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|For The Newly Diagnosed|
The Patient's Pledge
Furthermore, patients have the right
-To be provided with all the information needed to make an informed decision about options and care, risks and benefits, possible outcomes, possible side effects, who is providing your care and costs.
-To be able to express a concern or complaint and receive a prompt response. We also have the right to file a formal grievance if not satisfied with the resolution of your complaint. For more about patient's rights: http://www.muhealth.org/~center/pgrights.shtml
I've Just Been Diagnosed. What Should I Do?
Finding a good doctor who is willing to investigate and discuss all the options is the most important part of your treatment. In the face of a cancer diagnosis, never hesitate to get second and third opinions, don’t feel like you must rush into treatment. Most bladder cancer patients are treated by urologists. Some see oncologists as well, and others track down specialists in the field of urology/oncology. Patients receiving radiation will need a radiologist oncologist, and you may find that approaches differ widely according to a doctor’s specialty.
Get your second opinion from a medical professional not affiliated with the first group or institution.
If cystectomy is indicated, you'll want to find the most experienced surgeon/surgical team possible, preferably affiliated with a major cancer institute. There is a list of cancer centers and institutions that specialize in urology, ranked/listed below.
If you haven’t already seen this article Second Opinions: Why, What and Who, please read Steve Dunn’s advice on CancerGuide, about the importance of, and how best to approach getting a second opinion.
For those who need help finding the right questions to ask, WebCafe has compiled a list of FAQ's for both non-muscle-invasive and muscle-invasive bladder cancer.
Cancer Centers Program of the NCI supports cancer research programs in approximately 60 institutions across the United States through P30 Cancer Center Support Grants. For information about, and listings of these US institutions. http://www.nci.nih.gov/cancercenters/default.html
US News and World Reports' top ranked hospitals for urology/cancerupdated 2006 At this link you can search for the best cancer centers or urology hospitals in your area of the U.S. f
|Last Updated ( Friday, 14 November 2008 )|