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Hi All

Posted by: Bawa in Mitomycinmens issueskidneycystoscopy on

I was diagnosed with Papillary Carcinoma (G1pTa) in June of Last year.

I have undergone a TURBT at the Western General Hospital in Edinburgh. A 1 cm tumour was removed, and a one off installation of Mitomycin-C was given. As I was catheterised, I spent 1 night in hospital, and was released the next morning. I then spent a long, long week awaiting my pathology results. My consultant being a very cautious man sent me for an IVU. Fortunately that showed no involvement with my kidneys or ureters.

So far my check cystoscopies have been clear-long may they continue.

I consider myself to be very lucky.

Hi everyone,
My husband, age 70, had the bladder, prostate, and lymph nodes removed on Dec. 7th.  The neo-bladder seems to be working well. The surgery (almost 7 hrs.) was successful and after 9 days in the hospital he came home.  He has had awful pain in the tops of his legs and says it is deep in the muscles.  I don't know if this is from not moving enough after the surgery (it was difficult getting him to walk due to the pain he was in) or if it's from using the leg muscles for almost all movements:  getting up/ down, getting in/out of bed, etc..  I attributed all of this to anxiety at

Story so far

Posted by: clur in mens issues on

Well Chemotherapy is over !!!!!!!!!!!!
Its good and bad.I was supposed to have 6 cycles but was so ill last week after the first treatment of cycle five I had a much reduced second dose and they have discontinued therapy.It really is a relief I had to have my doctor or the nurse out every day last week to have anti nausea shots a saline drip and blood transfusions.I am one huge bruise my feet are covered in blisters which I cant feel because I have no sensation in my feet or fingers and still cant keep anything down.
I cant wait to feel 'normal' again but am worried that they really wanted to

Story so far

Posted by: clur in mens issues on

Hope everyone had a great Christmas and New Year.
Just a quick update really.
We had a fantastic time full of family and friends food sparkly lights etc everything Christmas should be.
I am feeling pretty good after my extra week off chemo but start again this afternoon blood counts allowing.It at least gives me hope that I will recover quickly at the end only four weeks to go !
I have managed to put 3lbs on over Christmas which it seems weird to be pleased about everyone else is moaning about weight gain.Santa bought me some fantastic pressies loads of perfume,lovely jewelry a lovely cashmere

Hello everyone, and thank you again for your encouraging words and for sharing your own stories.

I had my post TURBT consult yesterday to go over the pathology report. Surprisingly decent results:

1 - The tumor, my doc said, was quite small and papillary, and there was no CIS.
2 - The tumor was Ta again - noninvasive.
3 - The grade of the cancer was G1, which surprised me. But the doc said it was, moreover, at the low range even of that.
4 - The doc said that, all in all, this instance can be considered to not be a meaningful recurrence.

He, as a result, has put me on the standard 3-month

Story so far

Posted by: clur in mens issues on

Gosh I dont feel like an inspiration or any of the lovely kind things you say.I am just a very scared Mummy
who wants her children to have a normal childhood.I try to keep happy and balanced through this mad time for them and some days I dont know wether I am on my hands or my feet.
  They are all that matters I have to try and stay well we have had carol concerts nativity plays parties and so far I have managed them all sometimes witha sick bag but I have made it being a mother is a wonderful thing.Archie is 3 and a half and has no concept of whats going on he goes to nursery and pre school

Story so far

Posted by: clur in mens issues on

13/12
Yippee
No more hospital visists chemotherapy or anything until next year !!!
Rough Badger and Arse describe exactley how I feel at the moment but with three weeks off hopefully I will  
be well for Christmas and New Year.The symptom list is long and boring and a few more seem to join it with each cycle but there are only two left to go by Valentines day it all will be done.
I think I am more excited about Christmas than the children this year.All the presents are bought and wrapped,cards posted, there is just the food shopping and preparation to go.I have an internet order in for most of the

Thank you all for your expressions of concern and encouragement.

I had my TURBT on Thursday. Will know the results at the follow-up consult when we get the pathology report. My doc also administered Mitomycin during the procedure.

Earlier in the week, during the pre-op consult, we discussed the implications of this recurrence. He said that if it turned out to be T1 (he is in the camp that considers T1 to be invasive) we'd have to begin consideration of bladder removal. If it remains Ta, then we can look at BCG maintenance therapy, given the particulars of my history with this disease.

I showed

Sorry it is Tuna omega.

 I can give you the names of the products but I might sugest you see a herbilis docter. I think the people taht sel it might require this. And I again am not saying this is what did it for me. I had a lot of people suporting me and I beleave in God as a higher power. This is it brand name Medi-herb  tuna omega, shatake ganoderma, astragus complex,vitonax,Boswella complex, encinaccea premium, cranberry complex, chlorophyii complex  I do not know waht nay of them some are just for good health and amune system streth. I want to say i am not recomending this to anyone it is waht I did, I want to

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