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In January 2007, the bleeding became continuous. I went to my present primary care doctor and was told that I should take antibiotics and see if it improved. I called back when the big clots started coming but was told (by a nurse) to just keep my regular appointment. I didn't get to that appointment because I had to go to the hospital with "frank bleeding."  I got a referral to a urologist while hospitalized and had a tur after being transferred to a hospital repaired enough to do it. Pathology: Stage 3 high grade tcc with sarcomatoid features. Some tumor remained after tur. The tumor has

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Susan - delayed diagnosis
A volunteer at my church helped me find WebCafe and its forum. My bladder cancer has spread to my liver and lungs, maybe a bone. i was supposed to have a radical cystectomy this month (Dec. '07), but we cancelled it after the MRIi report. Now, I'm getting chemotherapy (taxol and genzar). MVAC didn't work for me. Radiation did shrink my primary tumor.

I am told my case is "difficult" because of the late stage of discovery/tur/diagnosis (Stage 3, fat invasive) the sarcomatoid variant, and now the spreading. I know it is difficult -- I just want to be seen as important

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Hello Everyone,

I rarely post on this site but I read many of the posts.  I'd like to share some good news.  My husband was diagnosed with bladder cancer in November 2005.  He's had many rounds of BCG and is now on maintenance BCG.  His scopes are every 3 months for 3 years.  His last scope was Oct. 25th and his bladder was clean.  It's been 2 years since his diagnosis and his bladder has been clean since the surgery (Dec. 2005).  I just wanted to share some positive and great news!

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Dad started his first 6 BCG treatments on Tuesday, so we will see what the next couple of months brings, they stated that they will monitor him closely & any sign that the treatment is not working, they will do R/c, I hope they know what they are doing.

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It's been almost one year since I added to this post so I decided I would continue the story here.  First off, I have had several 3 scans since surgery and so far so good!

In other posts I talk about hypercontinence or the in-ability to urinate.  This is one of those issues that a few will encounter and of course... I had to be one.  Following surgery I was doing OK training myself to void and hold but I also experienced several UTI's (urinary tract infections).  These were horrible because you feel miserable for a few days and sweat with fever the whole time.  Finally my Uro asked me to cath

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9/24/2007 Well its been four months or so and I go in for my next procesdure tomorrow. Wish me luck. I will update in the next couple of days.
9/25/2007 I had a 12:45 pm procedure. Some Good news! The Doc said I did not have any polyps or Tumors.  I have a Post Op appointment in Three Weeks. 

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Well, 1/3 of the scheduled chemo treatment is over. We were told that my husband's CBC was fine, so he had his quick treatment of Gemzar.  He is still very tired, but no nausea or vomiting. Around the injection site is very sore/painful. Much worse that last week. Anyone else had this

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were do I begin, Mum & Dad made the 3 hour journey on Monday so that dad could begin the bowel prep on Tue, Fasting from Mon night, he began the bowel prep on tue, tue came & went, up early and of to the hospital for a 7am start. My sister & I got on the road around 4am & arrived just after 7am, he hadnt gone anywhere yet so we were able to see him before he went in. They called him in & both mum & he went in. Whilst in the bed waiting the anathesist came in & said, so your in for your bi-op, mum said know I think its a little more serious than that, he said no your in for a bi-op. He then

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The fatigue is setting in. Each day since the chemo has become a little worse. Luckily, still no nausea and the burping has about stopped (think it must have been from the Emend.) I'm anxious to see how his blood work will be on

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I'm not sure if there is the proper place to post this, but here goes.

My husband had his first session of chemotherapy yesterday 9-13-07. Cisplatin and Gemzar. Other than the long day, everything went fine. So far, the only side effect we know of is burping. Nothing excessive, just a little. There is no heartburn or nausea associated with it. He does think he is beginning to feel a little tired. I hope to use this thread to document everything. Next Thursday will be a short day with just Gemzar. He has Emend (3 days following chemo), Zofran (4 or more days following chemo), Dexamethasone (I

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