Author: Leigh

Radical Cystectomy Part 1: The operation was scheduled on September 14th and two days prior to this I was admitted for pre-op tests which included blood samples and a few x-rays of my chest. All of which were necessary to ensure I was in good health for this major surgery. I was very luckily allocated […]

Radical Cystectomy Part 2: On the sixth day my intestines were still sleeping and then the central line came into action as they decided to feed me using this method. They used a special liquid food that absorbs into the blood and systems. This method continued for several more days as my intestines decided to […]

Home: I spent 10 days at home with my two catheters and it was a very slow process building up my strength day by day. Walking around the living room or visiting the toilet was enough to feel exhausted. During these 10 days at home I had a great support network to help me which […]

Home alone: Now that the operation is all over I have no regrets for choosing to have the neo bladder. I would be lying if I said it was easy it certainly was not. At times during my first few days I did have lots of regrets and thought I had made a big mistake […]

Dear Forum Members, My story started in the spring of 2007. I am a 38 year old English guy living in the Netherlands. Symptoms: The initial symptoms that I noticed was that my need to urinate increased and the flow of my urine became intermittent instead of the usual constant flow. The last few drops […]