Blog Entries tagged 'BCG'

TCC leading to Bladder Cancer... HELP!

susanairey@talktalk.net — Mon, 04 Aug 2008 01:00:00 +0100

Hi,

My name is Susan, i'm 50 yrs old.

6 months ago I had a Neurourectomy following that 6 wks ago I had my first Turb. The result of this was they removed another 17 tiny tumors.

Next wk I am starting a 6 week course of BCG. I have researched as much as the next person on my diagnosis but I have yet to meet anyone who has been diagnosed with something similar, and would appreciate any comments or advice as I am (to be brutally honest) absolutely terrified!

Thanx < [...]

fathers long journey

noteabulldogs@hotmail.com — Wed, 06 Feb 2008 23:07:06 +0100

UPDATE:

Sorry I havent been around for awhile.

Ok, Dad finished his BCG back in Nov & was to wait 6 to 8 weeks for cysto & bi-op. Well this was preformed yesterday & guess what? ::)more tumor, ::)now waiting on path results & ct scans. They said that it would be more than likely that they will go ahead with r/c, sooner rather than later, feeling a bit low right now, :'( I said to Dad, At least there will be know looking back saying "wha [...]

Good News!

bandi99@sbcglobal.net — Thu, 08 Nov 2007 00:16:00 +0100

Hello Everyone,

I rarely post on this site but I read many of the posts. I'd like to share some good news. My husband was diagnosed with bladder cancer in November 2005. He's had many rounds of BCG and is now on maintenance BCG. His scopes are every 3 months for 3 years. His last scope was Oct. 25th and his bladder was clean. It's been 2 years since his diagnosis and his bladder has been clean since the surgery (Dec. 2005). I ju [...]

fathers long journey

noteabulldogs@hotmail.com — Wed, 17 Oct 2007 19:41:37 +0100

Dad started his first 6 BCG treatments on Tuesday, so we will see what the next couple of months brings, they stated that they will monitor him closely & any sign that the treatment is not working, they will do R/c, I hope they know what they are doing.
Cathy

fathers long journey

noteabulldogs@hotmail.com — Thu, 20 Sep 2007 02:34:35 +0100

were do I begin, Mum & Dad made the 3 hour journey on Monday so that dad could begin the bowel prep on Tue, Fasting from Mon night, he began the bowel prep on tue, tue came & went, up early and of to the hospital for a 7am start. My sister & I got on the road around 4am & arrived just after 7am, he hadnt gone anywhere yet so we were able to see him before he went in. They called him in & both mum & he went in. Whilst in the bed waiting the anathesist came in & said, s [...]

fathers long journey

noteabulldogs@hotmail.com — Wed, 22 Aug 2007 21:05:25 +0100

Ok, They were very surprised to find path results come back that the muscle was clear, although they said they are extremly suspect that there may still be muscle involvment expecilly as it is in the ureta,
options given were
1. chemo & bcg. They said(the cancer could still progess whilst on chemo) & (it wont work if there is muscle involvement)
2. surgery rc ileal conduit or neo bladder
So dad has chosen to go ahead with surgery,(ileal conduit) which should take pl [...]

Superficial BC vs. Metastatic BC

osterhus52@hotmail.com — Tue, 03 Apr 2007 18:29:24 +0100

I got my initial path reports today from 2006, initial diagnosis.

This is what I would have to describe as "pathology whiplash".

That is where you go from Point A to Point Z too quickly for your body and mind to catch up with you.

As an epilogue to these pathologies, when I went for muscle biopsy at UNC in May 2006, my cancer was [i]"POOF[/i]" �[b]GONE[/b]. �I began BCG treatments in June 2006. �No recurrances.

When I was at Chapel [...]

My Story

mildew@iinet.net.au — Mon, 26 Mar 2007 13:56:51 +0100

;D Boy how things can change so rapidly. Not sure why I was so worried after the last P & P. Had my biopsies done on 7 March and the news was all good. No sign of any recurrence of tumors. Doc gave me choice of further BCG or repeat P & P in 3 months. I chose the latter as I had problems with the BCG last time (see earlier story). All happy again, at least as far as this goes although I have to have a spinal fusion done in April but I feel stronger and am convinced I can cope with anyth [...]

My Story

mildew@iinet.net.au — Tue, 20 Feb 2007 08:27:50 +0100

:-[ A little anxious again this way. I had a Cystoscopy yesterday and even I could see the inflamation that was on the bladder wall. Uro is hopeful it is just the effects of the BCG maintenance I had before Christmas. Has scheduled another Cystoscopy and bladder biopsy for 7 March so I will cross my fingers until then. This is something I hadn't expected and don't need right now as I am going through a bit of sh*t with my employer at the moment. It's all a bit stressful but I am trying to remai [...]

My Story

mildew@iinet.net.au — Mon, 12 Feb 2007 09:47:36 +0100

Just a quick update. I have had that urge to pee over the past 3 months since second round of BCG. It is diminishing but still hits hard occasionally. Due for my P&P next Monday and will report after then. Fingers crossed there is no recurrence again. :-?

My Story

mildew@iinet.net.au — Tue, 12 Dec 2006 08:27:45 +0100

November I had my 3 week BCG maintenance course and this had to be a lot worse than the 6 I had earlier this year. After the 2nd one I got a severe fever, symptons not unlike tuberculosis and that was no fun for a couple of days. Peed a lot more blood than normal and for longer and then went a few weeks with the urgent need to rush to the toilet. Even now it hits me out of the blue and I have to run but it is improving each day. I am due for another P&P around January and remain confident I [...]

TaG3 - 6 of one, how much of the other?

jhs@bosporusconsulting.com — Sat, 09 Dec 2006 19:52:07 +0100

Thank you all for your expressions of concern and encouragement.

I had my TURBT on Thursday. Will know the results at the follow-up consult when we get the pathology report. My doc also administered Mitomycin during the procedure.

Earlier in the week, during the pre-op consult, we discussed the implications of this recurrence. He said that if it turned out to be T1 (he is in the camp that considers T1 to be invasive) we'd have to begin consideration of bladder removal. If [...]

My tretment with interferon after BCG failure

pilot78451@aol.com — Sun, 03 Dec 2006 16:39:08 +0100

Sorry it is Tuna omega. Don

My tretment with interferon after BCG failure

pilot78451@aol.com — Sun, 03 Dec 2006 13:26:45 +0100

I can give you the names of the products but I might sugest you see a herbilis docter. I think the people taht sel it might require this. And I again am not saying this is what did it for me. I had a lot of people suporting me and I beleave in God as a higher power. This is it brand name Medi-herb tuna omega, shatake ganoderma, astragus complex,vitonax,Boswella complex, encinaccea premium, cranberry complex, chlorophyii complex I do not know waht nay of them some are just for [...]

My tretment with interferon after BCG failure

pilot78451@aol.com — Sun, 03 Dec 2006 12:04:58 +0100

� I would like to tell you all about a treatment I have finished. First a brief history of my case. Please forgive my spelling. I am a male 57 years old born and raised in Michigan. Never had a bad heath problem. I also work consruction and am conciderd very heathy. Some say like a man of mid 30. This is long and I think worth the read.

�On Feb 6, 2006 I was getting an exam (cisto)to see if I could undergo a treatment for BPH inlarged but not cancerise prostate. I did not have visab [...]

It's back, and so am I

dah111@verizon.net — Wed, 29 Nov 2006 15:37:22 +0100

Hi all. I was on this site, reading and posting, back in 2004, early 2005. I had my first experience with bladder cancer in June 2004.

Female, age 47 then (50 now)

Single 3 cm tumor, T1 (almost T2a, but dodged that bullet by a fortunate layer or two of cells), grade 2/3. TURBT on June 4, 2004 & quit smoking the night before surgery, haven't touched one since. Re-TURBed early July to be sure the muscle wall was not involved. No invasion of the muscle wall.

Be [...]

My Story

mildew@iinet.net.au — Sat, 11 Nov 2006 14:30:38 +0100

Hello fellow BC survivors

It has been some time since I last reported and there have been a few developments since my encouraging news in early August. It's all good news I am pleased to say.

In October I had another P&P which looked really good apart from a little inflamation within the bladder, which the Uro said was probably from the BCG I had back in March this year. I have just started a 3 week (once a week) maintenance BCG course and then I have to have my urine c [...]

Life w/ a Neo-Bladder

mikmckna1@comcast.net — Wed, 20 Sep 2006 08:22:15 +0100

I can only say that I wish I had found this site around 6/22/06. It�s wonderful to hear the stories of others and read through the forum links. BC is not well known so when I found out, I truly felt alone. Since everyone has their own tale and no two are alike, I thought I�d share mine with you. If it deems posting, I�d be happy to hear from anyone with any question.

I�m 45 yrs old and pretty active though smoking has always been a tough nut for me to crack. &n [...]

TaG3 - 6 of one, how much of the other?

jhs@bosporusconsulting.com — Sun, 10 Sep 2006 03:16:45 +0100

Hi Chris,

Thanks for checking in on me. I'll be going in for #5 of 6 on Monday. So far, no side-effects that I've noticed; no tiredness, feverishness, or anything. There's time yet for that, though. I know you'll be going in for your 2nd cytoscopy on Tuesday. I am reassured by your encouraging result at your first one in June. They say that the location and shape predicts recurrence, and the grade predicts progression. You and I both aren't in particularly good shape in either of thos [...]

TaG3 - 6 of one, how much of the other?

jhs@bosporusconsulting.com — Sun, 27 Aug 2006 15:14:42 +0100

Thought I'd clarify the reference to a "hood" that I made in my post about my first BCG installation on 14 August. I mentioned that the pharmacy had to prepare the medicine in the urology department because they didn't have the hood, and for some reason I had been left with the impression that the lack of a hood was preventing me from going to the pharmacy, picking up the BCG, and bringing it back up to the department myself, which is the usual procedure; I suspected it was some sort o [...]