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Diagnosed with cancer 2

Posted by: wendydos in side effectsBCG on


Went for my 2nd BCG instillation on Wednesday, with no problems.  Discussed my side effects with my doctor. (Chills after 24 hours and minute blood spot on the Tuesday - 6 days after instillation). He said that side effects indicate that the medication is working. (Horay for side effects)

This time however my side effects began about 2 hours after receiving the BCG - Chills and fever (flu like) and the most agonising burn upon urination (only the first 2 times). Also had some hermaturia.  By Thursday midday I was fine. Would like to hear from anyone that has had the same side effects. (Keen

Hi, my Name is Wendy and I am 51 years old. In April and September 2010 I presented with gross hermaturia. Went to my GP (general practioner) and after a urine test she prescribed an antibiotic for a UTI. After 2 days on both occasions the bleeding stopped. Then in February 2011 it started again. My GP again tested for an infection, gave me an antibiotic. After 7 days the appearance of blood had not subsided and my GP referred me to a Urologist.

I went to see the urologist and he suggested that I be booked into hospital as he would need to perform a cystoscopy and wanted me to have an IVP

I have as of today reached the 1 year anniversary since my diagnosis. Stage 1, non muscle bladder cancer. I am 45 years old.

I underwent two resection/biopsies with mitromyicin and a 6 week induction with BCG. So far, a year later I am clean.

 I am wondering about others experience with the BCG treatment. I handled it well, with the first three treatments being a breeze and the last three being painful but tolerable. I did experience some mild flu like symptoms with my energy levels being low as my biggest complaint.  Now, 6 months after my last treatment I find I am experiencing flu like

My 78 year old father was diagnosed with a Stage 1 T1 Grade 3 tumor in Jul 2009. He successfully went through a TURBT and six BCG treatments with minimal side effects. In Mar 2010 he had a follow-on biopsy ... good news; no evidence of the cancer. Then he started BCG maintenance in May 2010. We had 3 treatments scheduled. After the second treatment he started shedding the lining of his bladder so we stopped treatment. Here is the issue: he has pretty significant burning when he urinates. This started with the BCG maintenance treatments in May and still continues today (3 months). He had

Been a whole since I updated here.  I'm now 42 (41 when for Turb) and always been a non-smoker.  Had surgery Jan 22, 2009.  Ran through 6 weeks of BCG.
Started maintenance BCG in November.  We're going to do that every 6 months (or 3 months after every scope for two years then re-evaluate).  My tumor was classed as large, aggressive and high-grade.

About to do my last quarterly scope today.  We'll go to every six months after that.

 So far its been clean.


The scope has become a non-event.  I get a bit worked up before-hand, but the procedure is nothing to me.  I know when to relax, take

Have been through a year plus of bladder cancer treatment, bcg etc. I am looking to  neobladder in the next week to 6 weeks. It's now Nov. 26. have both fear of spoiling holidays, and giving cancer more time to spread?? Have had both bone cancer and lung cancer, surgeriers, chemos in the past 20 years and as you can see i am still alive and thankful! But i still have fears of the up coming surgery. Would like to hear from some post neo surgery people. Not just if you"re doingfine or not, but both the good and bad details, the big things and the little things. Time frames, steps forward, and

No abnormal cells detected.  Doc said everything inside looked good.  We opted to start BCG maintenance in 6 weeks and every 6 months after that till we determine it's not needed.

 It's amazing how I've gotten used to the procedure.  Only thing that bothers me now is the injection of the numbing jell.  When the scope gets close to the prostate I take a deep breath and slowly let it out and I barely feel it.  That's a FAR cry from how it felt the first few times.  Gets to be less and less as I go through this process.

 The after affects are lessening too.  I still get some spasms following the

So.....last Saturday was 2 1/2 weeks post BCG (all 6 complete).  I really wanted to get the whole place mowed, but hadn't done more than an hour or so on the tractor since before my TURB in January.

 My wife did the majority of the push mowing and I only did a little here and there.  She did the majority of the rider mower while I only went around edges on the steeper parts (we have 5 acres out in the sticks).  I took the blade off the big tractor and put on the bucket to move a little dirt.  Got 4 loads put up by the house for the boys to play in.

 (note) the boys went to play in it and our

Okay, it's been about 12 days since I completed my 6-week BCG treatment cycle.  The scope is scheduled for July.

 I'm having intermittent pains in the bladder area.  They started about 4 days ago.  I've only noticed them once or twice a day.  They are not horrible and feel some like the spasms or cramps following a BCG treatment.  I am not having a problem urinating and nothing abnormal is coming out.  My wonder is if this stuff I am feelinig is common AFTER BCG is completed...?  I don't want to be having a problem and not do something about it, but at the same time if it's normal I don't want

It wouldn't be complete if I didn't tell the tale of the last BCG.

 Office visit was LONG because the doc had been on vacation and everyone wanted to see him.  I told him that is a compliment to him that folks are loyal and patient.  I was the last person to go back....

 The routine was without drama.  I'm glad to have my regular urologist doing this.  His remarks were 'hey, you made it'.  I suppose not all folks finish their treatments.

 Some cramping and some horizontal spasms (first for that one).  Some blood later and some material (tissue) passed.  Affects lasted mostly for about two days. 

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