Blog Entries tagged 'neobladder or pouch'

Getting reading for Surgery and confused

sharynf31@hotmail.com — Mon, 04 Aug 2008 01:00:00 +0100

Hi my name is Sharon I was dignosied with Bladder Cancer Dec 2003 finally after a year of going to Dr,s whom seem to think I was crazy. I went thru 2 BCG treatments and it seem to go into remission then in Jan of 2008 came back this time with a vegance. The Dr had me to another round of BCG and it didn't seem to help, so now he has passed me on the another Dr .

So I guess my questions is the new Dr has scheduled me to have my bladder replaced with the Neo-Bladder and gave me this w [...]

BC and ME

cdhorton1@yahoo.com — Wed, 02 Jul 2008 01:00:00 +0100

Hello, my name is Charlotte I am 38 and have two children 12 and 8 years old. I used to worry about my husband getting lung cancer since both his father and grandfather died at an early age from it. We both quite smoking cigarets 11 years ago. He still has an occasional cigar.

March 15, 2008 saw blood in my urine and made an appointment with doctor for next day. For the next month they treated me for UTI and Kidney stones.

April 16, 2008 now having dark red urine. Had a c [...]

Questions After Surgery - My Dad's Story

patty0501@aol.com — Mon, 14 Apr 2008 10:14:52 +0100

On Friday, 4/11 my dad had surgery to remove his blader, prostrate, and lymph nodes around the bladder. The doctor was able to reconstruct a NeoBladder from a piece of his small intestine. The surgery was successful and with time he will be able to control his new bladder and function normally.

It's day 3 after surgery and as I had assumed he is in a lot of pain. He has the pain meds with the button to self medicate but he is just very uncomfortable. The nurses say he is doing ve [...]

new neobladder/difficulty with control

jemaho@consolidated.net — Fri, 28 Mar 2008 09:20:30 +0100

I feel now that I am on the up swing. I do feel I have had one of the top Urologist in the country. So many surgeries to fix the fistula because he desperately wanted to save my bladder because of my age. My Uro is Rodney Appell with Baylor in Houston and the surgeries were done at Methodist in Houston. All except the hysterectomy and the first repair. I am anxious to get the Urodynamics done next week to see what they find. I know that the bladder neck was spared d [...]

new neobladder/difficulty with control

jemaho@consolidated.net — Thu, 27 Mar 2008 20:47:23 +0100

My story is quite different from most on this site, but it is the ONLY place I have been able to find anyone who has had their bladder removed and replaced with intestine. In July 2005 I had a radical hysterectomy and had severe complications. When I woke up in ICU I kept telling everyone my bed was wet, they said the catheter was just leaking. A couple of days later the catheter was removed and I immediately urinated everywhere and their answer then was that the catheter had j [...]

Female RC & NeoBladder Incontinence...still

jenim1@hotmail.com — Thu, 06 Mar 2008 16:32:31 +0100

I had my 8.5 hour surgery on January 2nd, 2008. Long story short: wound up with staph at incision after surgery, rehospitalized, basically lost 2 weeks of Kegel training time. However, when trying, urine and mucus constantly leaked AROUND Foley anyway, Doctor & nurses too busy for me, still practicing Kegel at home,to no avail.
I've been to almost every story board for women and BC NeoBladder and I know it takes time but I don't EVER GET a "full" or "gaseo [...]

let me introduce myself

justme72759@aol.com — Sun, 28 Jan 2007 01:38:28 +0100

Hello all my name is Klynn, my husband John has recurring bladder cancer, in 2004 he had a total cysectomy. He has a neobladder he did well with the surgury, had leak 2 weeks post surgury that caused a sisk to form blocking his bowel and had to have a 2nd surgury to reroute the bowel, after a month in the hospital he came home. He rebounded well and was back to work in 5 months living a happy almost normal life. � Fast forward to January of 2006..wakes up New Years morning with blood in his urin [...]

My Story

peter.savage5@ntlworld.com — Tue, 10 Oct 2006 17:35:33 +0100

HEY IM STILL ALIVE,

Sorry havent been thinking too much about this forun, been too busy feeling like I already died and thought I was in hell(it was just the Kids playing the Wife up). No seriously(Note that I can now be a bit lighthearted), been nearly 3 months since I had the neobladder surgery and I must say that the surgeon has done an astounding job. The new Bladder works 95% like the old one and I am dry at night(mostly). Unfortunately they was a few cancer cells det [...]

T1, Grade III with CIS, Neobladder 2/2006

a2ked@earthlink.net — Fri, 22 Sep 2006 00:22:58 +0100

Time for an update... I didn't realize the storyboard had been transferred to the new format. So, where was I with my story...

2/22/2006: Bowel Prep day. Yuck.
2/23/2006: The Big Surgery. I had my cystectomy at the U. of Michigan hospital. I was in surgery for 7 hours. It took a little longer than it might have otherwise because my doc didn't get a clear margin on the urethra because my tumor was near the bladder neck. Knowing I wan [...]

T1-G3 w/ CIS. RC w/ Neobladder

mikmckna1@comcast.net — Wed, 20 Sep 2006 08:23:37 +0100

When I came home, I still had Ureter stints draining direct from my Kidney to a bag, a Foley cath in my penis going from my new bladder to another bag and finally what they called a superpubic tube to another bag. The SP tube is just another cath going to the neobladder through your abdomen. You don�t want to yank this thing, but really you get used to this tube coming out of your tummy!

I met with a visiting nurse who assured me she would help me through any questions, pr [...]

Life w/ a Neo-Bladder

mikmckna1@comcast.net — Wed, 20 Sep 2006 08:22:15 +0100

I can only say that I wish I had found this site around 6/22/06. It�s wonderful to hear the stories of others and read through the forum links. BC is not well known so when I found out, I truly felt alone. Since everyone has their own tale and no two are alike, I thought I�d share mine with you. If it deems posting, I�d be happy to hear from anyone with any question.

I�m 45 yrs old and pretty active though smoking has always been a tough nut for me to crack. &n [...]

32 year old female with neobladder

winterbowera@health.missouri.edu — Fri, 25 Aug 2006 23:14:46 +0100

I'm sure it's possible that it's just an ovarian cyst...I've never had one to my knowledge, but understand they are relatively common and generally nothing to worry much over. I trust my doctor and know he's very proactive, so if he was concerned, I know he would have ordered more tests. I have a visit with him on Friday and will ask more questions about it so I can understand a bit better and ask a few more questions.

Regarding the removal of my ovary - my surgeon indicat [...]

32 year old female with neobladder

winterbowera@health.missouri.edu — Thu, 24 Aug 2006 12:24:36 +0100

Thank you all for your kind responses.

I wanted to update a bit on my story - yesterday I had to have an ultrasound of my leg due to a painful lump that has formed on my calf. I have also been having some intense abdominal pain and swelling in my lower right quadrant. So, this morning, I had an abdominal/pelvic CT scan. The ultrasound did not indicate any cause for concern (i.e. blood clots, masses, etc.) and I am hoping to know the results of the CT scan by t [...]

32 year old female with neobladder

winterbowera@health.missouri.edu — Mon, 21 Aug 2006 11:31:29 +0100

Hi everyone-

Just wanted to take a moment to introduce myself and share my story. I've been reluctant to post my story because I felt I could handle this on my own and just read other posts to help me cope. I'm finding that I need more support though as I face the reality and magnitude of all of this.

I am a 32 year old, happily married mother of two boys ages 1 and 4. I was diagnosed with bladder cancer on April 19 of this year. I had my first TURB [...]

Neobladder - new, 5th week post surgery -doing gre

healingbear@peoplepc.com — Wed, 07 Jun 2006 12:00:21 +0100

Hi. My name is Carol. I was diag. with bla.ca. 2003, invasive tumor removed. 13 BCG treatments, cancer returned Jan. 2006 while living with new partner in Southern CA. I returned to Northern CA to consult with my original urologist and after reviewing all data he strongly suggested that I have my bladder removed. I am 68, healthy and good spirit; we both agreed I could go through this surgery and come out with good changes for ridding myself of this cancer. He referred me to a doctor in Marin Co [...]

5 years treating for overactive bladder; and t

jpk381@yahoo.com — Tue, 28 Mar 2006 21:21:01 +0100

It is now the end of March 2006 and I have been getting my chemo (gemzar and cisplatin) treatment since the beginning of February. The oncologist would like 16 sessions of chemo; however, my blood count - both white and red and now platelets - has caused postponement on at least 2 occasions. My oncologist gave me neupagen which worked very well to stimulate cell growth. But my platelets are very low - 35 but doubled to almost 70 last week which pleased the oncologist.

Hopefully, tomor [...]

Stage III, Highly Invasive

Hhcaseman@aol.com — Mon, 10 Mar 2003 12:42:32 +0100

Stage III, Highly Invasive

1st diagosed after blood in urine found 11/20/02. Neosurgeon pretty well had it right even before turbt. Just had neobladder put in at Dallas/Dr. Sagalowski.

Right posterior wall bladder tumor

rgdyk@att.net — Mon, 07 Oct 2002 15:50:36 +0100

Right posterior wall bladder tumor

In 1998, my Dad Chester at age 71 was diagnosed with an elevated PSA level. The Urologist at Hackensack University Medical Center, which he was sent to for consultation, told him he was a prime candidate for prostate cancer. The recommendation was to receive Lupron injections and undergo radiation treatments. Additionally upon further recommendation, my Dad chose radiation seed implants to treat the spread of this cancer.

In July- August o [...]

I had a rare bladder tumor cancer. I don't know ho

wezie@att.net — Sun, 09 Jun 2002 10:03:58 +0100

I had a rare bladder tumor cancer. I don't know how to spell the name of the tumor.

In 1975 I had bladder cancer,I was 20 years old. They did a colon conduit. My doctors were wonderful.After 25 years I had two parastomal hernias and they did a Indiana Pouch which I love. The freedom is great.I still have trouble with leaking but I am hoping to fine out why this is still going on after a year.
These sites are so helpful
Thanks cindy

Minimal Invasive Surgery, neobladder contruction,

rebarton@bellsouth.net — Sun, 02 Jun 2002 12:49:23 +0100

Minimal Invasive Surgery, neobladder contruction, erectile nerve sparing.. Stage 2B/3A Grade IV Muscle invasive cancer..2.5 years later.

I would like to introduce myself. My name is Roger Barton and I live in Orlando, Florida. I was just a normal guy trying to make a decent living, living my life in peace, and trying to have a happy and healthy existence. Life was just getting back to normal, after spending the holidays with family and friends. The year 2002 had just started, and I [...]