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 I am a 53 year old female. Very healthy and very fit. I was diagnosed with upper tract bladder cancer in late March 2007 and had a nephrouterectomy a few weeks later in mid-April 2007. The kidney mass was 6 cm, Grade III, with some spread into the adjacent uterter. I was "all-clear" until my one year check-up, when "spots" were discovered in my bladder. Since then I have had an office visit procedure at 15 months with a cysto/fulgration/electrocautery with two small tumors removed, and an outpatient surgery at 18 months with a cysto/fulgration/laser with two more apparently larger tumors


Well, since last I posted to this part of the forum, a lot has happened, actually --less to do with my treatment (though there is news there, too) than with reasons to live "beyond expectations."

I do have an appointment set up with a metastatic bladder cancer specialist at MD Anderson for March. In the mean time, I'm trying to get caught up with non-cancer medical issues, teeth, blood pressure, etc. I continue to feel well, generally,
but it is hard not to panic everytime I have what could be just a little "normal" ailment. For example, I felt "bone tired" yesterday morning and was afraid I'd

Story so far

Posted by: clur in too youngmens issuesinfection on

Well we are doing Ok
We have all had awful colds and I nearly ended up in hospital with a chest infection but things are slowly getting better.
Weight continues to be an issue and I must try to put some on,other issues are tiredness and loss of feeling in my fingers and feet.Typing takes forever hence very short messages.I have had a few crisis lately one caused by friends and family having babies I would have so loved another child and feel so sad that the option has been taken away from me. I had a truely awful leak issue yesterday we went shopping and I must have caught my bag leaning over

I can only say that I wish I had found this site around 6/22/06.  It’s wonderful to hear the stories of others and read through the forum links.  BC is not well known so when I found out, I truly felt alone.  Since everyone has their own tale and no two are alike, I thought I’d share mine with you.  If it deems posting, I’d be happy to hear from anyone with any question.

I’m 45 yrs old and pretty active though smoking has always been a tough nut for me to crack.  I did quit for 2 years at one point but since I had been on and off using nicotine lozenges to help out.  Any way, June of ’06 I

I found out I had grade 4, stage 3 bladder cancer 6 weeks ago. All the urologists wanted to remove the bladder, prostrate, etc. I am a fairly young man (58), and I was not content with that path of treatment. Something in my gut gold me there must be a better way. I got a second opinion from one of the leading universities (UCSF). This was not easy because the insurance company didn’t really want to pay for it. I found out that the new trend, if at all possible, is to preserve the organ, though only the oncologist are the ones who seem to truly believe in this.

Here is some advice I would give

ureterosigmoidostomy (USM)

Posted by: alipoole in too youngkidneycystectomy on

Hello
I was just wondering if there is anyone out there in the same position as me... I had a complete cystectomy aged 6 months and had USM done, then redone when I was 3 yrs old. I had chemotherapy but not radiotherapy.
I have never had a problem with malignancies and am about 90% continent. I have had a partial nephrectomy though (aged 12), kidney stones, and have lost count of the number of UTI's I've had. Usually hospitalised annually due to pylenophritis but overall kidney function is pretty good considering.
Anyway, my main worry is this threat of colo-rectal cancer. I'm having the

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I could use some help.
7 months sice my ccccysectomy for aggressive bladder cancer.
I am 66 years young and a active woman.

I have two problems -one reoccuring bladder infections, 3 in 8 months.
and a small showing of blood has shown up in my urine.

My Doctor say this is not unusual after this big surgery but It worries me.
Abyone who can help me with these problens would be gratefuuly appreciated.
I have a outside ouch and doing well with it.

;)

non-invasive papillary carcinoma, grade 2 of 3

I am now 24, but was 23 when diagnosed. I had a lot of pelvic pain, but was dismissed by 5 doctors, mostly because I had just had a baby. And they all told me that the blood in my urine was just infection, common after childbirth. One even tried to tell me I had severe post-partum depression...no, I didn't feel good for a reason!!! I finally ASKED for a sonogram, and sure enough, there was a tumor in my bladder. I have no history, no smoking, I'm young, healthy and not a coal miner!!! Anyone out there who can relate...please email me. I'm trying

CIS Superfical Stage 2

Today I have joined the List of Bladder Cancer Cafe Members , after having e-mailed for advice from Wendy Sheridan and was greatly enlightened by her as she answered my questions graciously and profoundly !

Wendy suggested that I join this forum to learn and share information about the Cancer battles that are being fought and to share a little info about myself !

My name is Cliff , 54 years of age,. married , I have 3 children ( 2 girls and a boy ) all grown up and married ! My youngest daughter was just married on May the 15th this year !

My wife and I live in Winnipeg

Incomplete at this time

I am a 47 year old male. I have been a research biologist working with wildlife and wildlife diseases for about 20 years so i should know better than what I have done to date. As far as I can tell I really don't fit any "risk groups" which from my readings doesn't mean much, not a smoker (bit of grass when younger)no dyes or such but maybe a lot of formalin when I was younger from my lab work. I have been looking through this site and others for the last couple of weeks. I recently (2 weeks ago) got a surprise christmas present in the form of a suspicion of Bladder

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