Blog Entries

Post Cysto

andrewgeorgia@yahoo.com — Fri, 18 Jul 2008 01:00:00 +0100

Doctor told me that they found a tiny benign type polyp at the neck of the bladder which they burned off. Said, that it is nothing to worry about and will talk more about it at the 2 week post visit. Will update more then.

Dandelions or TCC

sandystewart29@yahoo.com — Fri, 18 Jul 2008 01:00:00 +0100

Dandelions or TCC

July 17, 2008

First and foremost, thank you all so much for sharing your BC experiences with me. Finding this site has helped me so much to not feel so alone. Although we are not suffering in the same ways, we are all feeling the loss of control of our lives.

I am a 62-year-old female and smoked at least one-pack-a-day for nearly 45 years. I had finally quit for the last time in Feb. 2006, thanks to Chantix [...]

Time for 6 monther

andrewgeorgia@yahoo.com — Mon, 14 Jul 2008 01:00:00 +0100

Well its been around 6 months and I go in for my next exam tomorrow. I will follow up in a couple of days. Some very good news, my wife and Ii are expecting again. Monika is 9 weeks pregnant.

Heart Transplant Recipent & Bladder Cancer Survivor

reichjt@verizon.net — Thu, 10 Jul 2008 01:00:00 +0100

I am a 51 year old male, who received a heart Transplant 10 years ago, due to viral Cardiac Myopathy. I could spend two hours telling you about that miracle, but this webpage is about Bladder Cancer and so I will tell you the rest of the miracle!!

May of 2007, I had a lot of blood in my urine. Because of my transplant I immediatly went to ER Room. I was told that I had a kidney stone, but that I was to follow up with a urologist the next day. The urologist told me after looking at [...]

Scared partner

Crystalmcelrea@hotmail.com — Fri, 04 Jul 2008 01:00:00 +0100

Recently I found out that my partner has been re-diagnosed with bladder cancer. She was originally diagnosed about 2 years ago and had been cancer free since then. However we just found out that the cancer is back. We weren't together at the time that she was originally diagnosed and so I'm unsure of what treatment she underwent or what the stages of her cancer are, I do know that it is not something she likes to talk about. She is only 30 years old and is one of the most health [...]

BC and ME

cdhorton1@yahoo.com — Wed, 02 Jul 2008 01:00:00 +0100

Hello, my name is Charlotte I am 38 and have two children 12 and 8 years old. I used to worry about my husband getting lung cancer since both his father and grandfather died at an early age from it. We both quite smoking cigarets 11 years ago. He still has an occasional cigar.

March 15, 2008 saw blood in my urine and made an appointment with doctor for next day. For the next month they treated me for UTI and Kidney stones.

April 16, 2008 now having dark red urine. Had a c [...]

Bladder Cancer - Almost One Year - Part 4 - 1st Followup

richard@rblakeonline.com — Fri, 30 May 2008 01:00:00 +0100

Well, yesterday marked the date - my first Cystoscopy since the latest TUR in February. I must say, the night before was sleepless. Even though I was not having symptoms, this disease took me by surprise to begin with so I take nothing for granted.

On this occasion the news is all great! In fact the Doc says my bladder looks "pristine". Doesn't get any better than that folks.

My thoughts, hopes and prayers are with each one of you still [...]

Squamous cell

sarina40@cox.net — Thu, 29 May 2008 01:00:00 +0100

Hi,

Not sure where to start. Looking for some similarities with my brother's bladder cancer and not finding any. He will not get on this site to search. I hope that someone can give me some answers. Brother was diagnosed with bladder cancer December of 2007.Had it removed Jan 2008. Him and his girlfriend came to live with me for a while and he recuped. Moved to Maine that summer and diligently went for his 3 months cystoscopys. Last one was positive. Went from superfici [...]

Bladder Cancer - Almost One Year - The Road Traveled (Part 3) (BCG)

richard@rblakeonline.com — Fri, 23 May 2008 01:00:00 +0100

Well, if you missed Part 1 and 2 then you're joining this adventure in at the middle of the end and welcome! I'll just continue where I left it and begin with my experience with BCG. However, I must open with a salient fact

A little over a month before I heard about things like papillary carcinoma, stages, grades tumors I was blessed with a beautiful granddaughter - Addie Jane. I mention it here because during the BCG process she was a great comfort to me along with my two daug [...]

Bladder Cancer - Almost One Year - The Road Traveled (Part 2)

richard@rblakeonline.com — Fri, 23 May 2008 01:00:00 +0100

Part one of this story addressed the diagnosis date and the weeks and months that followed soon thereafter ending with a second TUR in September of 2007. That is where I'll pick this up -beginning with the results of that second procedure and the associated pathology.

As with the first experience, the second TUR pathology confirmed the disease was Ta Stage I noninvasive papillary carcinoma. No real surprise there. Dr. Dato assured me before the procedure that a significant percentage of t [...]

Bladder Cancer - Almost One Year - The Road Traveled (Part 1)

richard@rblakeonline.com — Fri, 23 May 2008 01:00:00 +0100

After several missed attempts at a diagnosis by my primary care physician woefully ignorant of the disease, June 20, 2007 marks the day I was officially diagnosed with bladder cancer. On that day the Urologist I met only minutes before pointed to the CT film and said "this is a tumor" and - at that very second - my life changed.

Seven years earlier I quit smoking and began to live a fairly healthy lifestyle (save the occasional fast food indulgence and resistan [...]

3-MONTH CYSTOSCOPY

craig.a.stockton@gmail.com — Fri, 16 May 2008 01:00:00 +0100

I was cautiously optomistic (what other way is there to approach such a thing) that my bladder would be found cancer-free. When I got to the office, the nurse ushered me into the room for me to disrobe, then left to prepare my sample for testing. A few seconds later she opened the door just a crack and said, "I am assuming that you are 'Charles Bronson', since his is the only sample that has been left since you came in?..." <sheepish grin>

I end [...]

RECCURENCES

nancynursez637@aol.com — Wed, 14 May 2008 01:00:00 +0100

I have had superficial bladder cancer for 4 years, with one recurrence 18 months after diagnosis. Now I have multiple areas of suspect and will undergo another turbt and mitomycin instillation. I am not a candidate for bcg due to a suppressed immune system.

It appears to me that this will be an on going effort to control cancer through the quarterly Poke and Peeks, and then episodic resections and more mitomycin. I don't think I understood this initial [...]

POST-BCG

craig.a.stockton@gmail.com — Mon, 12 May 2008 01:00:00 +0100

In the weeks after the initial treatment, my bladder has settled down, and there is little (if any) discomfort in urination. I have found, however, that it takes more patience to fully drain my bladder -- concentrated relaxation of those muscles, and a little coaxing (you may be the only folks who can relate). I also find that my bladder capacity, and the time between urinations, is very unpredictable. Sometimes it will be a few hours, while at other times I will get a sudden u [...]

21 M with Bladder Cancer

swampdogsupply@yahoo.com — Sun, 11 May 2008 01:00:00 +0100

Hello I am 21 years old. Nov 2007, after I urinated blood on and off for 10 months, I learned that I had bladder cancer. After serving 2 tours in Iraq and having no family history of bladder cancer it's been frustrating that the military, VA, and civilian doctors can not determine how I contracted the cancer or how to treat the symtoms after surgery. My first surgery December 2nd I had a turbt,and a single treatment of mytomycin for one hour. Since that time I have had 5 more surgeries due t [...]

My Story-----Life Goes On

crazyhorse_1972@yahoo.com — Sun, 27 Apr 2008 01:00:00 +0100

Well my story starts as this.I am a 52 yr old male and I live in the suburbs of Phila, Pa. I had my left hip replaced on 9/26/07. I had the walker and cane the whole bit like I was learning to walk all over again. Well all ended well there and I felt like a new man. I was discharged from Ortho Dr. on 12/11/06. Now the holidays are coming and I'm excited only for my 2 grandchildren a boy and a girl both 5 yrs. old. Not that I hate the holidays but it's always spend spend spend you know th [...]

Our Family's Journey With Metastatic Bladder Cancer

karenleto1@bellsouth.net — Sun, 27 Apr 2008 01:00:00 +0100

Welcome.........

Our Family's Story begins on April 15, 2007. My Husband Angelo was having some pain during urination, and saw blood in his urine. After a visit to his General Practitioner he was diagnosed with a Urinary Tract Infection, and was sent home on Antibiotics.

After finishing the prescription he did feel better, but it was short lived the "Infection" returned soon there after and he was again prescribed antibiotics. [...]

Five (5) Years Plus!!

aball@theballgroupinc.com — Sat, 26 Apr 2008 01:00:00 +0100

LIFE IS GRAND!

Just finished my 5 year round of chemo. Systo reveals no abnormal cells. One more round of chemo next March (2009). I hope that my results are encouraging to all who read this.

I am so thankful for the support of my family and friends and for God's healing power. My wish is that each and every one with this affliction will have the good fortune that I have enjoyed. God Bless!

Allen

Leigh's Journey With Bladder Cancer

leigh@zeelandnet.nl — Tue, 22 Apr 2008 01:00:00 +0100

I forgot to mention my classification has been changed from Mx to Mo...

Leigh's Journey With Bladder Cancer

leigh@zeelandnet.nl — Tue, 22 Apr 2008 01:00:00 +0100

Dear Forum,

Today I had an appointment with my Urologist to discuss my scan results.

He was very happy with the results so far and suggested that I have a repeat CT scan in three months. This time it will be a full body scan instead of the usual torso.

Having just come back from a Urology conference his advise to me was that I should supplement my diet with all of the B vitamins and eat plenty of fresh fruit and vegetables instead of processed foods. And to take [...]