Blog Entries tagged 'cystoscopy'

Bladder Cancer Treatment Guide for Patients.

mike_mcgarry@hotmail.com — Wed, 04 Nov 2009 01:00:00 +0100

I have created a flow chart for bladder cancer patients. It can pretty much be used at any time from initial concern about the potential of having bladder cancer through various stages of treatment.

My hope is that people will find this useful. Rather than posting it everywhere and having to try to maintain version control on a number of sites, I am putting the link to ABLCS forum where I originally posted it.

I am not a doctor but I do have a good bit of experie [...]

Latest scope - 10/13/09

dougg01@yahoo.com — Wed, 14 Oct 2009 01:00:00 +0100

No abnormal cells detected. Doc said everything inside looked good. We opted to start BCG maintenance in 6 weeks and every 6 months after that till we determine it's not needed.

It's amazing how I've gotten used to the procedure. Only thing that bothers me now is the injection of the numbing jell. When the scope gets close to the prostate I take a deep breath and slowly let it out and I barely feel it. That's a FAR cry from how it felt [...]

Scar tissue in urethra after neobladder surgery

pkleman@uwsp.edu — Sun, 02 Aug 2009 01:00:00 +0100

My husband had neobladder surgery June 15. All was going well until an infection July 16. He was admitted back to the hospital for 4 days, he still had the malacot tube. He was voiding on schedule (only 20 to 50 cc from the tube after voiding normally) and didn't seem to have a problem. When he had the infection they told him to use the bag for the first week to keep the bladder as empty as possible and restart voiding normally and finish emptying with the mala [...]

In the midst of so much bad news - I have some good....

dougg01@yahoo.com — Thu, 16 Jul 2009 01:00:00 +0100

Had my 1st scope post-turb and BCG. Clear. ;-)

Still waiting on labs from the wash, but there is no new growth. Mine was aggressive and good-sized so we weren't too sure about it.

So....3 months and we'll do it again.

Weird thing....it wasn't bad. Took longer than the initial, but on that one he saw the tumor right away and there was no point in looking around much. I might be getting used to this. Wow....of all thi [...]

Wow....is it just me or does it seem like there is a LOT of BC now.

dougg01@yahoo.com — Mon, 13 Jul 2009 01:00:00 +0100

Seems to be this stuff is on the rise. Also....I see that it doesn't seem to be as much of an 'older person's' or 'smoker's' disease.

BC still doesn't garner much national attention and there are no specific drives for cure, awareness events, or otherwise.

The more I read accounts and new postings....the more I am convinced the incidence of this is higher and higher. This is supported by the comment from my urologist during m [...]

BCG - Week 4....not what I'd expected.

dougg01@yahoo.com — Thu, 26 Mar 2009 01:00:00 +0100

So, last week (that'd be #3) sucked big time. So I expected the same or worse this week.

Nope. Catheter was about like week #2 and side effects are (so far) on par with that week as well. No blood. Haven't passed much of anything (some light tissue) in over a week.

My urologist will be off next week for a much-needed vacation with his family (spring break) so a partner of his will take care of this for me next week. I plan to ask a [...]

What Not To Do

cribplayerusa@hotmail.com — Tue, 24 Mar 2009 01:00:00 +0100

Where to start? 2004-2005

Periodic slight bleeding and soreness of the lower abdominal region started just a couple of months after hurricanes Charley, Francis and Jean blew over our home here in central Florida. Although we suffered minimal wind damage the rain came in around the windows as if we had left them open. This started the refurnishing and remodeling project and contributed to my delaying seeing a doctor. Prior to this I had not seen a doctor in some thirty od [...]

Newbie. NUG. Whatever you want to call me....

dougg01@yahoo.com — Tue, 17 Feb 2009 01:00:00 +0100

Fall 2008 GP perscribes 81mg asprin after physical due to slightly elevated triglycerides, not requiring medication. December 2008, 41yr-old male,otherwise healthy non-smoker, notices hematuria and seeks cause. CT scan shows nothing. Scheduled for IVP followed by Cystoscopy on Jan 8th after visit with Urologist.

Jan 5th. Mother flown to UW @ Madison after collapsing at home. Mother was diagnosed with bladder cancer in 2005, has had TUR [...]

Immediate Opinions needed on which treatment to use...

anery21@gmail.com — Wed, 11 Feb 2009 01:00:00 +0100

Hello everyone - My mom who's 48 yrs. old was diagnosed with Urinary Bladder Cancer last Friday. We found out that the tumors have invaded the bladder wall and was told by our urologist that my mom's bladder will have to be removed. Since then she has been referred by our Urologist to another Urologist in UCLA who specializes in performing Neobladder surgery. After speaking with this specialist, my mother was give 2 options: 1) to perform chemo and radiation therapy, since the tu [...]

TCC leading to Bladder Cancer... HELP!

susanairey@talktalk.net — Mon, 04 Aug 2008 01:00:00 +0100

Hi,

My name is Susan, i'm 50 yrs old.

6 months ago I had a Neurourectomy following that 6 wks ago I had my first Turb. The result of this was they removed another 17 tiny tumors.

Next wk I am starting a 6 week course of BCG. I have researched as much as the next person on my diagnosis but I have yet to meet anyone who has been diagnosed with something similar, and would appreciate any comments or advice as I am (to be brutally honest) absolutely terrified!

Thanx < [...]

My Story

mildew@spin.net.au — Mon, 03 Mar 2008 01:00:00 +0100

Just dropped in for an update. Had another cystoscopy performed in February and all is well with no signs of recurrence. Next check 12 months. I trust everyone is making progress with their disease and is on the improve.

Married my daughter off on Friday and what a proud father I am.

On the downside my 80yo father in law has just been diagnosed with lung cancer with multiple secondaries and the prognosis is grim.

Susan - Delayed Diagnosis, Part II

rosssm@hotmail.com — Tue, 29 Jan 2008 16:20:55 +0100

01-29-08 Results of recent CT Scans

I talked to my nurse on the phone, not so good a way to get results. I think I'll call back and ask to pick up a copy of the report today. I did hear that my largest liver lesion had grown from 4.0 to 4.9 CM since November. And it sounds as if I have more lung nodules than before. I am confused about what to do now. My urologist wants to do cystoscopy on TH and I am also scheduled to see my medical oncologist that day. One thing has to b [...]

Warren's Story

wsilbers@optonline.net — Thu, 21 Jun 2007 01:00:00 +0100

Part IV

My urologist returned in January. He was unaware of what had happened until I spoke to him. His response was that he was not concerned about the stricture. "The important thing was to be sure that there was no cancer." I fully understood his focus on the cancer but was unhappy that that focus appeared to be distracting him from dealing with a problem that made me miserable and which I wanted to be sure would not recur. I answered, "I'm glad you& [...]

Warren's Story

wsilbers@optonline.net — Thu, 21 Jun 2007 01:00:00 +0100

Part III

When you learn that you have cancer, it changes you for ever. Every clean bill of health is a celebration, and an invitation to go back to living, but... waiting once more for the ticking time bomb, waiting for the other shoe to drop. And then, there are complications of treatment that never let you forget.
I thought that my bladder cancer was the worst thing that ever happened to me, but I was wrong. Two years ago, just after my mother's 83 birthday, s [...]

Warren's Story

wsilbers@optonline.net — Thu, 21 Jun 2007 01:00:00 +0100

Part II

I took my catheter out and prepared to enjoy my recovery with all my problems behind me. I had my first Christmas celebration with gifts and stockings since my daughter's boyfriend wasn't Jewish and the kids wanted to do it. Of course, we threw a little Hanukkah Gelt into the stockings to make it ecumenical. The hooks for the stockings are still screwed into the mantle. Then we went out to the movies. I almost drove us into some wrong way traffic - maybe s [...]

Warren's Story

wsilbers@optonline.net — Thu, 21 Jun 2007 01:00:00 +0100

Part I

My story begins 8 years before I had bladder cancer. I started having annoying symptoms: needing to urinate more frequently and having these twinges that felt like when you gotta go, but only lasting a second. I'm a pediatrician, not especially knowledgeable about bladder cancer since it's just not seen in kids... and even now, after having had bladder cancer, from reading the posts on this forum it's quite clear there are lots of f [...]

[m]: post-operative after cystoscopy

timbayman@hotmail.com — Sun, 25 Feb 2007 13:48:30 +0100

[moved] [link=http://blcforum.com/cgi-bin/forum/YaBB.pl?num=1172401658/0]Invasive bladder cancer - Cystectomy [/link] [move by] Tim B.

My Story

mildew@spin.net.au — Tue, 20 Feb 2007 08:27:50 +0100

:-[ A little anxious again this way. I had a Cystoscopy yesterday and even I could see the inflamation that was on the bladder wall. Uro is hopeful it is just the effects of the BCG maintenance I had before Christmas. Has scheduled another Cystoscopy and bladder biopsy for 7 March so I will cross my fingers until then. This is something I hadn't expected and don't need right now as I am going through a bit of sh*t with my employer at the moment. It's all a bit stressful but I am trying to remai [...]

Hi All

briancampbell133@googlemail.com — Sun, 14 Jan 2007 19:19:50 +0100

I was diagnosed with Papillary Carcinoma (G1pTa) in June of Last year.

I have undergone a TURBT at the Western General Hospital in Edinburgh. A 1 cm tumour was removed, and a one off installation of Mitomycin-C was given. As I was catheterised, I spent 1 night in hospital, and was released the next morning. I then spent a long, long week awaiting my pathology results. My consultant being a very cautious man sent me for an IVU. Fortunately that showed no involvement with my kidneys or [...]

Story so far

claire.caulfield@btinternet.com — Mon, 02 Oct 2006 10:47:14 +0100

I hope this helps someone.
I am 41.
In May I thought I had my first ever dose of cystitis I congratulated myself on never having it before and being a pharmaceutical rep instead of going to my Gp or pharmacy for treatment pinched samples from a fellow rep to treat it.It didnt work and two weeks later I went to my Gp by now I was pretty uncomfortable with symptoms of retention and bladder fullness.He gave me antibiotics and sent me away.
This seemed to work we went on holiday disc [...]