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I'm going for biopsy # 3 tomorrow.

The doc called tonight to see if I were jittery or had any questions.

I asked him if he would be giving me the mitomycin if he didn't see anything in there, and at first he asked me if I wanted him to give it (?) but before I could answer, he said, "that's a good question." and then he started talking and said "only if there were residual", but if he didn't see anything, then "no" he wouldn't give it...

I asked if he were going to do a quick path on the specimen, and he said "no"
because you get a better grade of specimen without the quick freeze...

So, I will

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I had my 3 month cystoscopy this afternoon.  The doc said, "Your bladder looks great"  

He also did a MP22 (???) analysis of my urine and he warned  that sometimes it gives false positives (so beware), but if it's negative, then negative means negative.

It was negative.

He wants to do a biopsy next week (#3) in order to document the histological response to BCG's....I said how do they document a response....he said it's by what they don't see...

He also said, "keep doing what you're doing" .  I haven't really told him my personal protocol, but if he asks I will tell him...

Good news

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My name is Linda and it has been 5 years since my diagnosis of bladder cancer at age 47. After a continuous urinary infection that would not go away and several trips to the doctor a scope of my bladder showed that I had a very large malignant tumor.  I had 6 months of chemotherpy(strong chemo as I had a very rare type of small cell carcinoma) prior to surgery Where they removed my bladder, and also my tubes and ovaries. I had no uterus due to a prior surgery. I then had 4 more months of chemotherapy. I am now down to yearly catscans. I feel very fortunate to overcome this with fantastic

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(26 July 2006 continued)

He also asked me if I had felt any pain recently on my right side. This, because he couldn't see the orifice for the right ureter. He called in another doctor for his opinion, and he also asked me about the pain on my right side. I haven't had any, so they suspect the path of the urine from the kidney is not obstructed, but the view of the ureter orifice is obscured by something, perhaps related to healing from the 2nd TUR. This second doctor also concurred that the formations at the resection site could be nothing, but were suspicious and needed to be looked at more

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[size=14][font=Serif]Hi I’m just new to this site I was looking around for info on bladder cancer because 2 months ago we found out my dad had it and he is going in for surgery tomorrow at 12:00pm. We are all really scared because they are removing the whole bladder and prostate and what ever else they have to. He is not a candidate for a neo bladder because he is a paraplegic I just pray that he will do ok and I wanted to say thank to everyone who has told there story it's made this scary and hard time a little easier for my family. So if everyone could just say pray for him at noon tomorrow

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I've posted bits and pieces of "My Story" around the story board, but am home today after a colonoscopy, which went pretty well, so I thought I would add my story here, as it is sometimes interesting to discuss variables about our disease and treatment amongst ourselves...

First off, I believe that I've had this disease a while.  About 8 yrs ago, my toilet was full of blood....I went to Doc who sent me to Uro who catherized me and said, "It's not your bladder"

So, when I went for yearly pap this past December, my Gyno said, "You have blood in your urine, I'm sending you to Uro", I said, "I've

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I appreciate your reply...

6 Months Old?????

You took the words right out of my Doctor's mouth!!!

Had a BCG today, and the doc and I had a long talk.  He said, "These are just the cards you are dealt"...

Thank you so much for your reply....

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I found out I had grade 4, stage 3 bladder cancer 6 weeks ago. All the urologists wanted to remove the bladder, prostrate, etc. I am a fairly young man (58), and I was not content with that path of treatment. Something in my gut gold me there must be a better way. I got a second opinion from one of the leading universities (UCSF). This was not easy because the insurance company didn’t really want to pay for it. I found out that the new trend, if at all possible, is to preserve the organ, though only the oncologist are the ones who seem to truly believe in this.

Here is some advice I would give

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:oI was just wondering who else out there is very low risk for having ever even gotten this cancer...(BUT HAVE IT ANYWAY).


I mean how low risk can you get...

Female
Non smoking
Never worked around textiles or cleaning agents..
Don't even eat meat (especially not cured meat)
54 years old.

I  have two aunts.  One is 90 and she still smokes a pack a day.  SHE doesn't have bladder cancer.

My other aunt owned a cleaner's for 50 years.  She passed recentlyat 86,  but NOT of bladder cancer.

Is anyone else baffled by this?  My Doc doesn't even want to discuss it... it's like..."You got it, now let's deal

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I found this web forum which I think its a great place where to share our concerns about bladder cancer. We are both argentines, living in Argentina. My husband, Carlos, now 57, was diagnosed with bc five years ago, very low grade and superficial (excuse my english). After many recurances and resecctions we are still fighting this battle. He was under BCG instilations but with no success except that it didnt change the pathology. After the last TUR his urologist recomended to change to Mytomicin. He had his check up done today and it came out with only three very little tumors, which were

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