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Bladder Cancer Treatment Guide for Patients.

Posted by: mmc in Tis - Carcinoma in situ: "flat tumor", TCC, Ta - Noninvasive papillary carcinoma, T4 - Tumor invades other organs, T3 - Tumor invades perivesical tissue, T2 - Tumor invades muscle, T1 - Tumor invades subepithelial connective tissue, T0 - No evidence of primary tumor, radical cystectomy, neobladder or pouch, Mitomycin, low grade, ileal conduit, high grade, cystoscopy, cystectomy, bladder cancer, BCG on Nov 04, 2009

I have created a flow chart for bladder cancer patients.  It can pretty much be used at any time from initial concern about the potential of having bladder cancer through various stages of treatment.

 My hope is that people will find this useful.  Rather than posting it everywhere and having to try to maintain version control on a number of sites, I am putting the link to ABLCS forum where I originally posted it.

I am not a doctor but I do have a good bit of experience as a bladder cancer patient.  This guide has been reviewed by a number of other bladder cancer survivors as well.

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My husband's reacted to 2nd BCG course. Fever Chills. What's next?

Posted by: NurseWife in Tis - Carcinoma in situ: "flat tumor", T0 - No evidence of primary tumor, sex, Mitomycin, caregivers, bladder cancer, BCG on Mar 27, 2009

Hello everyone,

 I am writing for my husband who was diagnosed with CIS baldder cancer last June (2008) and first wanted to thank all of you for your blogs and stories which helped us prepare for what was to come.

Long story short, my husband is 48 and like many of you had urinary urgency, blood in the urine and repeated trips to the doctor in 2007 & 2008. He has a strong family history of Prostate cancer so I, being a nurse, kept dragging him back.  Luckily our Nurse Practioner became suspicious and referred him to a urologist who took a "closer look" ( sorry for the pun).

His first Cysto in

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Superficial low grade (T0, grade 1)

Posted by: Frank Y in T0 - No evidence of primary tumor, low grade on Nov 09, 2004

Superficial low grade (T0, grade 1)

September, 2004
Noticed small spot of pink on underewar. Started paying attention to urine. Color is darker though not pink or red. Checked Web MD. Suspected UTI or bladder stone. Not worried.
9/21, 2004
Passed blood clots. Worried. Reported to family doctor. Dr. B wasted no time in ordering CT scans and x-rays of lower abdomen.
9/23/2004
Dr. B called with "good news". All major organs normal. Nothing life threatening. Spirits lifted. Dr. B refers me to urologist.
9/29/2004
Dr. H examined urine sample under microscope. Red blood cells present. No white blood

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superficial T0 and T1 bladder tumors.

Posted by: Chuck M in T1 - Tumor invades subepithelial connective tissue, T0 - No evidence of primary tumor on Dec 28, 2000

superficial T0 and T1 bladder tumors.

No family history; non-smoker; no occupational related causes that I know of.

Underwent 6 weeks of BCG treatment. Entered a clinical trial for Celecoxib to reduce recurrence. Tumors recurred four months later. Currently set for tumor resection and participating in an antibiotic drug study at Baylor College of Medicine at the Texas Medical Center in

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Two superficial tumors, one stage T0, one T1, + Ci

Posted by: Carole Smith in T1 - Tumor invades subepithelial connective tissue, T0 - No evidence of primary tumor on Feb 05, 2000

Two superficial tumors, one stage T0, one T1, + Cis, all grade II/III. Treated with BCG, then Mitomycin. Clean for the last year.

I was 56 years old at diagnosis in 1994. Had actually gone to the urologist to see if I could have a collagen procedure for incontinence. He did lots of tests including an IVP. He said he knew that I had BlCa because I had told him that my bladder "tingled" all the time. He discovered 3 tumors, 2 papillaries (the kind that look like a cluster of grapes) and 1 area of CIS (the "flat" tumor). I had a TURBT to remove that. After another laser surgery, because I still

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