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We have had the fortune of having a lot of active members who were willing to share their stories with us. Here is what they had to say. Their posts are displayed in chronological order. Click on “view all posts” to see all posts from that author.
Not sure where to start or what I really want to say , so as they say begin at start of what is now my husbands story . My husband is 46 and was first diagnosed with bladder cancer in March of this year. We then had his bladder removed on April 18th where the […]
July 2011 Cysto went well. All clear, no Biopsy Needed. Dr Follow up in 2-3 weeks
My father was diagnosed with bladder cancer 5 years ago he is 82 years old presently. It was non muscle invasive bladder cancer so he had BCG treatments. The next check up showed tumors growing again in his bladder and he had his second tur with tumor removal. They them tried the BCG again and […]
My husband was diagnosed with bladder cancer in December 2010 and attempted to take chemo prior to surgery to remove his bladder (muscle invasive) but he could not tolerate the chemo or radiation. His surgery was May 16th and in the hospital for 11 days because he had a reaction to the drug Reglan(?) Prior […]
My 67 y/o mother was diagnosed with muscle invasive bladder cancer a little more than four months ago. Since the diagnosis we have seen several doctors and it seems like each one is telling us something different. The first urologist we saw, the one who made the diagnosis, told me after he did the biopsy that […]
I was diagnosed with stage 3, muscle invasive bladder cancer in September of 2009. Of course I was immediately and repeatedly told that radical cystoprostatectomy was absolutely my only option. Upon extensive research and finding the incredibly poor results that this radical surgery offered, my wife and I left no stone unturned trying to find an […]
Well Dad is now home! He came home Friday night around 8pm. Almost a month in hospital. Carolyn, my sister, and my Mum went to collect him. The nursing staff were wonderful. As he left, Dali one of the nurses (she is from India I think), took Dad's face in her hands, looked deeply into […]
Better and better news. Dad is now eating and is his old self again. To hear him laugh on the telephone yesterday was as beautiful as hearing the wind rustle the long grass, the sea lapping at the shore and the feel of hot sun on skin. He is alive. He is still part of […]
I AM A CAREGIVER MY HUSBAND HAD HIS BLADDER REMOVE AND NOW HE HAS THE NEO BLADDER WHICH HAS A HOLE SOME WHERE. HE STILL HAS JP TO DRAIN THE EXCESS URINE. IT'S BEEN 6MOS. WE'VE TRIED OXGEN CHAMBER, TUBES IN KIDNEY THAT FAIL, COULDN;T GET TUBES IN. WILL BE TRYING IT AGAIN MONDAY, NOW […]
All seems to be going well. After a long haul of anti-biotics, intravenous feeding and physiotherapy, Dad has beaten the wound infection, the chest infection and has managed to have 'movement' in his bowels. We are definately going to have a poo party now! He is now on limited food intake (jelly) with tiny sips […]