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Superficial low grade (T0, grade 1)

September, 2004
Noticed small spot of pink on underewar. Started paying attention to urine. Color is darker though not pink or red. Checked Web MD. Suspected UTI or bladder stone. Not worried.
9/21, 2004
Passed blood clots. Worried. Reported to family doctor. Dr. B wasted no time in ordering CT scans and x-rays of lower abdomen.
9/23/2004
Dr. B called with "good news". All major organs normal. Nothing life threatening. Spirits lifted. Dr. B refers me to urologist.
9/29/2004
Dr. H examined urine sample under microscope. Red blood cells present. No white blood

superficial papillomas(2), low grade

Posted by: Joe in low grade on

superficial papillomas(2), low grade

This is Joe's daughter, Marie; I'm writing his story as an encouragement to all, and am writing it myself ONLY because he is 97 years old, and his vision is not good due to macular degeneration. He is alive and well, seven years after his initial diagnosis!

In March of 1995, he had the classic hematuria symptom, and went to a urologist immediately for a consultation. Cystoscopy revealed two small papillomae, both cleanly excised. At the time, Joe was three months short of his 90th birthday. He stuck with the usual follow-up schedule of

Low grade Noninvasive 4cm+ Papillary Tumor

Diagnosed with TCC in August of 2000 after 3 episodes of hematuria over 9 months. Complained to primary doctor who waited until 3rd episode to order IVP. 4 cm mass removed. Reoccurrence about size of 2 matchheads removed in Dec of 2000 Jan/Feb of 2001 6 wks of BCG. No maintenance.

Cystoscopies every three months for last two years were clear. Since the two year mark has been reached I moved to 6 month cystos.

June 9, 2003 first 6 month cysto clear. December 8, 2003 Cysto clear. June 7, 2004 cysto clear. That makes 3 1/2 years of all clear. Next

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