Member Blogs

Hello, my name is Charlotte I am 38 and have two children 12 and 8 years old. I used to worry about my husband getting lung cancer since both his father and grandfather died at an early age from it. We both quite smoking cigarets 11 years ago. He still has an occasional cigar.

March 15, 2008 saw blood in my urine and made an appointment with doctor for next day. For the next month they treated me for UTI and Kidney stones.

April 16, 2008 now having dark red urine. Had a complete physical and was told I was healthy and was told to hang in there the stone would soon pass. I demanded to

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Dad had r/c on the 2nd of april, Operation went really well, it took a bit longer than they orig said as they decided to also take the urethra or water pipe as Dr put it, he also had to have his left urita cut down further as the cancer had advanced into it.
So he had bladder, prostate, urethra, lymp nodes (not sure how many) & a large section of left urita taken out, which they cut & sent of to path whilst he was under, news came came back still cancer, cut again, sent off, still cancer, cut more sent off, clear.
Dad seemed to recover quite well, apart from some blood pressure issues & being

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In January 2007, the bleeding became continuous. I went to my present primary care doctor and was told that I should take antibiotics and see if it improved. I called back when the big clots started coming but was told (by a nurse) to just keep my regular appointment. I didn't get to that appointment because I had to go to the hospital with "frank bleeding."  I got a referral to a urologist while hospitalized and had a tur after being transferred to a hospital repaired enough to do it. Pathology: Stage 3 high grade tcc with sarcomatoid features. Some tumor remained after tur. The tumor has

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Susan - delayed diagnosis
A volunteer at my church helped me find WebCafe and its forum. My bladder cancer has spread to my liver and lungs, maybe a bone. i was supposed to have a radical cystectomy this month (Dec. '07), but we cancelled it after the MRIi report. Now, I'm getting chemotherapy (taxol and genzar). MVAC didn't work for me. Radiation did shrink my primary tumor.

I am told my case is "difficult" because of the late stage of discovery/tur/diagnosis (Stage 3, fat invasive) the sarcomatoid variant, and now the spreading. I know it is difficult -- I just want to be seen as important

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were do I begin, Mum & Dad made the 3 hour journey on Monday so that dad could begin the bowel prep on Tue, Fasting from Mon night, he began the bowel prep on tue, tue came & went, up early and of to the hospital for a 7am start. My sister & I got on the road around 4am & arrived just after 7am, he hadnt gone anywhere yet so we were able to see him before he went in. They called him in & both mum & he went in. Whilst in the bed waiting the anathesist came in & said, so your in for your bi-op, mum said know I think its a little more serious than that, he said no your in for a bi-op. He then

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IVE BEEN SKIING
We have had a fantastic time I honestly couldnt believe how great and how well I felt.Promising myself this holiday was the thing that kept me focused when things were not so great.
I wasnt The Herminator or anything but skied every morning with my long suffering husband then had lunch before taking my little boy back to the hotel where we both had a nap.Most days we went back out to have the last few runs with Steve and the girls or play in the snow we even went toboganning.We went to Lech in Austria which was just perfect.The snow was lovely and the resort picture postcard

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I hope this helps someone.
I am 41.
In May I thought I had my first ever dose of cystitis I congratulated myself on never having it before and being a pharmaceutical rep instead of going to my Gp or pharmacy for treatment pinched samples from a fellow rep to treat it.It didnt work and two weeks later I went to my Gp by now I was pretty uncomfortable with symptoms of retention and bladder fullness.He gave me antibiotics and sent me away.
This seemed to work we went on holiday discussed having another baby and carried on with life.At the end of June the symptoms returned this time I had blood in

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I found out I had grade 4, stage 3 bladder cancer 6 weeks ago. All the urologists wanted to remove the bladder, prostrate, etc. I am a fairly young man (58), and I was not content with that path of treatment. Something in my gut gold me there must be a better way. I got a second opinion from one of the leading universities (UCSF). This was not easy because the insurance company didn’t really want to pay for it. I found out that the new trend, if at all possible, is to preserve the organ, though only the oncologist are the ones who seem to truly believe in this.

Here is some advice I would give

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TCC Stage III/IV
5/12/00 Radical Cystectomy w/Continent Urinary Diversion (Indiana Pouch)

Update Sept 2005-Five Years,four months and still doing great! "Ditto" my Nov 2004 update.
Update Nov 2004: Cat scans, chest x-ray, urine cytology, blood work, etc. all indicate "no evidence of disease" ... Indiana Pouch works great! Never any infections or other problems. I give credit to superior surgical skill and blessings from above.
E-mail me anytime . . . cabbott@highlands.edu

At the age of 53, in good health, never having smoked, worked around chemicals or cancer-causing agents, etc. no family

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aggressive grade 4,

Hello Everyone,

My husband Jack was diagnosed with grade 4 bladder cancer 3 weeks ago. CAT & bone scan have
come back negative. This web-site has been a great source of information and inspiration.
Thank you to all who have shared your experiences!
This whole situation is so new to us (still trying to dicipher all the abbreviations & terms etc.)
If anyone would care to share advise, I would be very glad to hear from you.

Thank you & keep up your spirits,
Ninnette


5/13/03

Update: Radical cystectomy on 4/29/03. Surgery was 7 hours & stoma/ileal conduit was the choice over other

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