The ongoing nature of the battle with bladder cancer has led some survivors as well as caregivers to refer to themselves as warriors. Many thanks to the people here who have generously shared their experience. Your courage, tenacity and humor are an inspiration.
Rare tumors / Urachal Carcinoma
A note to the newly diagnosed: Learn more: staging and grading – non muscle-invasive bladder cancer – muscle-invasive bladder cancer – Abbreviations used
Bladder Cancer-Not Just for Old Folks!
- Christine – 27 and pregant with TCC
- Roger Barton -35 with muscle-invasive bladder cancer.
- Paul H. – 36 with T1, G3 papillary tumor (2cm) with CIS.
- Alana and Tom Steinmetz – Alana’s dx: 36, high grade TCC and pregnant
- Young people share – Al age 45, Kelly, 38 and Donna age 44
- Allison – Non muscle-invasive, low grade bladder cancer
- Ken Hulse – hematuria for two years before diagnosis, clean for five years
- Paul R BCG for high grade TCC/CIS
- Fred BCG+IFN followed by systemic chemo for muscle-invasive TCC
- Brian Gulino carcinoma-sarcoma of the bladder and BCG
- Carole Smith Fighting since 1994-BCG, Mitomycin, many TUR’s
- Pat Silveria Keeping TCC in check with BCG + immune stimulants
- Paul Carr Refractory CIS/Valstar
- John Stroop BCG, BCG+IFN, BCG+IFN+IL2, Mitomycin C – staving off Cis since 1997
- Gary’s BCG diary
- Rosie – BCG, watchful waiting vs. surgery, bi-polar instrument, Mitomycin C
To RC, or Not to RC… … How one man with Ta, Grade III TCC+CIS came to his decision to have a radical cystectomy after seven opinions – Read Dan’s Story
Muscle-invasive Bladder Cancer
Cystectomy with ileal conduit and external appliance
- Diane – 20+ years since surgery and still doing well
Cystectomy with continent internal reservoir (pouch)
- Sylvia Ramsey Long term survivor with Indiana pouch-poet and patient advocate [See also: Sylvia L. Ramsey Poetry for Bladder Cancer www.sylvialramsey.com ]
- Karen J Pouch Woman Speaks- new chemo protocol from MSKCC followed by cystectomy/Indiana Pouch
- Kathy Leslie I Have No Bladder (Indiana Pouch)
- Bill Lanius: One Lucky Geezer Bill tells about getting the Florida pouch
- Ben Olsen Long term bladder cancer survivor (Kock pouch)
Cystectomy followed by (urethra-sparing) neobladder
- Tim – Nerve-sparing success story!
- Captain Dave 47 yrs; T1-G3 – RC, post op pathology: T2a-G3
- Ken Z: “I went into surgery with aggressive high grade stage T1 and came out with aggressive high grade stage T3aN0Mx.”
- Robert Happy Neo-bladder recipient
Ken G Neobladder at age 46
- Larry Cystectomy, neobladder followed by M-VAC after p53 tested positive at USC/Norris
- Bill K. Continent reservoir from Skinner/USC Norris
- Cindy’s Tale– neobladder, 2005
- Enid’s Tale Hautmann neobladder
- Neobladder Woman Anonymous contribution
- Linda’s Story
Muscle-invasive Bladder Cancer-Bladder Sparing (TUR+radiation+chemo)
- Mike Mann ‘Combined modality‘
– March 2009 makes it ten years out, and still doing well.
- Cyndi – a woman’s experience with combined modalites, treatment failure and subsequent bladder removal
Upper tractTCC – transitional cell carcinoma of the renal pelvis (Kidney TCC) and/or ureter
- Seth Briliant TCC of the renal pelvis
- Paul S. Morton Jr Surgery for TCC of the renal pelvis and ureter, BCG treatments for TCC bladder
- Sally Surgery, chemo for TCC bladder, renal pelvis and ureter
- Susan – Delayed diagnosis, stage IV, near New Orleans post Katrina
To contact any of the above authors who have chosen not to include their email address, you can send questions or comments to the webmaster for forwarding.
last modified 2019-03-05