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Hi,

My name is Susan, i'm 50 yrs old.

6 months ago I had a Neurourectomy following that 6 wks ago I had my first Turb. The result of this was they removed another 17 tiny tumors.

Next wk I am starting a 6 week course of BCG. I have researched as much as the next person on my diagnosis but I have yet to meet anyone who has been diagnosed with something similar, and would appreciate any comments or advice as I am (to be brutally honest) absolutely terrified!

Thanx

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UPDATE:

Sorry I havent been around for awhile.

Ok, Dad finished his BCG back in Nov & was to wait 6 to 8 weeks for cysto & bi-op. Well this was preformed yesterday & guess what?  ::)more tumor,  ::)now waiting on path results & ct scans. They said that it would be more than likely that they will go ahead with r/c, sooner rather than later, feeling a bit low right now, :'( I said to Dad, At least there will be know looking back saying "what if" they had tried this "what if" they had done that. Been there done that & after living with Bladder cancer for 17 or 18 years & having many, many tests,

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Hello Everyone,

I rarely post on this site but I read many of the posts.  I'd like to share some good news.  My husband was diagnosed with bladder cancer in November 2005.  He's had many rounds of BCG and is now on maintenance BCG.  His scopes are every 3 months for 3 years.  His last scope was Oct. 25th and his bladder was clean.  It's been 2 years since his diagnosis and his bladder has been clean since the surgery (Dec. 2005).  I just wanted to share some positive and great news!

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Dad started his first 6 BCG treatments on Tuesday, so we will see what the next couple of months brings, they stated that they will monitor him closely & any sign that the treatment is not working, they will do R/c, I hope they know what they are doing.

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were do I begin, Mum & Dad made the 3 hour journey on Monday so that dad could begin the bowel prep on Tue, Fasting from Mon night, he began the bowel prep on tue, tue came & went, up early and of to the hospital for a 7am start. My sister & I got on the road around 4am & arrived just after 7am, he hadnt gone anywhere yet so we were able to see him before he went in. They called him in & both mum & he went in. Whilst in the bed waiting the anathesist came in & said, so your in for your bi-op, mum said know I think its a little more serious than that, he said no your in for a bi-op. He then

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Ok, They were very surprised to find path results come back that the muscle was clear, although they said they are extremly suspect that there may still be muscle involvment expecilly as it is in the ureta,
options given were
1. chemo & bcg. They said(the cancer could still progess whilst on chemo) & (it wont work if there is muscle involvement)
2. surgery rc ileal conduit or neo bladder
So dad has chosen to go ahead with surgery,(ileal conduit) which should take place in the next 2-4 weeks at a hospital thats about 3 hours from home.
So we are hoping that every thing goes well.
Cathy

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I got my initial path reports today from 2006, initial diagnosis.

This is what I would have to describe as "pathology whiplash".

That is where you go from Point A to Point Z too quickly for your body and mind to catch up with you.

As an epilogue to these pathologies, when I went for muscle biopsy at UNC in May 2006, my cancer was [i]"POOF[/i]"  [b]GONE[/b].  I began BCG treatments in June 2006.  No recurrances.

When I was at Chapel Hill in May for biopsy, I was told that there were two muscle biopsies performed by my Doctor that day for T1 G3 bladder cancer.  The other guy wasn't as "lucky".  He

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;D Boy how things can change so rapidly. Not sure why I was so worried after the last P & P. Had my biopsies done on 7 March and the news was all good. No sign of any recurrence of tumors. Doc gave me choice of further BCG or repeat P & P in 3 months. I chose the latter as I had problems with the BCG last time (see earlier story). All happy again, at least as far as this goes although I have to have a spinal fusion done in April but I feel stronger and am convinced I can cope with anything now. I am also retiring from work in a couple of weeks to enjoy life and my grandchildren. Happy days

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:-[ A little anxious again this way. I had a Cystoscopy yesterday and even I could see the inflamation that was on the bladder wall. Uro is hopeful it is just the effects of the BCG maintenance I had before Christmas. Has scheduled another Cystoscopy and bladder biopsy for 7 March so I will cross my fingers until then. This is something I hadn't expected and don't need right now as I am going through a bit of sh*t with my employer at the moment. It's all a bit stressful but I am trying to remain calm and positive.

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Just a quick update. I have had that urge to pee over the past 3 months since second round of BCG. It is diminishing but still hits hard occasionally. Due for my P&P next Monday and will report after then. Fingers crossed there is no recurrence again.

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