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Hi, my Name is Wendy and I am 51 years old. In April and September 2010 I presented with gross hermaturia. Went to my GP (general practioner) and after a urine test she prescribed an antibiotic for a UTI. After 2 days on both occasions the bleeding stopped. Then in February 2011 it started again. My GP again tested for an infection, gave me an antibiotic. After 7 days the appearance of blood had not subsided and my GP referred me to a Urologist.

I went to see the urologist and he suggested that I be booked into hospital as he would need to perform a cystoscopy and wanted me to have an IVP

I have created a flow chart for bladder cancer patients.  It can pretty much be used at any time from initial concern about the potential of having bladder cancer through various stages of treatment.

 My hope is that people will find this useful.  Rather than posting it everywhere and having to try to maintain version control on a number of sites, I am putting the link to ABLCS forum where I originally posted it.

I am not a doctor but I do have a good bit of experience as a bladder cancer patient.  This guide has been reviewed by a number of other bladder cancer survivors as well.

I am a 43 year old male recently diagnosed with Transitional Cell Carcinmoa of the Renal Pelvis and Carcinoma in-situ of the upper ureter. I have just had the results of my first cystoscopy three months after my radical nephrectomy - they were clear. The surgery was on the 21st of April. Over the last five weeks, I have had adjuvant chemotherapy (carbo) and radiation treatment of the kidney bed to prevent seeding. I was wondering if anyone else has had a similar treatment and what your experiences of it are. In three months time, I will have to have a sonar of my kidney bed. I see that the 5

I had treatment number three yesterday. After holding my water for two plus hours, I voided and for the first time noticed some blood. There was a bit of blood each time I went until this morning.

I went to work and had my doubts about staying all day. I felt like Chuck Norris had kicked me repeatedly in the abdomen.  I was unable to bend or lift anything without a lot of grunting and heavy breathing. I took some buffered aspirin and it may have helped some. By noon I was pretty tired but I knew I could make it the rest of the day. I had a nice ride home on the Harley and I am now very glad to

I am 54 years old and my name is Earl (Big Earl). I have been cancer free for eight years but it is trying to make a comeback. I will be having my first BCG treatment tomorrow morning. I had six weeks of Doxorubicin eight years ago and we decided since then that if/when it came back we would do BCG. I am hoping it goes well. I had biopsies just three weeks ago as well as a retrograde pyelogram. The kidneys are clear though I evidently have damage due to diabetes. It looks like stage three chronic renal failure.  Oh well! It's always something,

 I am a 53 year old female. Very healthy and very fit. I was diagnosed with upper tract bladder cancer in late March 2007 and had a nephrouterectomy a few weeks later in mid-April 2007. The kidney mass was 6 cm, Grade III, with some spread into the adjacent uterter. I was "all-clear" until my one year check-up, when "spots" were discovered in my bladder. Since then I have had an office visit procedure at 15 months with a cysto/fulgration/electrocautery with two small tumors removed, and an outpatient surgery at 18 months with a cysto/fulgration/laser with two more apparently larger tumors


My name is Susan, i'm 50 yrs old.

6 months ago I had a Neurourectomy following that 6 wks ago I had my first Turb. The result of this was they removed another 17 tiny tumors.

Next wk I am starting a 6 week course of BCG. I have researched as much as the next person on my diagnosis but I have yet to meet anyone who has been diagnosed with something similar, and would appreciate any comments or advice as I am (to be brutally honest) absolutely terrified!



Posted by: nancynursez in TCC on

I have had superficial bladder cancer for 4 years, with one recurrence 18 months after diagnosis.  Now I have multiple areas of suspect and will undergo another turbt and mitomycin instillation.  I am not a candidate for bcg due to a suppressed immune system. 

 It appears to me that this will be an on going effort to control cancer through the quarterly Poke and Peeks, and then episodic resections and more mitomycin.  I don't think I understood this initially. 

My cancer was found early via a urine sample for something else.  Red cells were seen without any other symptoms.  So I was referred

26 years old with low grade t.c.c.

Posted by: Alyssa in TCClow grade on

I heaven't posted here in awhile so I decided to update my story.  In October of 2007 I found out that I was pregnant for the fourth time (oops)!  One of the first phone calls I made was to the urologist.  I was due for a scope in Dec but he felt we should wait until I was well into my second trimester.  I just had a cysto last week.  The procedure was uncomfortable as always.  Everything looked good Thank God!  I did experience a lot of cramping after the procedure.  He asked my obstetrician to do a UA at each appointment and decided not to scope me again unless there is hematuria for the

To read the most complete version of my story, please read Part 1 as well as this part, Part II.

Here, I am writing a continuation after CT scan has shown more lesions, growth in
at least one liver lesion, and a possible lesion in a new location (with follow-up
testing recommended.) This while receiving Genzar and Taxol. Also, yesterday I
had a turbt (and am at home, with a catheter.) I don't know the exact dimensions of the calsified tumor removed, but it was a lot smaller than the "softball" sized one removed last year.)

I write with a subjective description of my almost-a-year since diagnosis.

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