38 Years Old T1G3

Posted by: Gerry in T1 - Tumor invades subepithelial connective tissue on Print PDF

Hello All,

My name is Gerry.  I am 38 years old, and was diagnosed in the fall of 2006 with bladder cancer.  I wanted to share my experience with this forum, as I have found this forum to be very helpful and informative.

I am a very fit guy, but I did smoke for over 20 years.  That's what did it for me I think.  I have not smoked since the diagnosis, needless to say.

My initial symptoms were blood in the urine.  I went to see a local walk-in clinic doctor, who then presribed antiboitics for infection.  Of course, the bleeding only got worse, so he recommended I see my family doctor.  My family doctor sent me for ultrasound and imaging testing.  The results were devastating.  It looked like a cancer tumour was growing on the wall of my bladder.  I was shocked, and frightened.  I have 2 young sons at home, and the though of not being there for them scared me deeply.

I was sent to see Dr. Frank, a Urologist at the local Credit Valley Cancer Centre.  He was amazing, and the new facility is very impressive.  More than ever, I really feel blessed to be Canadian.  Our health care system is incredible.  Dr. Frank is a top notch urological surgeon, and our health coverage for these things as citizens covers all of the costs, no questions asked.  I felt much better after meeting with Dr. Frank, and knowing I was in very good hands.

Dr. Frank scheduled me in for a Cystoscopy.  Sure enough, it appeared to be bladder cancer.  The inital diagnosis was the appearance of T0G1 mass lesion greater than 5cm on the bladder wall.  Dr. Frank scheduled me in for surgery within 45 or 50 days. 

When the surgery day arrived, I had a TURB done, and stayed overnight at the hospital.  It was an uncomfortable experience, but thankfully not too painful.  Dr. Frank removed the tumour, and sent it in for lab analysis.

At our next meeting in Dr. Frank's office, I received some bad news.  The tumour came back from the lab as T1G3.  Dr. Frank also informed me that he saw another, very tiny tumour in the bladder while doing the primary tumour rescection.  He removed that tumour as well.  The tiny tumour turned out to be only a T0G1, so no worries there.  Dr Frank recommended 6 weeks of BCG treatment.

The 6 weeks passed and the BCG treament was not too bad.  No side effects, just a bit of burning in the urine.  No big deal really.  Dr. Frank scheduled another Cysto for follow up.

At my next Cysto, Dr. Frank saw what he thought might be another tiny tumour, near the urethera, perhaps T0G1.  Dr. Frank scheduled another TURB.

At my next TURB surgery (which was in July 2007), Dr. Frank removed the small tumour.  He sent it off to the lab folks again for evaluation.  My next appointment is August 22, 2007, to get the lab results.  I am hoping for good news, as always. 

I am very much looking forward to a clean bill of health at my next cystoscopy.  I am confident I can win this fight, and physically I feel great right now.

Thanks to you all for sharing your stories, they have been informative and helpful :)






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Rosemary
August 03, 2007

Gerry,

Your experience reminds me very much of my own BC experience.  My second TURB for residual tumor showed T1 G3 disease whereas it was heretofore thought to be lowest stage and grade.  The biggest difference between us is that I had Mitomycin at the initial and secondary TURB.  I have not had any recurrances. 

I also had the tiny tumor next to the larger tumor, that is another similarity.

Good luck.  I'm glad that you like your Dr. and your Health Care System.  Please keep us posted,  and if you keep having recurrances, you might want to think about the Mitomycin C.

Your new friend,
Rosemary 

Gerry
August 03, 2007

Hi Rosemary,

Thank-you for your kind words and the tip on the Mito C.  I am going to do some research, and ask Dr. Frank about this treatment at my next meeting.  I'm so happy to hear that you are having good results now!

I have read lots of research that shows BCG therapy has some very favourable cancer cell killing results, particularly in younger patients (the immuno response in the bladder can be quite effective in wiping out residiual cancer cells in the bladder wall), so I am glad that I completed it. 

Since my diagnosis, I have changed my eating habits to a more healthy diet, and I am drinking a lot more water now.  I am also sleeping more than I used to, and I have had no problem quitting smoking.  I am hoping that this change in lifestyle will help to fight the good fight, and keep the bladder cancer at bay.

I will post here after my next test results, and keep a positive eye to the future.

Thanks again for the kind words!

Your new friend,

Gerry.

Wendy
August 04, 2007

Hi Gerry,

Welcome here, but I'm sorry to meet another young woman with bladder cancer. You sound well informed, and your doctor seems to know what he's doing. This is a tricky diagnosis and needs a close watch but BCG is the best treatment out there for grade III TCC.

Wishing you well,
Wendy

Rosemary
August 04, 2007

Gosh,

I sure hope I wasn't misleading in my advice.  Certainly BCG is treatment of choice with this diagnosis.  I was just wondering if a dose of Mitomycin might be helpful with recurrance?   smilies/tongue.gif  It seems to be the differing variable between us....

Sorry....

Regards,
Rosemary

Zachary
August 04, 2007


My name is Gerry.... I am a very fit guy



Welcome here, but I'm sorry to meet another young woman with bladder cancer.


Gerry, rest assured that only in this one case does bladder cancer require gender-reassignment surgery.  smilies/smiley.gif

You sound well-informed and optimistic, and everything else that Wendy said applies perfectly. Personally, I don't know anything about BCGs or Mitomycin, but I can spot a person who can make BC cry "uncle" a mile away. Or in this case, a couple of thousand miles away.

Best wishes,
Zach


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