Blog Entries tagged 'too young'

What Are My Treatment Options?

gjohnson@hga.com — Tue, 30 Sep 2008 01:00:00 +0100

I am a 53 year old female. Very healthy and very fit. I was diagnosed with upper tract bladder cancer in late March 2007 and had a nephrouterectomy a few weeks later in mid-April 2007. The kidney mass was 6 cm, Grade III, with some spread into the adjacent uterter. I was "all-clear" until my one year check-up, when "spots" were discovered in my bladder. Since then I have had an office visit procedure at 15 months with a cysto/fulgration/electrocautery [...]

Susan - Delayed Diagnosis, Part II

rosssm@hotmail.com — Tue, 19 Feb 2008 17:32:35 +0100

Well, since last I posted to this part of the forum, a lot has happened, actually --less to do with my treatment (though there is news there, too) than with reasons to live "beyond expectations."

I do have an appointment set up with a metastatic bladder cancer specialist at MD Anderson for March. In the mean time, I'm trying to get caught up with non-cancer medical issues, teeth, blood pressure, etc. I continue to feel well, generally,
but it is hard not to panic [...]

Story so far

claire.caulfield@btinternet.com — Fri, 19 Jan 2007 18:12:06 +0100

Well we are doing Ok
We have all had awful colds and I nearly ended up in hospital with a chest infection but things are slowly getting better.
Weight continues to be an issue and I must try to put some on,other issues are tiredness and loss of feeling in my fingers and feet.Typing takes forever hence very short messages.I have had a few crisis lately one caused by friends and family having babies I would have so loved another child and feel so sad that the option has been taken away [...]

Life w/ a Neo-Bladder

mikmckna1@comcast.net — Wed, 20 Sep 2006 08:22:15 +0100

I can only say that I wish I had found this site around 6/22/06. It�s wonderful to hear the stories of others and read through the forum links. BC is not well known so when I found out, I truly felt alone. Since everyone has their own tale and no two are alike, I thought I�d share mine with you. If it deems posting, I�d be happy to hear from anyone with any question.

I�m 45 yrs old and pretty active though smoking has always been a tough nut for me to crack. &n [...]

organ preservation

jimandnancy_1997@yahoo.com — Sun, 25 Jun 2006 17:42:14 +0100

I found out I had grade 4, stage 3 bladder cancer 6 weeks ago. All the urologists wanted to remove the bladder, prostrate, etc. I am a fairly young man (58), and I was not content with that path of treatment. Something in my gut gold me there must be a better way. I got a second opinion from one of the leading universities (UCSF). This was not easy because the insurance company didn�t really want to pay for it. I found out that the new trend, if at all possible, is to preserve the organ, though [...]

ureterosigmoidostomy (USM)

ali.poole@hotmail.com — Fri, 16 Jun 2006 18:24:19 +0100

Hello
I was just wondering if there is anyone out there in the same position as me... I had a complete cystectomy aged 6 months and had USM done, then redone when I was 3 yrs old. I had chemotherapy but not radiotherapy.
I have never had a problem with malignancies and am about 90% continent. I have had a partial nephrectomy though (aged 12), kidney stones, and have lost count of the number of UTI's I've had. Usually hospitalised annually due to pylenophritis but overall kidney functio [...]

some blood in urine 7 months after cycetomy

forneyduprey@shaw.ca — Fri, 09 Jun 2006 20:16:45 +0100

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I could use some help.
7 months sice my ccccysectomy for aggressive bladder cancer.
I am 66 years young and a active woman.

I have two problems -one reoccuring bladder infections, 3 in 8 months.
and a small showing of blood has shown up in my urine.

My Doctor say this is not unusual after this big surgery but It worries me.
Abyone who can help me with these problens would be gratefuuly appreciated.
I have a outside ouch and doi [...]

non-invasive papillary carcinoma, grade 2 of 3

ytodx3@sbcglobal.net — Fri, 01 Oct 2004 18:02:56 +0100

non-invasive papillary carcinoma, grade 2 of 3

I am now 24, but was 23 when diagnosed. I had a lot of pelvic pain, but was dismissed by 5 doctors, mostly because I had just had a baby. And they all told me that the blood in my urine was just infection, common after childbirth. One even tried to tell me I had severe post-partum depression...no, I didn't feel good for a reason!!! I finally ASKED for a sonogram, and sure enough, there was a tumor in my bladder. I have no history, no smo [...]

CIS Superfical Stage 2

cjdawe@shaw.ca — Mon, 07 Jun 2004 01:42:41 +0100

CIS Superfical Stage 2

Today I have joined the List of Bladder Cancer Cafe Members , after having e-mailed for advice from Wendy Sheridan and was greatly enlightened by her as she answered my questions graciously and profoundly !

Wendy suggested that I join this forum to learn and share information about the Cancer battles that are being fought and to share a little info about myself !

My name is Cliff , 54 years of age,. married , I have 3 children ( 2 girls a [...]

Incomplete at this time

bphysa1@pipeline.com — Sun, 29 Dec 2002 20:16:31 +0100

Incomplete at this time

I am a 47 year old male. I have been a research biologist working with wildlife and wildlife diseases for about 20 years so i should know better than what I have done to date. As far as I can tell I really don't fit any "risk groups" which from my readings doesn't mean much, not a smoker (bit of grass when younger)no dyes or such but maybe a lot of formalin when I was younger from my lab work. I have been looking through this site and others for the last couple [...]

bmblb56

bmblb56@nni.com — Sun, 11 Mar 2001 17:26:17 +0100

December 20, 2000

This story was originally written as a letter to another patient of Dr. Mark Schoenberg, our surgeon for our common bladder cancer and successful neo-bladder replacement

I too had a successful bladder replacement (neo-bladder) performed by Mark Schoenberg, M.D, Director of Urologic Oncology, Associate Professor of Urology & Oncology at the Brady Urological Institute, The Johns Hopkins Hospital, Baltimore, Md. I will try to relate some of my exp [...]