radiotherapy.
I have never had a problem with malignancies and am about 90% continent. I have had a partial nephrectomy though (aged 12), kidney stones, and have lost count of the number of UTI's I've had. Usually hospitalised annually due to pylenophritis but overall kidney function is pretty good considering.
Anyway, my main worry is this threat of colo-rectal cancer. I'm having the

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