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Resources in Europe caregivers/end of life issues ostomates-on and off-line supplies, support and info clinical trials alternative-complementary medicine financial help/resources Something to ponder first; For help without the computer, for US citizens: Cancer Information
Service (CIS) Provides accurate, up-to-date information on cancer to
patients and their families, health professionals, and the general public.
Information specialists translate the latest scientific information
into understandable language and respond in English, Spanish, or on
TTY equipment. The American Cancer Society
http://www.cancer.org; The website from the ACS provides help and resources
to patients and caregivers all over the US. They also have a toll free
number, 1-800-ACS-2345; Information Specialists are available 24 hours
a day, 7 days a week. NCI ClinicalTrials;
http://cancer.gov/clinicaltrials/ Entrez-Pub
Med http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=PubMed Medline
Plus http://www.nlm.nih.gov/medlineplus/bladdercancer.html MD
Anderson http://www.mdanderson.org/diseases/bladder/ Mayo Clinic http://www.mayoclinic.org/bladder-cancer/ Oncolink
http://oncolink.upenn.edu/disease/bladder/ CancerWEB
http://cancerweb.ncl.ac.uk/omd Medscape http://www.medscape.com United Ostomy Associations of America http://www.uoaa.org This is a volunteer-based health organization with over 200 affiliated local support groups in the US, dedicated to assisting people who have had, will have, or are considering having intestinal or urinary diversions. National UOAA 1-800-826-0826 can give names and numbers of US support groups as well as groups in Canada and internationally. The Urologychannel http://urologychannel.com MedicineNet.com A good, patient-friendly site explaining all the basics of blca The Internet Drug Index
http://www.rxlist.com The Wellness Web http://www.wellweb.com The European School of Urology : Management of Superficial Bladder Cancer Online course American Urological Ass.:
Patient's Treatment Guidelines for superficial, non-muscle invasive
bladder cancer, published 1999 Dr. Donald Lamm-
BCG Oncology, one of the US' top uro-onc and BCG expert BCAN- www.bcan.org The Bladder Cancer Advocacy Network—is the first national advocacy organization dedicated to improving public awareness of bladder cancer, and increasing research directed towards the diagnosis, treatment and cure of the disease. Founded in May 2005, BCAN is a cooperative effort among bladder cancer survivors, their families and caregivers, and the medical community. Check their site for bi-weekly chat. BCSisterhood -www.sylvialramsey.com/bcsisterhood.html Sylvia Ramsey, survivor, advocate and poet has set up a blog for women with bladder cancer and an email group for ladies only. The goal is to bring awareness and togetherness in the bladder cancer community on the issues specific to concern women. Clara Walton Foundation, Inc. www.clarawaltonfoundation.org Seeks to increase national and local awareness and attention to the impact that cancer has on the African American Community. Increase the attention of health disparities and quality-of-life issues that are growing in the African American Communities. Provides supportive services, educational resources, news, events, and clinical trial information for patients, families and healthcare providers. Patient created site for mesothelioma survivors: ### LINK NOT FOUD ###Bladder Cancer, Urostomy and Impotence, by Roni Olsen. Bladder cancer advocate and volunteer Roni has donated her book free to the public. The book is in pdf format and may take a minute or two to download. The Guide to Living With Bladder Cancer Mark P. Schoenberg, M.D.,
F.A.C.S. and the Faculty and Staff of the Johns Hopkins Genitourinary
Oncology Group. Easy to read guide for patients and family: symptoms,
diagnosis, treatments, by the director of urologic oncology at Johns Hopkins,
one of the very top institutes for uro/oncolgy in the US. http://www.press.jhu.edu/books/title_pages/2644.html 100 Questions and Answers About Bladder Cancer Pamela Ellsworth, Brett Carswell, Jones and Bartlett Publishers; Medical texts: http://medicine.jbpub.com/ Choices
in Healing (available free online) Michael Lerner's excellent book on just about everything
out there pertaining to alternative/complementary cancer treatments. Helps
one to make a more informed choice, by giving all the angles. A critical
look at mainstream oncology has gotten him on the bad side of Quackwatch
and the NCI, but for me and many others, his book is an oasis of reason
in the terrifying world of cancerland. Weil, Andrew. Spontaneous Healing. Ballantine Books, New York.
Simonton, O. Carl. Getting Well Again. Bantam Books, New York.
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