Papillary tumor stage T1 Grade IV/IV plus CIS
Completely out of the blue (isn’t it always?!) on October 2nd, 2003, I experienced blood in my urine. 40 years old and no known risk factors. IVP scan the following day showed no abnormalities, though urine cytology suggested presence of malignancy. Cystoscopy on October 7th under general anaesthetic revealed single papillary tumor (hiding in a diverticulum of the bladder) and CIS. Tumor removed and graded IV/IV and Stage T1. Had single instillation of Mytomycin (chemo), followed by six weekly instillations of BCG. Half way through BCG treatments I insisted on a CT scan of whole abdomen for peace of mind. Scan detected a spot on the liver which was assumed to be benign, but further checked out via a “tagged RBC hemangioma test”. Spot was indeed benign and unrelated to bladder cancer. First cystoscopy at 3 months was clear. Currently on monthly BCG maintenance.