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I'm new to the Bladder Cancer WebCafe but I have been reading many blogs and infromation from it since my diagnosis in March 2011. A great site!

I'm a 52 year old female in great health and very active. I had been diagnosed with Ta Grade 1 and  immediately started BCG. After the second biopsy the result was the same. The first biopsy the doctor had taken from 2 areas, the second biopsy from three areas. The malignancy showed up in one new area of the three. As soon as I could, I started the second treatment of BCG. 

This last biopsy had 4 areas removed. One area showed a malignancy but this one


Muscle invasive TCC grade II-III/III with CIS T2N0M0

I was diagnosed with muscle invasive TCC in February 1995 after seeing a small amount of blood in my urine. I was 45 years old at the time. My urologist referred me to a Dr. Sagalowsky at the University of Texas Southwest Medical Center in Dallas, Texas. After several tests and additional biopsies we decided to do a RC with neobladder construction. My surgery was on 4/7/1995 and the final report was T2N0M0 grade II-III/III TCC. Recovery went well and I was back at work in 60 days after returning home. My neobladder has been very good and at


I am writing to ask for help. My husband had a radical cystectomy in June 2010 (prostrate and urethra also removed) for muscle-invasive bladder cancer. He was in the hospital for 33 days for ileus (digestive system shutdown), and in August started 5 months of cisplatin-gemzar chemotherapy, which ended on Dec 8th. Does anyone have experiences with nausea lasting this long after chemo has ended? He has 1 or max 2 good days a week, when he's not even aware of his stomach. The rest of the time he is miserable. He is not actually vomiting, but very nauseated with sweaty palms and no

I'm a 47-year old female (non-smoker) who was diagnosed with bladder cancer in March 2010.  My pathology showed high grade papillary urothelial carcinoma with superficial invasion into the lamina propria.  I've gotten 3 opinions and my options are BCG therapy or cystectomy (neobladder).  I'm afraid to do the BCG therapy because of the the low cure rate and high return rate.  I know the cystectomy has a higher cure rate, but has a high rate of complications.  Does anyone have any advice for me?  I have 2 teenagers that need their

I have created a flow chart for bladder cancer patients.  It can pretty much be used at any time from initial concern about the potential of having bladder cancer through various stages of treatment.

 My hope is that people will find this useful.  Rather than posting it everywhere and having to try to maintain version control on a number of sites, I am putting the link to ABLCS forum where I originally posted it.

I am not a doctor but I do have a good bit of experience as a bladder cancer patient.  This guide has been reviewed by a number of other bladder cancer survivors as well.


Hello everyone - My mom who's 48 yrs. old was diagnosed with Urinary Bladder Cancer last Friday. We found out that the tumors have invaded the bladder wall and was told by our urologist that my mom's bladder will have to be removed. Since then she has been referred by our Urologist to another Urologist in UCLA who specializes in performing Neobladder surgery. After speaking with this specialist, my mother was give 2 options: 1) to perform chemo and radiation therapy, since the tumors were all contained in the bladder, and try to shrink the tumors to a size where it's possible to be removed.


Hi my name is Sharon I was dignosied with Bladder Cancer Dec 2003 finally after a year of going to Dr,s whom seem to think I was crazy. I went thru 2 BCG treatments and it seem to go into remission then in Jan of 2008 came back this time with a vegance. The Dr had me to another round of BCG and it didn't seem to help, so now he has passed me on the another Dr .

So I guess my questions is the new Dr has scheduled me to have my bladder replaced with the Neo-Bladder and gave me this web site to look at. My surgery is scheduled for Sept 4th. After reading the blogs my worry is I don't see where


Hello, my name is Charlotte I am 38 and have two children 12 and 8 years old. I used to worry about my husband getting lung cancer since both his father and grandfather died at an early age from it. We both quite smoking cigarets 11 years ago. He still has an occasional cigar.

March 15, 2008 saw blood in my urine and made an appointment with doctor for next day. For the next month they treated me for UTI and Kidney stones.

April 16, 2008 now having dark red urine. Had a complete physical and was told I was healthy and was told to hang in there the stone would soon pass. I demanded to


In January 2007, the bleeding became continuous. I went to my present primary care doctor and was told that I should take antibiotics and see if it improved. I called back when the big clots started coming but was told (by a nurse) to just keep my regular appointment. I didn't get to that appointment because I had to go to the hospital with "frank bleeding."  I got a referral to a urologist while hospitalized and had a tur after being transferred to a hospital repaired enough to do it. Pathology: Stage 3 high grade tcc with sarcomatoid features. Some tumor remained after tur. The tumor has

Susan - delayed diagnosis
A volunteer at my church helped me find WebCafe and its forum. My bladder cancer has spread to my liver and lungs, maybe a bone. i was supposed to have a radical cystectomy this month (Dec. '07), but we cancelled it after the MRIi report. Now, I'm getting chemotherapy (taxol and genzar). MVAC didn't work for me. Radiation did shrink my primary tumor.

I am told my case is "difficult" because of the late stage of discovery/tur/diagnosis (Stage 3, fat invasive) the sarcomatoid variant, and now the spreading. I know it is difficult -- I just want to be seen as important

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