Blog Entries tagged 'mens issues'

fathers long journey

noteabulldogs@hotmail.com — Mon, 14 Apr 2008 20:33:46 +0100

Thankyou all for your positive comments, we have been so happy with the results, & hope that now he can keep the cancer at bay & enjoy the rest of his life,
Thanks once again, you guys on here have been a blessing,
regards,
Cathy

fathers long journey

noteabulldogs@hotmail.com — Mon, 14 Apr 2008 00:26:04 +0100

Dad had r/c on the 2nd of april, Operation went really well, it took a bit longer than they orig said as they decided to also take the urethra or water pipe as Dr put it, he also had to have his left urita cut down further as the cancer had advanced into it.
So he had bladder, prostate, urethra, lymp nodes (not sure how many) & a large section of left urita taken out, which they cut & sent of to path whilst he was under, news came came back still cancer, cut again, sent off, still [...]

Female RC & NeoBladder Incontinence...still

jenim1@hotmail.com — Thu, 06 Mar 2008 16:32:31 +0100

I had my 8.5 hour surgery on January 2nd, 2008. Long story short: wound up with staph at incision after surgery, rehospitalized, basically lost 2 weeks of Kegel training time. However, when trying, urine and mucus constantly leaked AROUND Foley anyway, Doctor & nurses too busy for me, still practicing Kegel at home,to no avail.
I've been to almost every story board for women and BC NeoBladder and I know it takes time but I don't EVER GET a "full" or "gaseo [...]

Susan - Delayed Diagnosis, Part II

rosssm@hotmail.com — Wed, 27 Feb 2008 23:10:46 +0100

One year ago today, I had a 75 gram bladder tumor resected. The diagnosis was apparently tricky and I saw terms such as sarcoma, sarcomatoid variant and carcinosarcoma on various reports.

I asked the urologist �Is it survivable.� He looked down and didn�t say a word �
Not the �no� I was dreading nor the �yes� I wanted to hear. Then he said I should go to a major cancer center for treatment and I got the impression that meant a r/c.

Since then, I have had chemotherapy [...]

Susan - Delayed Diagnosis, Part II

rosssm@hotmail.com — Tue, 19 Feb 2008 17:32:35 +0100

Well, since last I posted to this part of the forum, a lot has happened, actually --less to do with my treatment (though there is news there, too) than with reasons to live "beyond expectations."

I do have an appointment set up with a metastatic bladder cancer specialist at MD Anderson for March. In the mean time, I'm trying to get caught up with non-cancer medical issues, teeth, blood pressure, etc. I continue to feel well, generally,
but it is hard not to panic [...]

Susan - Delayed Diagnosis, Part II

rosssm@hotmail.com — Thu, 07 Feb 2008 17:59:46 +0100

Hello all -- My husband and I went to see my medical oncologist today.
As I gathered from reading the CT scan report, there appears to be many
lesions in my liver and nodules in my lungs. One of each are pathologcial
size. Due to some issues with comparability with past imaging, it is hard
to see if my disease is basically stable or progressing. The Dr. said
that it is quite a bit of disease, though, and concurred with my going
for a consultation over at M.D. An [...]

fathers long journey

noteabulldogs@hotmail.com — Wed, 06 Feb 2008 23:07:06 +0100

UPDATE:

Sorry I havent been around for awhile.

Ok, Dad finished his BCG back in Nov & was to wait 6 to 8 weeks for cysto & bi-op. Well this was preformed yesterday & guess what? ::)more tumor, ::)now waiting on path results & ct scans. They said that it would be more than likely that they will go ahead with r/c, sooner rather than later, feeling a bit low right now, :'( I said to Dad, At least there will be know looking back saying "wha [...]

43 Diagnosed with a TA Grade 2

andrewgeorgia@yahoo.com — Fri, 01 Feb 2008 16:41:49 +0100

01/29/2008 Had my 4 month Cysto, No Visible tumors or Polyps. Dr said saw some redness that he took a sample of. Have a Post Appointment in 2 weeks, will update then.

Susan - Delayed Diagnosis, Part II

rosssm@hotmail.com — Fri, 01 Feb 2008 13:26:02 +0100

To read the most complete version of my story, please read Part 1 as well as this part, Part II.

Here, I am writing a continuation after CT scan has shown more lesions, growth in
at least one liver lesion, and a possible lesion in a new location (with follow-up
testing recommended.) This while receiving Genzar and Taxol. Also, yesterday I
had a turbt (and am at home, with a catheter.) I don't know the exact dimensions of the calsified tumor removed, but it was a lo [...]

Susan - Delayed Diagnosis, Part II

rosssm@hotmail.com — Tue, 29 Jan 2008 16:20:55 +0100

01-29-08 Results of recent CT Scans

I talked to my nurse on the phone, not so good a way to get results. I think I'll call back and ask to pick up a copy of the report today. I did hear that my largest liver lesion had grown from 4.0 to 4.9 CM since November. And it sounds as if I have more lung nodules than before. I am confused about what to do now. My urologist wants to do cystoscopy on TH and I am also scheduled to see my medical oncologist that day. One thing has to b [...]

Susan - Delayed Diagnosis, Part II

rosssm@hotmail.com — Sat, 29 Dec 2007 13:41:36 +0100

In January 2007, the bleeding became continuous. I went to my present primary care doctor and was told that I should take antibiotics and see if it improved. I called back when the big clots started coming but was told (by a nurse) to just keep my regular appointment. I didn't get to that appointment because I had to go to the hospital with "frank bleeding." I got a referral to a urologist while hospitalized and had a tur after being transferred to a hospital repaired enough [...]

Susan - Delayed Diagnosis, Part I

rosssm@hotmail.com — Sat, 29 Dec 2007 13:40:26 +0100

Susan - delayed diagnosis
A volunteer at my church helped me find WebCafe and its forum. My bladder cancer has spread to my liver and lungs, maybe a bone. i was supposed to have a radical cystectomy this month (Dec. '07), but we cancelled it after the MRIi report. Now, I'm getting chemotherapy (taxol and genzar). MVAC didn't work for me. Radiation did shrink my primary tumor.

I am told my case is "difficult" because of the late stage of discovery/tur/d [...]

Good News!

bandi99@sbcglobal.net — Thu, 08 Nov 2007 00:16:00 +0100

Hello Everyone,

I rarely post on this site but I read many of the posts. I'd like to share some good news. My husband was diagnosed with bladder cancer in November 2005. He's had many rounds of BCG and is now on maintenance BCG. His scopes are every 3 months for 3 years. His last scope was Oct. 25th and his bladder was clean. It's been 2 years since his diagnosis and his bladder has been clean since the surgery (Dec. 2005). I ju [...]

fathers long journey

noteabulldogs@hotmail.com — Wed, 17 Oct 2007 19:41:37 +0100

Dad started his first 6 BCG treatments on Tuesday, so we will see what the next couple of months brings, they stated that they will monitor him closely & any sign that the treatment is not working, they will do R/c, I hope they know what they are doing.
Cathy

Life w/ a Neo-Bladder

mikmckna1@comcast.net — Thu, 27 Sep 2007 09:57:55 +0100

It's been almost one year since I added to this post so I decided I would continue the story here. First off, I have had several 3 scans since surgery and so far so good!

In other posts I talk about hypercontinence or the in-ability to urinate. This is one of those issues that a few will encounter and of course... I had to be one. Following surgery I was doing OK training myself to void and hold but I also experienced several UTI's (urinary tract infections [...]

43 Diagnosed with a TA Grade 2

andrewgeorgia@yahoo.com — Mon, 24 Sep 2007 10:43:43 +0100

9/24/2007 Well its been four months or so and I go in for my next procesdure tomorrow. Wish me luck. I will update in the next couple of days.
9/25/2007 I had a 12:45 pm procedure. Some Good news! The Doc said I did not have any polyps or Tumors. I have a Post Op appointment in Three Weeks. Hurray!!

Chemotherapy Notes

pgilleland@valornet.com — Thu, 20 Sep 2007 21:04:13 +0100

Well, 1/3 of the scheduled chemo treatment is over. We were told that my husband's CBC was fine, so he had his quick treatment of Gemzar. He is still very tired, but no nausea or vomiting. Around the injection site is very sore/painful. Much worse that last week. Anyone else had this problem?

fathers long journey

noteabulldogs@hotmail.com — Thu, 20 Sep 2007 02:34:35 +0100

were do I begin, Mum & Dad made the 3 hour journey on Monday so that dad could begin the bowel prep on Tue, Fasting from Mon night, he began the bowel prep on tue, tue came & went, up early and of to the hospital for a 7am start. My sister & I got on the road around 4am & arrived just after 7am, he hadnt gone anywhere yet so we were able to see him before he went in. They called him in & both mum & he went in. Whilst in the bed waiting the anathesist came in & said, s [...]

Chemotherapy Notes

pgilleland@valornet.com — Mon, 17 Sep 2007 21:08:26 +0100

The fatigue is setting in. Each day since the chemo has become a little worse. Luckily, still no nausea and the burping has about stopped (think it must have been from the Emend.) I'm anxious to see how his blood work will be on Thursday.

Chemotherapy Notes

pgilleland@valornet.com — Fri, 14 Sep 2007 19:33:23 +0100

I'm not sure if there is the proper place to post this, but here goes.

My husband had his first session of chemotherapy yesterday 9-13-07. Cisplatin and Gemzar. Other than the long day, everything went fine. So far, the only side effect we know of is burping. Nothing excessive, just a little. There is no heartburn or nausea associated with it. He does think he is beginning to feel a little tired. I hope to use this thread to document everything. Next Thursday will be a short day [...]