Blog Entries tagged 'kidney'

What Are My Treatment Options?

gjohnson@hga.com — Tue, 30 Sep 2008 01:00:00 +0100

I am a 53 year old female. Very healthy and very fit. I was diagnosed with upper tract bladder cancer in late March 2007 and had a nephrouterectomy a few weeks later in mid-April 2007. The kidney mass was 6 cm, Grade III, with some spread into the adjacent uterter. I was "all-clear" until my one year check-up, when "spots" were discovered in my bladder. Since then I have had an office visit procedure at 15 months with a cysto/fulgration/electrocautery [...]

TCC leading to Bladder Cancer... HELP!

susanairey@talktalk.net — Mon, 04 Aug 2008 01:00:00 +0100

Hi,

My name is Susan, i'm 50 yrs old.

6 months ago I had a Neurourectomy following that 6 wks ago I had my first Turb. The result of this was they removed another 17 tiny tumors.

Next wk I am starting a 6 week course of BCG. I have researched as much as the next person on my diagnosis but I have yet to meet anyone who has been diagnosed with something similar, and would appreciate any comments or advice as I am (to be brutally honest) absolutely terrified!

Thanx < [...]

Susan - Delayed Diagnosis, Part II

rosssm@hotmail.com — Thu, 07 Feb 2008 17:59:46 +0100

Hello all -- My husband and I went to see my medical oncologist today.
As I gathered from reading the CT scan report, there appears to be many
lesions in my liver and nodules in my lungs. One of each are pathologcial
size. Due to some issues with comparability with past imaging, it is hard
to see if my disease is basically stable or progressing. The Dr. said
that it is quite a bit of disease, though, and concurred with my going
for a consultation over at M.D. An [...]

fathers long journey UPDATE 15th Aug

noteabulldogs@hotmail.com — Tue, 14 Aug 2007 21:37:46 +0100

Hi All,
Thought I would update you all on the latest news on my Dad. On Monday he went in to have cysto, biopsy & what ever else they were planning on doing, after the op they called mum into the recovery to tell her that it was invasive & had spread to the muscle & they will wait on path results, but in his experiance if it is indeed what he thinks, dad will have to have his bladder removed. The cancer in the urita is low down towards the bladder, so I am not sure what will hap [...]

fathers long journey

noteabulldogs@hotmail.com — Fri, 20 Jul 2007 08:56:34 +0100

Hi All,
I am new to this forum, my father was first diagnosed some 15 years ago with bladder cancer, he had had some symptoms 19 months previous to this diagnosis & had tests done, doc said things were fine, when he seen a different doc (for work check up) 18 months later & mentioned that he had had the symptoms 18 months previous, his new doc asked did he see a specailist? He said NO. So new doc sent him of to specialist. The specialist viewed the scans taken 19 months previously & [...]

let me introduce myself

justme72759@aol.com — Sun, 28 Jan 2007 01:38:28 +0100

Hello all my name is Klynn, my husband John has recurring bladder cancer, in 2004 he had a total cysectomy. He has a neobladder he did well with the surgury, had leak 2 weeks post surgury that caused a sisk to form blocking his bowel and had to have a 2nd surgury to reroute the bowel, after a month in the hospital he came home. He rebounded well and was back to work in 5 months living a happy almost normal life. � Fast forward to January of 2006..wakes up New Years morning with blood in his urin [...]

Hi All

briancampbell133@googlemail.com — Sun, 14 Jan 2007 19:19:50 +0100

I was diagnosed with Papillary Carcinoma (G1pTa) in June of Last year.

I have undergone a TURBT at the Western General Hospital in Edinburgh. A 1 cm tumour was removed, and a one off installation of Mitomycin-C was given. As I was catheterised, I spent 1 night in hospital, and was released the next morning. I then spent a long, long week awaiting my pathology results. My consultant being a very cautious man sent me for an IVU. Fortunately that showed no involvement with my kidneys or [...]

Life w/ a Neo-Bladder

mikmckna1@comcast.net — Wed, 20 Sep 2006 08:22:15 +0100

I can only say that I wish I had found this site around 6/22/06. It�s wonderful to hear the stories of others and read through the forum links. BC is not well known so when I found out, I truly felt alone. Since everyone has their own tale and no two are alike, I thought I�d share mine with you. If it deems posting, I�d be happy to hear from anyone with any question.

I�m 45 yrs old and pretty active though smoking has always been a tough nut for me to crack. &n [...]

TaG3 - 6 of one, how much of the other?

jhs@bosporusconsulting.com — Thu, 27 Jul 2006 00:12:08 +0100

(26 July 2006 continued)

He also asked me if I had felt any pain recently on my right side. This, because he couldn't see the orifice for the right ureter. He called in another doctor for his opinion, and he also asked me about the pain on my right side. I haven't had any, so they suspect the path of the urine from the kidney is not obstructed, but the view of the ureter orifice is obscured by something, perhaps related to healing from the 2nd TUR. This second doctor also concurred t [...]

TaG3 - 6 of one, how much of the other?

jhs@bosporusconsulting.com — Tue, 11 Jul 2006 14:49:13 +0100

Hi Chris,

Thanks for the good wishes. I actually wound up in the hospital today. Woke up w/persistent pain in the lower abdomen. Felt nauseous a few times, and finally got sick after about 3 hours. By this time, I figured I had gotten food poisoning from eating out last night, but decided to go in anyway to make sure there was nothing connected with the BC and nothing that would complicate tomorrow's scheduled TUR.

Diagnosis was food poisoning, but no diarrhea, so, accordin [...]

ureterosigmoidostomy (USM)

ali.poole@hotmail.com — Tue, 04 Jul 2006 16:39:24 +0100

i don't think they can do anything about the reflux... i'm guessin they're doin all they can at the moment. as i said, their main concern is my overall kidney function, which at present is, although not 100%, quite good. Do u get renal colic at all? i had 2 huuuge stones when i was 12, surgically removed but now I seem to get pain every 3 or 4 mnths (which i'm self-diagnosing as renal colic, admittedly) but don't mention it to the dr's as i'm not sure they'd be able to do anything anyway. Plus, [...]

TaG3 - 6 of one, how much of the other?

jhs@bosporusconsulting.com — Sun, 02 Jul 2006 05:40:44 +0100

Hello everyone.

I thought it might be time to start recording here my experiences with this disease, before too much time goes by, and so I have as fresh and accurate a baseline as possible to come back to, myself, for reference.

I served 21 years in the USMC, retired to San Diego where my wife completed her doctorate in clinical psychology, and then we moved to our current home in Istanbul, Turkey, where she was born. I lived a life of clean habits and pure thoughts charac [...]

ureterosigmoidostomy (USM)

ali.poole@hotmail.com — Wed, 28 Jun 2006 14:00:02 +0100

hi again,
my dr's are actually really good. especially my nephrologist. my urologists seem to be of the opinion that until i get cancer or my kidneys pack up, they'll stick with the usm. my kidney doc has recently said i'll prob need a transplant at some point in the next 20 yrs - long time off, but i'd still only be in my 40's by then. if that happened, i don't think they'd give me another usm cos the exact same thing cld happen again to the new kidney.
ur so lucky to have so few com [...]

ureterosigmoidostomy (USM)

ali.poole@hotmail.com — Tue, 27 Jun 2006 15:14:30 +0100

hi again
i'm on sodium bicarb too - i take 4g a day though, 8 capsules. i'm also on hypertension medication and prophyactic antibiotics. was on trimethoprim for yrs and now switch monthly btwn nitrofurantoin and co-amoxiclav as am resistant to trimethoprim now. i'm have a kidney ultra sound in 3 wks time, last one was 6 wks ago, lots of dilation and scarring.
do u get much reflux? r u often tired? do u get twinges and aches and pains frequently?

ureterosigmoidostomy (USM)

ali.poole@hotmail.com — Mon, 26 Jun 2006 15:29:42 +0100

Hi thanks for your response... are you on any medication at all? What is your kidney function like? Sorry, it's just I've never met anyone with a USM before! :)

waiting to hear

alex_facey@hotmail.com — Sat, 24 Jun 2006 20:09:48 +0100

Hi to everyone in the forum, this is my first post but hopefully will become a diary of my journey through the diagnostic procedures which at the moment point towards my problems maybe being cancer related.

I'm a 28 year old male from England, I already have a pacemaker for heart problems so I am very used to hospitals and diagnostic procedure, that being said I still find myself being scared.

I went to see my doctor a few months back with chronic UTI, after a number of ant [...]

ureterosigmoidostomy (USM)

ali.poole@hotmail.com — Fri, 16 Jun 2006 18:24:19 +0100

Hello
I was just wondering if there is anyone out there in the same position as me... I had a complete cystectomy aged 6 months and had USM done, then redone when I was 3 yrs old. I had chemotherapy but not radiotherapy.
I have never had a problem with malignancies and am about 90% continent. I have had a partial nephrectomy though (aged 12), kidney stones, and have lost count of the number of UTI's I've had. Usually hospitalised annually due to pylenophritis but overall kidney functio [...]

Ta/Stage I/low risk-lower right posterior, next to

fahlgree@maqs.net — Fri, 26 Aug 2005 23:55:19 +0100

Ta/Stage I/low risk-lower right posterior, next to ureter.
Kev's 45, non-smoker, dairy farmer. �Spent lots of years dealing with chems on a golf course. �
-------------------------
News Update: �As of mid-December - Kev passed his first 3 months poke&peek. �They did some testing on kidneys because of suspect pain - but nothing to worry about right now. �will just have to keep monitoring it. �Next appt is March 1 or 3rd 2006.

Plus we are new grandparents - child #4 - [...]

CIS Superfical Stage 2

cjdawe@shaw.ca — Mon, 07 Jun 2004 01:42:41 +0100

CIS Superfical Stage 2

Today I have joined the List of Bladder Cancer Cafe Members , after having e-mailed for advice from Wendy Sheridan and was greatly enlightened by her as she answered my questions graciously and profoundly !

Wendy suggested that I join this forum to learn and share information about the Cancer battles that are being fought and to share a little info about myself !

My name is Cliff , 54 years of age,. married , I have 3 children ( 2 girls a [...]

CIS

middletom98@msn.com — Fri, 28 May 2004 15:26:11 +0100

CIS

Hi Im Bob ima 49 year old man usually very healthy, have to say i did smoke about 30 a day till i was told i have bladder cancer.
I started in mid Feb this year i passes blood in my urine lots i would have to say, i went within a few days to the doc who sent me to see a uroligist did test looked up inside my bladder nothing! so was happy, untill that is i got a call from his office saying that they found abnormal cells in a urine test i did when i had the cysto done.
I t [...]

Blog Entries tagged 'kidney'

What Are My Treatment Options?

TCC leading to Bladder Cancer... HELP!

Susan - Delayed Diagnosis, Part II

fathers long journey *UPDATE 15th Aug*

fathers long journey

let me introduce myself

Hi All

Life w/ a Neo-Bladder

TaG3 - 6 of one, how much of the other?

TaG3 - 6 of one, how much of the other?

ureterosigmoidostomy (USM)

TaG3 - 6 of one, how much of the other?

ureterosigmoidostomy (USM)

ureterosigmoidostomy (USM)

ureterosigmoidostomy (USM)

waiting to hear

ureterosigmoidostomy (USM)

Ta/Stage I/low risk-lower right posterior, next to

CIS Superfical Stage 2

CIS

fathers long journey UPDATE 15th Aug