Member Blogs

i don't think they can do anything about the reflux... i'm guessin they're doin all they can at the moment. as i said, their main concern is my overall kidney function, which at present is, although not 100%, quite good. Do u get renal colic at all? i had 2 huuuge stones when i was 12, surgically removed but now I seem to get pain every 3 or 4 mnths (which i'm self-diagnosing as renal colic, admittedly) but don't mention it to the dr's as i'm not sure they'd be able to do anything anyway. Plus, it's just pain, it doesn't usually involve temperature or nausea or anything. Still, it's bl*&^y

Comment (1) Read More...

Hello everyone.

I thought it might be time to start recording here my experiences with this disease, before too much time goes by, and so I have as fresh and accurate a baseline as possible to come back to, myself, for reference.

I served 21 years in the USMC, retired to San Diego where my wife completed her doctorate in clinical psychology, and then we moved to our current home in Istanbul, Turkey, where she was born. I lived a life of clean habits and pure thoughts characteristic of the typical US Marine infantryman, with the exception that I smoked cigarettes - heavily. Probably 2-3

Comment (0) Read More...

hi again,
my dr's are actually really good. especially my nephrologist. my urologists seem to be of the opinion that until i get cancer or my kidneys pack up, they'll stick with the usm. my kidney doc has recently said i'll prob need a transplant at some point in the next 20 yrs - long time off, but i'd still only be in my 40's by then. if that happened, i don't think they'd give me another usm cos the exact same thing cld happen again to the new kidney.
ur so lucky to have so few complications with ur usm. how long have u had it for? was it offered to u alongside the other more common

Comment (1) Read More...

hi again
i'm on sodium bicarb too - i take 4g a day though, 8 capsules. i'm also on hypertension medication and prophyactic antibiotics. was on trimethoprim for yrs and now switch monthly btwn nitrofurantoin and co-amoxiclav as am resistant to trimethoprim now. i'm have a kidney ultra sound in 3 wks time, last one was 6 wks ago, lots of dilation and scarring.
do u get much reflux? r u often tired? do u get twinges and aches and pains

Comment (0) Read More...

Hi thanks for your response... are you on any medication at all? What is your kidney function like?  Sorry, it's just I've never met anyone with a USM before!

Comment (2) Read More...

Hi to everyone in the forum, this is my first post but hopefully will become a diary of my journey through the diagnostic procedures which at the moment point towards my problems maybe being cancer related.

I'm a 28 year old male from England, I already have a pacemaker for heart problems so I am very used to hospitals and diagnostic procedure, that being said I still find myself being scared.

I went to see my doctor a few months back with chronic UTI, after a number of antibiotic courses the problems continued.  My doctor sent a urine sample to cytology and informed me the results showed

Comment (0) Read More...

Hello
I was just wondering if there is anyone out there in the same position as me... I had a complete cystectomy aged 6 months and had USM done, then redone when I was 3 yrs old. I had chemotherapy but not radiotherapy.
I have never had a problem with malignancies and am about 90% continent. I have had a partial nephrectomy though (aged 12), kidney stones, and have lost count of the number of UTI's I've had. Usually hospitalised annually due to pylenophritis but overall kidney function is pretty good considering.
Anyway, my main worry is this threat of colo-rectal cancer. I'm having the

Comment (1) Read More...

Ta/Stage I/low risk-lower right posterior, next to ureter.
Kev's 45, non-smoker, dairy farmer.  Spent lots of years dealing with chems on a golf course.  
-------------------------
News Update:  As of mid-December - Kev passed his first 3 months poke&peek.  They did some testing on kidneys because of suspect pain - but nothing to worry about right now.  will just have to keep monitoring it.  Next appt is March 1 or 3rd 2006.

Plus we are new grandparents - child #4 - preemie - but healthy!!!! :D :P

KEV's Story:
---------------------------------
Late July 2005, Kev had significant blood in the urine &

Comment (0) Read More...

CIS Superfical Stage 2

Today I have joined the List of Bladder Cancer Cafe Members , after having e-mailed for advice from Wendy Sheridan and was greatly enlightened by her as she answered my questions graciously and profoundly !

Wendy suggested that I join this forum to learn and share information about the Cancer battles that are being fought and to share a little info about myself !

My name is Cliff , 54 years of age,. married , I have 3 children ( 2 girls and a boy ) all grown up and married ! My youngest daughter was just married on May the 15th this year !

My wife and I live in Winnipeg

Comment (0) Read More...

CIS

Hi Im Bob ima 49 year old man usually very healthy, have to say i did smoke about 30 a day till i was told i have bladder cancer.
I started in mid Feb this year i passes blood in my urine lots i would have to say, i went within a few days to the doc who sent me to see a uroligist did test looked up inside my bladder nothing! so was happy, untill that is i got a call from his office saying that they found abnormal cells in a urine test i did when i had the cysto done.
I then went to see him and he said i have malignant cells in my urine shedding from somewhere! ok i said now what, he then

Comment (0) Read More...