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It's been almost one year since I added to this post so I decided I would continue the story here.  First off, I have had several 3 scans since surgery and so far so good!

In other posts I talk about hypercontinence or the in-ability to urinate.  This is one of those issues that a few will encounter and of course... I had to be one.  Following surgery I was doing OK training myself to void and hold but I also experienced several UTI's (urinary tract infections).  These were horrible because you feel miserable for a few days and sweat with fever the whole time.  Finally my Uro asked me to cath

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Thought I'd provide a quick update.  October 10th will be 7 weeks post-op for me.  

At week 5 the Super Pubic tube was removed... my last.  This was a bitter sweet moment.  I was not a fan of the tube, but I knew after this, I was on my own.  Evenings have been trying.  At first, I was setteing alarms to go off every 90-120 minutes.  I have since extended that to a schedule I worked out through tracking progress.  I find that a log of bedtime, waking time along with rating success with continence AND how well I felt  I was able to void a good tool.  While I am still not confident and continent

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I found out I had grade 4, stage 3 bladder cancer 6 weeks ago. All the urologists wanted to remove the bladder, prostrate, etc. I am a fairly young man (58), and I was not content with that path of treatment. Something in my gut gold me there must be a better way. I got a second opinion from one of the leading universities (UCSF). This was not easy because the insurance company didn’t really want to pay for it. I found out that the new trend, if at all possible, is to preserve the organ, though only the oncologist are the ones who seem to truly believe in this.

Here is some advice I would give

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I found this web forum which I think its a great place where to share our concerns about bladder cancer. We are both argentines, living in Argentina. My husband, Carlos, now 57, was diagnosed with bc five years ago, very low grade and superficial (excuse my english). After many recurances and resecctions we are still fighting this battle. He was under BCG instilations but with no success except that it didnt change the pathology. After the last TUR his urologist recomended to change to Mytomicin. He had his check up done today and it came out with only three very little tumors, which were

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Cis


Hi everyone, well its been a bit of a struggle as the doctors still arnt sure of what and where my problems are, i had the 6 x BCG which i finished ten weeks ago!all went realy well had vertually no side effects at all.
Im now due to go into the Middlesex Hospital in London on the 18th October 04 for a flouresent Dye to be instilled into my bladder which the uro said will show if there is CIS! Iv had gross blood in my urine and malignant cytology and then atyipa, 2 turbs which both were not pathologicly sure of what was causing my problems so we still keep looking.
Well i hope we all do well

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