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fathers long journey

Posted by: cathy in mens issues on

Thankyou all for your positive comments, we have been so happy with the results, & hope that now he can keep the cancer at bay & enjoy the rest of his life,
Thanks once again, you guys on here have been a blessing,
regards,

Dad had r/c on the 2nd of april, Operation went really well, it took a bit longer than they orig said as they decided to also take the urethra or water pipe as Dr put it, he also had to have his left urita cut down further as the cancer had advanced into it.
So he had bladder, prostate, urethra, lymp nodes (not sure how many) & a large section of left urita taken out, which they cut & sent of to path whilst he was under, news came came back still cancer, cut again, sent off, still cancer, cut more sent off, clear.
Dad seemed to recover quite well, apart from some blood pressure issues & being

I had my 8.5 hour surgery on January 2nd, 2008.  Long story short: wound up with staph at incision after surgery, rehospitalized, basically lost 2 weeks of Kegel training time. However, when trying, urine and mucus constantly leaked AROUND Foley anyway, Doctor & nurses too busy for me, still practicing Kegel at home,to no avail.
I've been to almost every story board for women and BC NeoBladder and I know it takes time but I don't EVER GET a "full" or "gaseous" or "feel wind" or "bloated" or "uncomfortable" as the need arises to urinate.  I NEVER feel the urge - 5 minutes or 2 hours. but every

One year ago today, I had a 75 gram bladder tumor resected. The diagnosis was apparently tricky and I saw terms such as sarcoma, sarcomatoid variant and carcinosarcoma on various reports.

I asked the urologist “Is it survivable.” He looked down and didn’t say a word –
Not the “no” I was dreading nor the “yes” I wanted to hear. Then he said I should go to a major cancer center for treatment and I got the impression that meant a r/c.

Since then, I have had chemotherapy with six different drugs and no objective response to any of them. [The literature I have read suggests that sarcomatoid

Well, since last I posted to this part of the forum, a lot has happened, actually --less to do with my treatment (though there is news there, too) than with reasons to live "beyond expectations."

I do have an appointment set up with a metastatic bladder cancer specialist at MD Anderson for March. In the mean time, I'm trying to get caught up with non-cancer medical issues, teeth, blood pressure, etc. I continue to feel well, generally,
but it is hard not to panic everytime I have what could be just a little "normal" ailment. For example, I felt "bone tired" yesterday morning and was afraid I'd

Hello all -- My husband and I went to see my medical oncologist today.
As I gathered from reading the CT scan report, there appears to be many
lesions in my liver and nodules in my lungs. One of each are pathologcial
size. Due to some issues with comparability with past imaging, it is hard
to see if my disease is basically stable or progressing. The Dr. said
that it is quite a bit of disease, though, and concurred with my going
for a consultation over at M.D. Anderson in Houston and he is setting
that up. Neither of the two chemotherapy regimens I've had shrunk the
bladder tumor or mets (MVAC

fathers long journey

Posted by: cathy in mens issuesbladder cancerBCG on

UPDATE:

Sorry I havent been around for awhile.

Ok, Dad finished his BCG back in Nov & was to wait 6 to 8 weeks for cysto & bi-op. Well this was preformed yesterday & guess what?  ::)more tumor,  ::)now waiting on path results & ct scans. They said that it would be more than likely that they will go ahead with r/c, sooner rather than later, feeling a bit low right now, :'( I said to Dad, At least there will be know looking back saying "what if" they had tried this "what if" they had done that. Been there done that & after living with Bladder cancer for 17 or 18 years & having many, many tests,

43 Diagnosed with a TA Grade 2

Posted by: Todd in mens issues on

01/29/2008 Had my 4 month Cysto, No Visible tumors or Polyps. Dr said saw some redness that he took a sample of.  Have a Post Appointment in 2 weeks, will update

To read the most complete version of my story, please read Part 1 as well as this part, Part II.

Here, I am writing a continuation after CT scan has shown more lesions, growth in
at least one liver lesion, and a possible lesion in a new location (with follow-up
testing recommended.) This while receiving Genzar and Taxol. Also, yesterday I
had a turbt (and am at home, with a catheter.) I don't know the exact dimensions of the calsified tumor removed, but it was a lot smaller than the "softball" sized one removed last year.)

I write with a subjective description of my almost-a-year since diagnosis.


01-29-08  Results of recent CT Scans

I talked to my nurse on the phone, not so good a way to get results. I think I'll call back and ask to pick up a copy of the report today. I did hear that my largest liver lesion had grown from 4.0 to 4.9 CM since November. And it sounds as if I have more lung nodules than before. I am confused about what to do now. My urologist wants to do cystoscopy on TH and I am also scheduled to see my medical oncologist that day. One thing has to be deferred -- but which I don't know. I do want to know what impact the CT scan results will have on my treatment

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