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Hi,

My name is Susan, i'm 50 yrs old.

6 months ago I had a Neurourectomy following that 6 wks ago I had my first Turb. The result of this was they removed another 17 tiny tumors.

Next wk I am starting a 6 week course of BCG. I have researched as much as the next person on my diagnosis but I have yet to meet anyone who has been diagnosed with something similar, and would appreciate any comments or advice as I am (to be brutally honest) absolutely terrified!

Thanx

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Hello all -- My husband and I went to see my medical oncologist today.
As I gathered from reading the CT scan report, there appears to be many
lesions in my liver and nodules in my lungs. One of each are pathologcial
size. Due to some issues with comparability with past imaging, it is hard
to see if my disease is basically stable or progressing. The Dr. said
that it is quite a bit of disease, though, and concurred with my going
for a consultation over at M.D. Anderson in Houston and he is setting
that up. Neither of the two chemotherapy regimens I've had shrunk the
bladder tumor or mets (MVAC

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Hi All,
Thought I would update you all on the latest news on my Dad. On Monday he went in to have cysto, biopsy & what ever else they were planning on doing, after the op they called mum into the recovery to tell her that it was invasive & had spread to the muscle & they will wait on path results, but in his experiance if it is indeed what he thinks, dad will have to have his bladder removed. The cancer in the urita is low down towards the bladder, so I am not sure what will happen with the kidney that they thought he would loose????
He is hoping to come out of hospital today & will need to go

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Hi All,
I am new to this forum, my father was first diagnosed some 15 years ago with bladder cancer, he had had some symptoms 19 months previous to this diagnosis & had tests done, doc said things were fine, when he seen a different doc (for work check up) 18 months later & mentioned that he had had the symptoms 18 months previous, his new doc asked did he see a specailist? He said NO. So new doc sent him of to specialist. The specialist viewed the scans taken 19 months previously & could not believe he was 99.9% sure he waslooking at a bladder tumor & they had even circled it. So hence he was

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Hello all my name is Klynn, my husband John has recurring bladder cancer, in 2004 he had a total cysectomy. He has a neobladder he did well with the surgury, had leak 2 weeks post surgury that caused a sisk to form blocking his bowel and had to have a 2nd surgury to reroute the bowel, after a month in the hospital he came home. He rebounded well and was back to work in 5 months living a happy almost normal life.   Fast forward to January of 2006..wakes up New Years morning with blood in his urine. we make an appointment with urologist and they treat him for a UTI. This goes on for 3 months,

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I was diagnosed with Papillary Carcinoma (G1pTa) in June of Last year.

I have undergone a TURBT at the Western General Hospital in Edinburgh. A 1 cm tumour was removed, and a one off installation of Mitomycin-C was given. As I was catheterised, I spent 1 night in hospital, and was released the next morning. I then spent a long, long week awaiting my pathology results. My consultant being a very cautious man sent me for an IVU. Fortunately that showed no involvement with my kidneys or ureters.

So far my check cystoscopies have been clear-long may they continue.

I consider myself to be very lucky.

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I can only say that I wish I had found this site around 6/22/06.  It’s wonderful to hear the stories of others and read through the forum links.  BC is not well known so when I found out, I truly felt alone.  Since everyone has their own tale and no two are alike, I thought I’d share mine with you.  If it deems posting, I’d be happy to hear from anyone with any question.

I’m 45 yrs old and pretty active though smoking has always been a tough nut for me to crack.  I did quit for 2 years at one point but since I had been on and off using nicotine lozenges to help out.  Any way, June of ’06 I

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(26 July 2006 continued)

He also asked me if I had felt any pain recently on my right side. This, because he couldn't see the orifice for the right ureter. He called in another doctor for his opinion, and he also asked me about the pain on my right side. I haven't had any, so they suspect the path of the urine from the kidney is not obstructed, but the view of the ureter orifice is obscured by something, perhaps related to healing from the 2nd TUR. This second doctor also concurred that the formations at the resection site could be nothing, but were suspicious and needed to be looked at more

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Hi Chris,

Thanks for the good wishes. I actually wound up in the hospital today. Woke up w/persistent pain in the lower abdomen. Felt nauseous a few times, and finally got sick after about 3 hours. By this time, I figured I had gotten food poisoning from eating out last night, but decided to go in anyway to make sure there was nothing connected with the BC and nothing that would complicate tomorrow's scheduled TUR.

Diagnosis was food poisoning, but no diarrhea, so, according to my uro, no problem with the surgery as long as that remained the case (which it did). The urine test showed higher

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i don't think they can do anything about the reflux... i'm guessin they're doin all they can at the moment. as i said, their main concern is my overall kidney function, which at present is, although not 100%, quite good. Do u get renal colic at all? i had 2 huuuge stones when i was 12, surgically removed but now I seem to get pain every 3 or 4 mnths (which i'm self-diagnosing as renal colic, admittedly) but don't mention it to the dr's as i'm not sure they'd be able to do anything anyway. Plus, it's just pain, it doesn't usually involve temperature or nausea or anything. Still, it's bl*&^y

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