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Hello,

I'm looking for anyone with experience of having pudendal neuralgia after RC with neobladder?  My father had his RC with Neo in 2006 and about 6 months after that surgery began to have severe burning issues in the urethra (not when urinating).  This triggered the uro to run test to determine possible cause.  In some instances he did have infection but everything else was fine (emptying completely, no leaking, etc).  He was advised to irrigate....but no change.  Many tests later, various prescriptions, etc......still severe burning, more frequently and also including the rectum/anus area

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Been a whole since I updated here.  I'm now 42 (41 when for Turb) and always been a non-smoker.  Had surgery Jan 22, 2009.  Ran through 6 weeks of BCG.
Started maintenance BCG in November.  We're going to do that every 6 months (or 3 months after every scope for two years then re-evaluate).  My tumor was classed as large, aggressive and high-grade.

About to do my last quarterly scope today.  We'll go to every six months after that.

 So far its been clean.

 Issues:

The scope has become a non-event.  I get a bit worked up before-hand, but the procedure is nothing to me.  I know when to relax, take

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Hello! I'm new to this blog but not new to this disease.  My dad, 77, had an RC in August 2007 and a good candidate for a Neobladder.  His cancer was a T2 that had not gone beyond the muscle into other areas.  The surgery was a success and he recovered nicely after his stay of almost 2 weeks in ICU.  His home care was good too and soon he was pretty continent during the day with only small accidents during the night (this is because he refuses to use a pad or depends out of pure stubborness and male ego)!  He was NOT instructed to continue the self-cath after about 3 months when his test

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So, we know this cancer can be highly-survivable in most instances if it's detected early enough and quality treatment is followed.  The problem is many folks don't even know it exists.  Many folks ignore or don't get the symptoms checked out.  Some balk at the treatment options.  I don't think this is any less deadly and the statistics speak for themselves.

 

So, why is there not a Bladder Cancer Week or Bladder cancer Awareness week...?  I've looked and can't find anything.

 

Let me know

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Thankyou all for your positive comments, we have been so happy with the results, & hope that now he can keep the cancer at bay & enjoy the rest of his life,
Thanks once again, you guys on here have been a blessing,
regards,

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Dad had r/c on the 2nd of april, Operation went really well, it took a bit longer than they orig said as they decided to also take the urethra or water pipe as Dr put it, he also had to have his left urita cut down further as the cancer had advanced into it.
So he had bladder, prostate, urethra, lymp nodes (not sure how many) & a large section of left urita taken out, which they cut & sent of to path whilst he was under, news came came back still cancer, cut again, sent off, still cancer, cut more sent off, clear.
Dad seemed to recover quite well, apart from some blood pressure issues & being

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I had my 8.5 hour surgery on January 2nd, 2008.  Long story short: wound up with staph at incision after surgery, rehospitalized, basically lost 2 weeks of Kegel training time. However, when trying, urine and mucus constantly leaked AROUND Foley anyway, Doctor & nurses too busy for me, still practicing Kegel at home,to no avail.
I've been to almost every story board for women and BC NeoBladder and I know it takes time but I don't EVER GET a "full" or "gaseous" or "feel wind" or "bloated" or "uncomfortable" as the need arises to urinate.  I NEVER feel the urge - 5 minutes or 2 hours. but every

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One year ago today, I had a 75 gram bladder tumor resected. The diagnosis was apparently tricky and I saw terms such as sarcoma, sarcomatoid variant and carcinosarcoma on various reports.

I asked the urologist “Is it survivable.” He looked down and didn’t say a word –
Not the “no” I was dreading nor the “yes” I wanted to hear. Then he said I should go to a major cancer center for treatment and I got the impression that meant a r/c.

Since then, I have had chemotherapy with six different drugs and no objective response to any of them. [The literature I have read suggests that sarcomatoid

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Well, since last I posted to this part of the forum, a lot has happened, actually --less to do with my treatment (though there is news there, too) than with reasons to live "beyond expectations."

I do have an appointment set up with a metastatic bladder cancer specialist at MD Anderson for March. In the mean time, I'm trying to get caught up with non-cancer medical issues, teeth, blood pressure, etc. I continue to feel well, generally,
but it is hard not to panic everytime I have what could be just a little "normal" ailment. For example, I felt "bone tired" yesterday morning and was afraid I'd

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Hello all -- My husband and I went to see my medical oncologist today.
As I gathered from reading the CT scan report, there appears to be many
lesions in my liver and nodules in my lungs. One of each are pathologcial
size. Due to some issues with comparability with past imaging, it is hard
to see if my disease is basically stable or progressing. The Dr. said
that it is quite a bit of disease, though, and concurred with my going
for a consultation over at M.D. Anderson in Houston and he is setting
that up. Neither of the two chemotherapy regimens I've had shrunk the
bladder tumor or mets (MVAC

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