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Diagnosed with cancer 2

Posted by: wendydos in side effectsBCG on

Hi

Went for my 2nd BCG instillation on Wednesday, with no problems.  Discussed my side effects with my doctor. (Chills after 24 hours and minute blood spot on the Tuesday - 6 days after instillation). He said that side effects indicate that the medication is working. (Horay for side effects)

This time however my side effects began about 2 hours after receiving the BCG - Chills and fever (flu like) and the most agonising burn upon urination (only the first 2 times). Also had some hermaturia.  By Thursday midday I was fine. Would like to hear from anyone that has had the same side effects. (Keen


Hi, my Name is Wendy and I am 51 years old. In April and September 2010 I presented with gross hermaturia. Went to my GP (general practioner) and after a urine test she prescribed an antibiotic for a UTI. After 2 days on both occasions the bleeding stopped. Then in February 2011 it started again. My GP again tested for an infection, gave me an antibiotic. After 7 days the appearance of blood had not subsided and my GP referred me to a Urologist.

I went to see the urologist and he suggested that I be booked into hospital as he would need to perform a cystoscopy and wanted me to have an IVP


I have as of today reached the 1 year anniversary since my diagnosis. Stage 1, non muscle bladder cancer. I am 45 years old.

I underwent two resection/biopsies with mitromyicin and a 6 week induction with BCG. So far, a year later I am clean.

 I am wondering about others experience with the BCG treatment. I handled it well, with the first three treatments being a breeze and the last three being painful but tolerable. I did experience some mild flu like symptoms with my energy levels being low as my biggest complaint.  Now, 6 months after my last treatment I find I am experiencing flu like


I'm new to the Bladder Cancer WebCafe but I have been reading many blogs and infromation from it since my diagnosis in March 2011. A great site!

I'm a 52 year old female in great health and very active. I had been diagnosed with Ta Grade 1 and  immediately started BCG. After the second biopsy the result was the same. The first biopsy the doctor had taken from 2 areas, the second biopsy from three areas. The malignancy showed up in one new area of the three. As soon as I could, I started the second treatment of BCG. 

This last biopsy had 4 areas removed. One area showed a malignancy but this one


 

 

BCG SIDE EFFECTS-BURNING AND URGE INCONTINENCE

 After my father's last bcg instillation he has had constant burning and urge

incontinence.   This has been going on for about 3 months.  The doctors seem

stumped and keep telling us it is an inflamed bladder.  The meds that they have

given us provide no relief.  Has anyone else experienced this?  And anyone have

any input or insight into this side


My 78 year old father was diagnosed with a Stage 1 T1 Grade 3 tumor in Jul 2009. He successfully went through a TURBT and six BCG treatments with minimal side effects. In Mar 2010 he had a follow-on biopsy ... good news; no evidence of the cancer. Then he started BCG maintenance in May 2010. We had 3 treatments scheduled. After the second treatment he started shedding the lining of his bladder so we stopped treatment. Here is the issue: he has pretty significant burning when he urinates. This started with the BCG maintenance treatments in May and still continues today (3 months). He had


I'm a 47-year old female (non-smoker) who was diagnosed with bladder cancer in March 2010.  My pathology showed high grade papillary urothelial carcinoma with superficial invasion into the lamina propria.  I've gotten 3 opinions and my options are BCG therapy or cystectomy (neobladder).  I'm afraid to do the BCG therapy because of the the low cure rate and high return rate.  I know the cystectomy has a higher cure rate, but has a high rate of complications.  Does anyone have any advice for me?  I have 2 teenagers that need their

Been a whole since I updated here.  I'm now 42 (41 when for Turb) and always been a non-smoker.  Had surgery Jan 22, 2009.  Ran through 6 weeks of BCG.
Started maintenance BCG in November.  We're going to do that every 6 months (or 3 months after every scope for two years then re-evaluate).  My tumor was classed as large, aggressive and high-grade.

About to do my last quarterly scope today.  We'll go to every six months after that.

 So far its been clean.

 Issues:

The scope has become a non-event.  I get a bit worked up before-hand, but the procedure is nothing to me.  I know when to relax, take


 

 

After two years of occasional haematuria (my doctor and I thought it was just bladder infections)  I finally insisted on an ultrasound.   Three tumours - one large and two small were discovered.   It was non-invasive  papillary urothelial carcinoma.  I was not expecting this.  After all, I don't fit the usual profile for bladder cancer ( I'm a 56 year old non-smoking female).  

I had a transurethral resection  in Canada almost three months ago but have since moved to Mexico where I will need to continue treatment.  My doctor here will be doing another cystoscopy in about three weeks


Had my second RBT and am cancer free. Will be starting 6month, 3 week BCG  treatments in June.  Dr will do cystoscopy before the 1st treatment to make sure nothing coming back.

My new doctor is very thourough which really helps give me confidence that he will be able to keep this under control.

I am so relieved to have it all clear and can get on with my life.

Thank you to all who have been so supportive.

Carol


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