Scared partner

Posted by: Crystal in Untagged  on Print PDF

Recently I found out that my partner has been re-diagnosed with bladder cancer. She was originally diagnosed about 2  years ago and had been cancer free since then. However we just found out that the cancer is back. We weren't together at the time that she was originally diagnosed and so I'm unsure of what treatment she underwent or what the stages of her cancer are, I do know that it is not something she likes to talk about. She is only 30 years old and is one of the most health concious people I know. She doesn't eat red meat, is active on a soccer team and runs or bikes almost daily. It scares me because I do not know the details of her treatment and dianosis, I don't want her to die but I don't know what her risks are. It's so hard for me to stand by and watch her go through this not knowing what I can do to help or make it better when she won't talk to me about it. . I love my partner and i don't want to lose her, but I'm unsure of the success rates of treatment.  It scares me and I found this website and reading all of the other people's blogs was comforting knowing that there is a place where I can get answers to my questions and read the stories of other people going through the same thing. Thank-you to all of you for your words they truly help those who read them.

 With that being said does anyone know the statistics on mortality in people living with recurring bladder cancer?


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Frank Mazzalupo
July 07, 2008
76.195.234.14

research the past . make sure she sees the best in the field. if close to new york, see dr herr @ sloan kettering. read dr lamm protocol on web, on bcg treatments and oncovite vitamins.
she is young and healthy. i am 69 yrs old and have been ok for the past 5 years after treatment with periodic testing. hope for the best. Treatable for many years.

jurgen
July 13, 2008
68.5.241.226

My daughter just has been diagnosed with a rare skin cancer and was one week in the hospital for surgery. She is 36 and should not have this kind of disease in her age. Cancer is everywhere around me. I am an RN (hospice), at the job and some of my friends. They say one in three has cancer once in his life. Some survive, some don't. Who is to say? God? I myself have bladder cancer and all my research shows me no numbers of survival. There are so many research studies with so many results and people who need surgery every three month for many years, people who get it again after having been clear for 10 years, people who gradually getting worse and end up with a neo bladder...and so on....many people don't die, many people die? Where do we stand?
Good doctors are very important, but more important, and this is my own thoughts and experiences, are the changes in ourselves.
A combination of nutritional and mental changes gives me the power to "try" to battle the monster cancer. Vegetarianism with very little or no animal fat, eliminating sucrose and processed foods as much as possible from my diet and improving my mental state through Yoga and Meditation. I dropped my cholesterol level from 250 to 170 within three month after my diagnosis, from dangerous values to normal. I had been a body builder most of my life,looked healthy and fit, but I was not...
This is a little info on my take with cancer. We can do only our best and hope that the monster stays hidden. There are many more theories, like environmental influences, the air we breath, the electronic influences, our waterquality, just too much to approach it all and try to make an educated decision. Changing our mental attitude and staying positive is the most important. Do not loose hope, no matter what, make educated decisions and change the life for the better. I wish you and your partner the best, and strength as you approach a difficult part of life.........

Rick Luther
July 27, 2008
75.71.52.137

I was diagnoised with bladder cancer in March of 2007. My was invasive into the mussel wall. I elected to remove bladder and go with a neobladder. The point is some people try everything to save the bladder and risk the cancer reocurring. Depending on the case it may be best to remove the bladder early as possible. After the surgery and chemo my docs gave me a 1 in 3 chance of the cancer returning. So far ok. Everyone goes through the why me question, exspecilly if you did not participate in any high risk habits. Get multiple advice and have faith.

nancypeters
August 04, 2008
207.200.116.197

If it was a superficial cancer, then a recurrence may well be another superficial cancer. It can be removed and this time they would likely instill chemo right after the surgery to kill off any loose cells. Of course, asking her for at least a one time discussion to help you understand what you both are up against would be fair. You might make a point of going with her to the doc so you can better understand what is ahead of her. But remember, she is living with cancer, and while it can be scary it can also be lived with. It becomes an ongoing management issue, but she should be sure to keep all follow up appts. If you can get the details you can better understand if this is a major issue or less than that.
I have bladder cancer with one recurrence, and one more surgery for a recurrence that turned out not to be cancer. So it is important to take it one day at a time, learn as much as you can.


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