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I'm new to the Bladder Cancer WebCafe but I have been reading many blogs and infromation from it since my diagnosis in March 2011. A great site!

I'm a 52 year old female in great health and very active. I had been diagnosed with Ta Grade 1 and  immediately started BCG. After the second biopsy the result was the same. The first biopsy the doctor had taken from 2 areas, the second biopsy from three areas. The malignancy showed up in one new area of the three. As soon as I could, I started the second treatment of BCG. 

This last biopsy had 4 areas removed. One area showed a malignancy but this one


Muscle invasive TCC grade II-III/III with CIS T2N0M0

I was diagnosed with muscle invasive TCC in February 1995 after seeing a small amount of blood in my urine. I was 45 years old at the time. My urologist referred me to a Dr. Sagalowsky at the University of Texas Southwest Medical Center in Dallas, Texas. After several tests and additional biopsies we decided to do a RC with neobladder construction. My surgery was on 4/7/1995 and the final report was T2N0M0 grade II-III/III TCC. Recovery went well and I was back at work in 60 days after returning home. My neobladder has been very good and at


I am writing to ask for help. My husband had a radical cystectomy in June 2010 (prostrate and urethra also removed) for muscle-invasive bladder cancer. He was in the hospital for 33 days for ileus (digestive system shutdown), and in August started 5 months of cisplatin-gemzar chemotherapy, which ended on Dec 8th. Does anyone have experiences with nausea lasting this long after chemo has ended? He has 1 or max 2 good days a week, when he's not even aware of his stomach. The rest of the time he is miserable. He is not actually vomiting, but very nauseated with sweaty palms and no

Hello,

I'm looking for anyone with experience of having pudendal neuralgia after RC with neobladder?  My father had his RC with Neo in 2006 and about 6 months after that surgery began to have severe burning issues in the urethra (not when urinating).  This triggered the uro to run test to determine possible cause.  In some instances he did have infection but everything else was fine (emptying completely, no leaking, etc).  He was advised to irrigate....but no change.  Many tests later, various prescriptions, etc......still severe burning, more frequently and also including the rectum/anus area


I'm a 47-year old female (non-smoker) who was diagnosed with bladder cancer in March 2010.  My pathology showed high grade papillary urothelial carcinoma with superficial invasion into the lamina propria.  I've gotten 3 opinions and my options are BCG therapy or cystectomy (neobladder).  I'm afraid to do the BCG therapy because of the the low cure rate and high return rate.  I know the cystectomy has a higher cure rate, but has a high rate of complications.  Does anyone have any advice for me?  I have 2 teenagers that need their

Hello! I'm new to this blog but not new to this disease.  My dad, 77, had an RC in August 2007 and a good candidate for a Neobladder.  His cancer was a T2 that had not gone beyond the muscle into other areas.  The surgery was a success and he recovered nicely after his stay of almost 2 weeks in ICU.  His home care was good too and soon he was pretty continent during the day with only small accidents during the night (this is because he refuses to use a pad or depends out of pure stubborness and male ego)!  He was NOT instructed to continue the self-cath after about 3 months when his test


Have been through a year plus of bladder cancer treatment, bcg etc. I am looking to  neobladder in the next week to 6 weeks. It's now Nov. 26. have both fear of spoiling holidays, and giving cancer more time to spread?? Have had both bone cancer and lung cancer, surgeriers, chemos in the past 20 years and as you can see i am still alive and thankful! But i still have fears of the up coming surgery. Would like to hear from some post neo surgery people. Not just if you"re doingfine or not, but both the good and bad details, the big things and the little things. Time frames, steps forward, and


I have created a flow chart for bladder cancer patients.  It can pretty much be used at any time from initial concern about the potential of having bladder cancer through various stages of treatment.

 My hope is that people will find this useful.  Rather than posting it everywhere and having to try to maintain version control on a number of sites, I am putting the link to ABLCS forum where I originally posted it.

I am not a doctor but I do have a good bit of experience as a bladder cancer patient.  This guide has been reviewed by a number of other bladder cancer survivors as well.


Hello, First of all, I can't tell you how happy I am to find this website. I have recently been diagnosed with bladder cancer. My local urologist referred me to UM cancer center for a second opinion. I saw Dr James Montie. What a wonderful person.

I have non-invasive, poorly differenciated, 70% glandular cancer. Though the non-invasive part is good, the 70% glandular is not. I have been given two options of treatment. The first is BCG treatment. I have been told by Dr. Montie that this type of cancer is traditionally not very responsive to BCG.  The second option is bladder removal, and


Hello, my name is Charlotte I am 38 and have two children 12 and 8 years old. I used to worry about my husband getting lung cancer since both his father and grandfather died at an early age from it. We both quite smoking cigarets 11 years ago. He still has an occasional cigar.

March 15, 2008 saw blood in my urine and made an appointment with doctor for next day. For the next month they treated me for UTI and Kidney stones.

April 16, 2008 now having dark red urine. Had a complete physical and was told I was healthy and was told to hang in there the stone would soon pass. I demanded to


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