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One year ago today, I had a 75 gram bladder tumor resected. The diagnosis was apparently tricky and I saw terms such as sarcoma, sarcomatoid variant and carcinosarcoma on various reports. I asked the urologist “Is it survivable.” He looked down and didn’t say a word –Not the “no” I was dreading nor the “yes” […]
Well, since last I posted to this part of the forum, a lot has happened, actually –less to do with my treatment (though there is news there, too) than with reasons to live "beyond expectations." I do have an appointment set up with a metastatic bladder cancer specialist at MD Anderson for March. In the […]
I'm just wanting to add something that I wrote to another user of this forum a little while ago. Writing the more painful (delays, bad news) parts of my storyhas been hard for me. I find it hard to do because I do think I "should have could have" been smart and assertive enough to […]
Hello all — My husband and I went to see my medical oncologist today. As I gathered from reading the CT scan report, there appears to be manylesions in my liver and nodules in my lungs. One of each are pathologcialsize. Due to some issues with comparability with past imaging, it is hard to see […]
To read the most complete version of my story, please read Part 1 as well as this part, Part II. Here, I am writing a continuation after CT scan has shown more lesions, growth inat least one liver lesion, and a possible lesion in a new location (with follow-uptesting recommended.) This while receiving Genzar and […]
01-29-08 Results of recent CT Scans I talked to my nurse on the phone, not so good a way to get results. I think I'll call back and ask to pick up a copy of the report today. I did hear that my largest liver lesion had grown from 4.0 to 4.9 CM since November. […]
In January 2007, the bleeding became continuous. I went to my present primary care doctor and was told that I should take antibiotics and see if it improved. I called back when the big clots started coming but was told (by a nurse) to just keep my regular appointment. I didn't get to that appointment […]
Susan – delayed diagnosis A volunteer at my church helped me find WebCafe and its forum. My bladder cancer has spread to my liver and lungs, maybe a bone. i was supposed to have a radical cystectomy this month (Dec. '07), but we cancelled it after the MRIi report. Now, I'm getting chemotherapy (taxol and […]