Blog Entries tagged 'TCC'

What Are My Treatment Options?

gjohnson@hga.com — Tue, 30 Sep 2008 01:00:00 +0100

I am a 53 year old female. Very healthy and very fit. I was diagnosed with upper tract bladder cancer in late March 2007 and had a nephrouterectomy a few weeks later in mid-April 2007. The kidney mass was 6 cm, Grade III, with some spread into the adjacent uterter. I was "all-clear" until my one year check-up, when "spots" were discovered in my bladder. Since then I have had an office visit procedure at 15 months with a cysto/fulgration/electrocautery [...]

TCC leading to Bladder Cancer... HELP!

susanairey@talktalk.net — Mon, 04 Aug 2008 01:00:00 +0100

Hi,

My name is Susan, i'm 50 yrs old.

6 months ago I had a Neurourectomy following that 6 wks ago I had my first Turb. The result of this was they removed another 17 tiny tumors.

Next wk I am starting a 6 week course of BCG. I have researched as much as the next person on my diagnosis but I have yet to meet anyone who has been diagnosed with something similar, and would appreciate any comments or advice as I am (to be brutally honest) absolutely terrified!

Thanx < [...]

RECCURENCES

nancynursez637@aol.com — Wed, 14 May 2008 01:00:00 +0100

I have had superficial bladder cancer for 4 years, with one recurrence 18 months after diagnosis. Now I have multiple areas of suspect and will undergo another turbt and mitomycin instillation. I am not a candidate for bcg due to a suppressed immune system.

It appears to me that this will be an on going effort to control cancer through the quarterly Poke and Peeks, and then episodic resections and more mitomycin. I don't think I understood this initial [...]

26 years old with low grade t.c.c.

daddyandchloe@yahoo.com — Thu, 07 Feb 2008 23:41:57 +0100

I heaven't posted here in awhile so I decided to update my story. In October of 2007 I found out that I was pregnant for the fourth time (oops)! One of the first phone calls I made was to the urologist. I was due for a scope in Dec but he felt we should wait until I was well into my second trimester. I just had a cysto last week. The procedure was uncomfortable as always. Everything looked good Thank God! I did experience a lot of cramping after the [...]

Susan - Delayed Diagnosis, Part II

rosssm@hotmail.com — Fri, 01 Feb 2008 13:26:02 +0100

To read the most complete version of my story, please read Part 1 as well as this part, Part II.

Here, I am writing a continuation after CT scan has shown more lesions, growth in
at least one liver lesion, and a possible lesion in a new location (with follow-up
testing recommended.) This while receiving Genzar and Taxol. Also, yesterday I
had a turbt (and am at home, with a catheter.) I don't know the exact dimensions of the calsified tumor removed, but it was a lo [...]

Susan - Delayed Diagnosis, Part II

rosssm@hotmail.com — Sat, 29 Dec 2007 13:41:36 +0100

In January 2007, the bleeding became continuous. I went to my present primary care doctor and was told that I should take antibiotics and see if it improved. I called back when the big clots started coming but was told (by a nurse) to just keep my regular appointment. I didn't get to that appointment because I had to go to the hospital with "frank bleeding." I got a referral to a urologist while hospitalized and had a tur after being transferred to a hospital repaired enough [...]

Warren's Story

wsilbers@optonline.net — Thu, 21 Jun 2007 01:00:00 +0100

Part III

When you learn that you have cancer, it changes you for ever. Every clean bill of health is a celebration, and an invitation to go back to living, but... waiting once more for the ticking time bomb, waiting for the other shoe to drop. And then, there are complications of treatment that never let you forget.
I thought that my bladder cancer was the worst thing that ever happened to me, but I was wrong. Two years ago, just after my mother's 83 birthday, s [...]

Warren's Story

wsilbers@optonline.net — Thu, 21 Jun 2007 01:00:00 +0100

Part II

I took my catheter out and prepared to enjoy my recovery with all my problems behind me. I had my first Christmas celebration with gifts and stockings since my daughter's boyfriend wasn't Jewish and the kids wanted to do it. Of course, we threw a little Hanukkah Gelt into the stockings to make it ecumenical. The hooks for the stockings are still screwed into the mantle. Then we went out to the movies. I almost drove us into some wrong way traffic - maybe s [...]

BC 12/29/03 - Deep Muscle Invasive TCC 1/15/04

rentanag@charter.net — Sun, 20 May 2007 01:00:00 +0100

I've just had my three year follow-up appointment (5/18/2007) with my surgeon, Dr. Rizk El-Galley, and everything is great. No evidence of disease on my ct scan or chest x-ray, and all my labs are normal. I've been taking vitamin B-12 injections since last August as my most recent blood levels had been low (May 2006), this is something all persons with a neobladder have to eventually deal with. However this is nothing to be alarmed about and is quite easy to manage by ones se [...]

26 years old with low grade t.c.c.

daddyandchloe@yahoo.com — Sat, 12 May 2007 13:10:26 +0100

I just had my one year all clear cysto yesterday! We are going to continue with a cysto every three months for the next year. The uro told me that I have about a 60% chance of reoccurance and less than a 20% chance that if the cancer comes back it would become invasive. For now everything looks good!

Alyssa

Superficial BC vs. Metastatic BC

osterhus52@hotmail.com — Tue, 03 Apr 2007 18:29:24 +0100

I got my initial path reports today from 2006, initial diagnosis.

This is what I would have to describe as "pathology whiplash".

That is where you go from Point A to Point Z too quickly for your body and mind to catch up with you.

As an epilogue to these pathologies, when I went for muscle biopsy at UNC in May 2006, my cancer was [i]"POOF[/i]" �[b]GONE[/b]. �I began BCG treatments in June 2006. �No recurrances.

When I was at Chapel [...]

26 years old with low grade t.c.c.

daddyandchloe@yahoo.com — Fri, 11 Aug 2006 12:59:26 +0100

Here is my story. �I first saw blood in my urine when I was 20. �I was treated for a UTI and the bleeding stopped. �I continued to get re-occurent bladder infections for the following five years. �I am not sure if I ever had infections now or not. �In April of '06 I had an ultrasound to measure the development of my baby who was measuring small. �I had to drink a lot of water to fill my bladder. �The ultrasound was extremely painful. �I went home and peed what looked like cranberry juice. �At al [...]

Low grade TCC

jwood108@msn.com — Mon, 07 Aug 2006 16:17:56 +0100

Well, I've been thru two of the BCG treatments so far and haven't had many issues. �Some pain while urinating and some general aches the following day, but nothing worse then a mild flu. �I did have some headaches after the first treatment, but I think that was from nerves about the whole thing. �The catheter for installing the BCG is no worse then getting a three month scope. �Four more to go, and hopefully those little tumors will be held at bay for a while.......:)

transitional cell carcinoma,age 30 yrs

shobarao@gmail.com — Thu, 03 Aug 2006 12:46:11 +0100

Update : 08/02/06

Had my 4-monthly poke and peek into the bladder, along with an MRI scan of my abdomen. No evidence of recurrence. This will make it 1.5 years into remission. :)

My Story

mildew@iinet.net.au — Thu, 08 Jun 2006 09:36:21 +0100

I returned to my Uro on 8 June for the results of the biopsies I had taken in mid May and I have to say the pathology report and the Uro interpretation has confused me even further. They both say the pathology is inconclusive and I have to have more biopsies taken under GA in about 6 weeks then more pathology. So the wait continues but I have learned you have to be patient with this beast. I had thought about getting a second opinion at this stage but I do have a good rapport and I trust my curr [...]

My Story

mildew@iinet.net.au — Mon, 22 May 2006 11:12:14 +0100

I am newly diagnosed with Bladder CA albeit low grade although I don't know much about the grading. I have learned heaps already by reading tales from the trenches and lots of background info on this site. I had bowel CA 10 years ago which was cured by surgery and chemo with no recurrences to date (touch wood). I have a gene mutation which predisposes me to bowel CA so hoping this does not reoccur. Every year I have a whole series of tests to make sure any recurrence is detected early and treate [...]

My long story on Noninvasive BC

alfe.duhamel@shaw.ca — Fri, 03 Mar 2006 19:16:43 +0100

am a new member of BC Web caf� and ACOR list�
My story: I am a 67-year-old male living in Canada. Approx. 5 or 6 years ago I started passing blood in my urine after strenuous exercise in hot weather while on vacation in Palm Springs. The blood went away after a couple of days. On my return home I reported this incident to my Doctor. He said it is probably Hematuria, which can occur from exercising in hot weather. The next year, same thing, blood for a cou [...]

Low grade TCC

jwood108@msn.com — Thu, 10 Nov 2005 13:26:20 +0100

6/28/06
My Poke-and-peeks have been clean for a year up until today. My Dr found five new tumors had develop. He started to zap them in his office, but it became quite uncomfortable so we have decided to do this in the hospital with me put under anestisia. After my bladder heals up for two weeks or so, I will be starting 6 weeks of BCG treatment. It's all a bit of a shock as I think my wife and I convinced ourselves that it would not come back, but we're ready to fac [...]

TCC Grade 3, CIS. Undergoing BCG with maintenance

timbayman@hotmail.com — Mon, 10 Oct 2005 14:00:33 +0100

"Currently undergoing BCG (Lamms protocol or a derivation of) for superficial high grade disease with CIS. Made dietary and lifestyle adjustments and hoping to delay a cystectomy for a few years. When I am undergoing treatment, obviously I have discomfort and the rest of the things that folks on this site have. I am 42 and was diagnosed 14 years ago with lower grade disease (grade 1-2). I've had many, many cystoscopies, a handful of IVPs, a cat scan, some mitomycin etc.I maintain my work an [...]

Papillary Transitional Cell Carcinoma, Grade 1, no

linda.monette@cna.com — Fri, 09 Sep 2005 13:16:59 +0100

Papillary Transitional Cell Carcinoma, Grade 1, non invasive

04/05 Treated w/ antibotic for first ever urine infection
6/01/05 Urine test shows no bacteria/no blood
6/15/05 Visible blood in the urine after a strenuous workout.
6/21/05 CT scan/cystocope - shows tumors on bladder
6/27/05 TURB performed, Dr. indicates tumors removed. I have low grade cancer, see him in 6 weeks for follow up cystoscope - pathology report states papillary tansitional cell carcinoma, gra [...]