Information - Resources - Support
We have had the fortune of having a lot of active members who were willing to share their stories with us. Here is what they had to say. Their posts are displayed in chronological order. Click on “view all posts” to see all posts from that author.
Has anyone ever heard of bladder cancer returning to the vaginal wall several years after radical cystectomy? My family is dealing with this right now. We have consulted with numerous urologists from major university hospitals and not one has seen this recurrence before.
I am updating this for my own purposes really. Thursday -we came home to see Dad today as my sister and Mum said he was getting very low. I rang Mr Carr the consultant and managed to speak with his PA who was very helpful. She put us in touch with the Clinical Nurse Specialist […]
Hi I am from the UK and my Dad has undergone a huge operation just over a week ago. He was (finally) diagnosed with cancer of the ureter and kidney in November after several tests which began in July. He was taken into hospital in January to have his left kidney and ureter removed only […]
well, i went for another opinion on my neo bladder which has left me totally incontinent since last July. went to another doc at the same facility. now i'm scheduled for surgery to "convert" the neo to an internal pouch. my current problem is that the doc is calling it "elective". aside from all […]
In August of 2010 I experienced hematuria (drops of blood in my urine). To say I was shocked and scared is a understatement. I was 43 years old at the time and all sorts of bad thoughts started to cross my mind. Well, I researched my symptom on the internet and being a heavy smoker […]
My son was 23 and in Arizona, in their State Prison, serving a 4 month sentence for 1st offense DUI [whatever you do, don't drink and drive in Arizona] when he began having blood in his urine in the latter part of 2009. To make a very very long story short, he had bladder cancer. The tumor was […]
to recap, i had a neo bladder in July last yr. i have been incontinent ever since. i have seen another doc my surgeon referred me to. i don't like what he is proposing, basically, a hammock. my research has seemed to indicate this procedure is not so great. so, i have an appointment with […]
Has been some time since I posted on my progress so here goes. Had a second TURBT on December 14, 2010 which resulted in negative for cancer regrowth. Began a 6 week BCG Treatment regiment in January 2011 during which I continued with a full work schedule and attempted to exercise as much as possible. […]
Muscle invasive TCC grade II-III/III with CIS T2N0M0 I was diagnosed with muscle invasive TCC in February 1995 after seeing a small amount of blood in my urine. I was 45 years old at the time. My urologist referred me to a Dr. Sagalowsky at the University of Texas Southwest Medical Center in Dallas, Texas. […]
In an unusual move, the FDA has recalled 500 medications meant to treat coughs and colds. The FDA cites untested safety and effectiveness in this recall. There is a trade-off to manufacturing medications in emerging markets. This recall highlights that security trade. Resource for this article – FDA recalls 500 medicines; low cost can […]