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I just had my cystoscopy on the 11th April.  I was delayed - they found my Blood Pressure was too high and so that was treated.  

It looks like good news.  A very small area which was was cut out and cauterized and then the magic words - "the rest of the bladder looks fine, taken biopsies which I expect will mean we can downgrade the CIS".

The full story is on my blog and the trauma leading up to the operation, the anger at being delayed and how I used Hypnotherapy to control my life long aversion to hospitals and doctors.

I don't see myself as free of this at all and I will continue my blog to

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Thank you all for your kind responses, and thank you in particular Wendy for your thoughtful reply and for refering me to that article regarding low grade bladder cancer (I have put it on 'my favorites' for continued reading).

I often think that all these sectionings (4), BCG regiments (2) Interferon regiments (1) and laser treatments (2), as well as  the countless cystoscopys and biopsies I received did little more than stir up the situation , and sometimes I wish I had just left well enough alone.  But it is interesting to see that there is considerable medical opinion agreeing somewhat with

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Nov. 2001 -  Polyps was the diagnosis, 2 small ones.  laser treatment
Nov. 2004 - superficial bladder cancer - laser treatment - followed by BCG regiment # 1
2005 - 2006 - recurring superficial cancer - 3 sectionings performed by Urological surgeon, BCG regiment # 2, and Interferon regiment #1.
Oct. 2006 - 4th sectioning begun and terminated (too much cancer in bladder) - I agree (reluctantly) to Cystectomy.
Nov. 2006 - Urologist decides against  surgery (sees abnormaility in lymphs) refers me to Oncologist for Chemotherapy.
Dec. 2006 - Begin heavy Chemotherapy   ( 9 hour sessions), three drugs

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Okay, here is some detective work.  This is an excellent site on interpreting Bladder Biopsies...

http://www.cap.org/apps/docs/annual_meeting/presentations/2004/monday/AP110_Urinary_Bladder_Biopsy_Interpretation_Part_3.pdf

[quote] Occasionally,carcinomas are associated with a pronounced chronic inflammatory cell infiltrate,
which partially or substantially obscures the underlying tumor cells[/quote]

c.[quote] Frankly invasive carcinoma
1. Variants containing or exhibiting
(a) Deceptively benign features
• Nested pattern (resembling von Brunn’s nests)
• Small tubular pattern
• Microcystic pattern
•

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I got my initial path reports today from 2006, initial diagnosis.

This is what I would have to describe as "pathology whiplash".

That is where you go from Point A to Point Z too quickly for your body and mind to catch up with you.

As an epilogue to these pathologies, when I went for muscle biopsy at UNC in May 2006, my cancer was [i]"POOF[/i]"  [b]GONE[/b].  I began BCG treatments in June 2006.  No recurrances.

When I was at Chapel Hill in May for biopsy, I was told that there were two muscle biopsies performed by my Doctor that day for T1 G3 bladder cancer.  The other guy wasn't as "lucky".  He

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im new on this site and reading all the stories, i have to say theres a lot of people out there living with the same thing i am. at first when i found out that i had this cancer i wasnt scared i wasnt really anything. i think i was more upset that i had to miss work so much i had a new car and no way to pay the payments or anything really. but thats when my community came in to help they did fund raisers for me, my work payed my car off. i mean they help me in a way no one has or ever will. but anyway no i really didnt have any feelings about it. i got kinda worried after i had surgery and

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hi im new to this whole thing dont really know how this site works. im just needing to talk to someone about how they delt with cancer im only 17. and i think it may be a little diffrent just to be 17 my doc told me i was the youngest hes ever

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I asked my Doc today about these photos.  I tried to describe them and I told him about the rashy looking photos and the one that looked like a big WART.   He doesn't have a lot of humor.  But he is a good doctor.  He said, "Bladder Cancer is a tumor.  And, it looks like a tumor."

That's the best that I can do at this point.

Very best,

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Hello Joe and thank you for your reply.  I am glad you like the blog, I try to show as much as I can about what I am going through and hope that someone looks at it and realises that the emotions and the day-to-day are (I hope) normal and that you can get on with your life. It is the little disruptions that take some getting used to.

When I had the first operation which was only a few days after diagnosis it was graded as G3P T1 + CIS.  after the second operation with a re-resection it was CIS and I had 6 weeks BCG.  I go back in for biopsies in a little under 2 weeks time.   I am hoping for

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Hello all my name is Klynn, my husband John has recurring bladder cancer, in 2004 he had a total cysectomy. He has a neobladder he did well with the surgury, had leak 2 weeks post surgury that caused a sisk to form blocking his bowel and had to have a 2nd surgury to reroute the bowel, after a month in the hospital he came home. He rebounded well and was back to work in 5 months living a happy almost normal life.   Fast forward to January of 2006..wakes up New Years morning with blood in his urine. we make an appointment with urologist and they treat him for a UTI. This goes on for 3 months,

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